Tag Archives: learning disability

Made Possible: groundbreaking book hits 100% crowdfunding

Six weeks ago I launched a crowdfunding campaign for Made Possible, a groundbreaking collection of essays on success by high-achieving people with learning disabilities.

The book is inspired by my sister, who has the learning disability fragile x syndrome, as well as by some of the remarkable, succesful people I’ve met and interviewed over the last few years – all of whom happen to have a learning disability.

I’m delighted to say the book is now 100% funded, such has been the fast pace and mounting enthusiasm for the project. More than 200 diverse people and organisations have got behind the book since its launch on 6 September.

Made Possible presents the authentic experiences of a range of professionals who have a learning disability in different areas like theatre, music, art and campaigning. And, for the first time, these high achievers tell their own personal stories of success, in their own words.

It is a book to change the current narratives about learning disabled people, narratives that mean they are talked about as somehow less than human.

Thank you to everyone who’s got involved and backed this book. I can’t wait to start working on it. To find out more, follow the book’s progress and to pre-order a copy, see Made Possible on the Unbound website.

Made Possible is a month old

It’s taken less than four weeks for the book I’m editing, Made Possible, to become more than 50% crowdfunded – and this is all down to the project’s incredible and growing band of supporters.

The anthology includes the experiences of people with learning disabilities in their own words – it challenges the current narratives on learning disability which dictate that people are pitied, patronised, and not heard from directly. It presents the authentic experiences of a range of professionals who have a learning disability; these high achievers tell their own personal stories of success.

As a social affairs journalist, most of my work over the last 20 years has been influenced by the fact that I have a learning disabled sister. I know that her learning disability doesn’t define her, but society inflexibly labels her in terms of her condition, instead of recognising her personality, skills and abilities.

Attitudes must change – and that’s why we need this book, which is already halfway to being published (click here to make a pledge to help publish the book and join its community of supporters).

To hit such a milestone so soon reflects a determination of so many people to shift negative attitudes towards learning disabled people.

Made Possible also considers the wider context that undermines people’s talents and aspirations. For example, we’re in party conference season and the Conservatives are gathering in Manchester as I write. Yet most politicians (with a few rare exceptions) overlook learning disabled people – despite the fact that more than a million people with learning disabilites are entitled to vote. This is not only an equality issue – why does the political world seem to bypass people who have both a right and a desire to go to the polls? – but vote-needy politicians could do with wooing this signifcant chunk of the electorate.

Many of this book’s supporters (scroll down on this page to “Supporters”) including campaigners, activists, self-advocates and support providers – are among a strong and growing lobby working hard (all year round – not just during conference season) to change this. I’m looking forward to reflecting the vital growth in this kind of activism and awareness-raising in Made Possible.

* This post is based on an update originally published on the Unbound website

Made Possible hits the midway milestone

This post is based on a piece originally posted on the Unbound website

There has been surge of support for Made Possible, the non-fiction book challenging learning disability stereotypes I’m crowdfunding with the award-winning publisher Unbound. The crowdfunding campaign has been so popular that the anthology is more than halfway to being published – just three weeks after launch. Wow (the background to the book is in this previous post).

I’m so grateful to everyone who’s pre-ordering Made Possible (all supporters get their name printed in the book), as well as sharing its aims and inviting others to get involved. As I write this update, there are 127 people in our Made Possible community, and I’m absolutely delighted that the book’s incredible range of supporters includes learning disability self-advocates, family members, campaigners, professionals, support organisations and people interested in human rights.

If you’re on social media, do follow #MadePossible and connect on Twitter, Facebook, LinkedIn or Instagram – I’d welcome the chance to hear from you if you fancy saying hello.

During Unbound’s recent Anthology Week, which offered a social media focus on the publisher’s essay or story collections, some Made Possible makers tweeted about why they decided to help publish Made Possible:,


Thanks so much to everyone for joining the growing campaign to publish this book; I’m looking forward to seeing what the next week brings.

*Find out more about Made Possible on Unbound, or follow @Saba_Salman and #MadePosible on social media

Fresh perspectives on social care: a new exhibition

What does someone who is supported by social care look like?

Transforming stereotypical perceptions of social care is the aim of a new photography exhibition showing in London this month – some of the featured images are shown below.

SELF Season 2 is a collaboration between photographer Dean Belcher and social care provider Certitude.

Everyone featured in the exhibition is either connected with Certitude or with activities offered by Age UK Hounslow, west London. The project’s ambition is to use imagery “to depict the commonalities between people within social care rather than reinforcing the often-imposed barriers and roles that people are given”.

The new show follows the success of an exhibition (SELF: Portraits in Social Care) held in Brixton earlier this year.

* SELF: Portraits in Social Care is running until Thursday 28th September at Montague Hall, 30 Montague Rd, Hounslow TW3 1LD, Monday to Friday 3pm – 5pm. For further details, contact jmeyer@certitude.org.uk

Challenging perceptions about learning disability: a personal piece

My sister Raana (left) and me (photo: Rob Gould)
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When I tell people that my youngest sister has the learning disability fragile x syndrome, there are usually two common responses. People either ask what fragile x is, or they want to know kind of support she needs.

Not many people ask my sister’s name (Raana) or how old she is (28). They do not ask about her skills (baking, ceramics), what she likes doing in her free time (zumba, movie nights), or her achievements (so many to choose from – her artwork, her college course, her public speaking, how she looks after her nephews and niece).

In a piece today for Learning Disability Today, I explain how the focus on my sister’s disability, rather than her ability, is a symptom of wider negative public perceptions about learning disability. Such perceptions mean that people with learning disabilities are regarded as devoid of personality, passive recipients of care or deserving of pity.

Overturning these attitudes and challenging stereotypes about people like my sister is the aim of the new book I have just launched, Made Possible. Made Possible is a crowdfunded collection of essays by high-achieving people with learning disabilities. The book, with the award-winning publisher Unbound, features the experiences of talented professionals in different areas like film, theatre, music, art and campaigning.

To read more, see the blog in Learning Disability Today.
To help the crowdfunding effort, see Made Possible on the Unbound website, follow #MadePossible on social media and @Saba_Salman on Twitter

Made Possible: diverse individuals united by a common cause

Just 11 days since launch and Made Possible is already more than 40% crowdfunded – that’s down to 100 brilliantly supportive people so far helping to create this groundbreaking book by pledging and pre-ordering it.

I’m working with award-winning publisher Unbound on Made Possible, a collection of essays by successful people with learning disabilities. It’s incredible that it’s almost half way to being published and has hit the 100 supporter landmark, something that is entirely down to a group of diverse individuals united by a common cause.

People with learning disabilities are pitied or patronsised, but this new book challenges the current narratives. It presents the authentic experiences of a range of professionals who have a learning disability and, for the first time, they tell their own personal success stories in their own words.

You can read more about the book here and check the latest updates here.

Follow me on Twitter @Saba_Salman and #MadePossible to keep up to date with progress.

You can also check out the #UnboundAnthology thread this week (and if you’ve already made a pledge to help create this unique book, then thank you!)

How to get more learning disabled people into paid work

When I recently met Anthony Knight, an arboretum horticulturalist at Kew Gardens, his enthusiasm for work was infectious. Anthony’s knowledge about plants and trees is impressive – as is the determination with which he’s pursued his passion for gardening.

It took him nine attempts over five years before finally landing the job in November, despite having done work experience and an apprenticeship at the world-renowned botanical gardens in south-west London.

While in theory Knight, 38, was a strong contender for the job – having previously worked at Kew, at a local nursery and in garden maintenance – he has a moderate learning disability that affects how he communicates, so job interviews were a barrier. “I was not able to portray myself in the best possible light,” he says.

Knight was only successful once Kew adjusted the application process, giving him more information about the general subjects to be covered so he could better prepare for the interview. He also had support from learning disability charity Mencap.

As someone who has a learning disability and is in paid employment, Knight is rare. In the UK, just 5.8% of people with a learning disability who are known to social care services are in paid work, compared with 74% of non-disabled people. But the most up-to-date figures from a 2009 government report show that 65% of learning disabled people want paid work but have been unable to get a job.

There’s also a growing call for more people with learning disabilities to have a paid role at and a stronger influence on the kind of organisations that support them.

For more, read the full piece here.

Prejudice and inadequate support: the situation for minority ethnic children with learning disabilities

Callum and Parmi Dheensa (photo: Parmi Dheensa)

When Parmi Dheensa’s son Callum kissed a classmate on the cheek not long after starting at a special needs primary school, a teacher asked his mother if this was “culturally appropriate”. Dheensa said that as long as the classmate was happy, nothing in her son’s Punjabi heritage forbade such displays of affection.

It is just one example over many years of professionals leaping to incorrect conclusions based on the ethnicity of her severely learning disabled son, who is now 19, says Dheensa. They also assume she does not work and is supported by an extended family when in fact she is a lone parent who works full-time. Dheensa, 43, was once told that her son’s support – he lives at home and is at a special school – was “better than it would be in India”. Fair point maybe, she says, but irrelevant to a British-born, Midlands-based family.

My Guardian article focuses on Parmi’s charity, Include Me Too, which works with 1,500 families a year. It has launched a campaign for the government to review its equality duties in relation to special needs education and support for BAME communities.

The charity has now launched a campaign asking the government to review BAME representation in government decision-making (existing involvement is, says Dheensa, “tokenistic”) and a new disability and equality strategy to ensure families get better support. The criticism is that professionals do not fully involve parents in reviews of the support they require, or in drawing up education, health and care plans, and parents or carer forums are predominately white British.

Read the article on the Guardian website.

Breaking barriers: new event in UK festival calendar

2Decks, who will be on stage at the Rock House Festival (photo by Paul Mansfield)
A new festival opens this weekend, featuring some of the biggest names in the integrated music scene, uniting learning disabled and non-learning disabled musicians.

The Rock House Festival in Brighton, promoted by learning disability-led arts charity Carousel, is expected to attract a crowd of 150-200 people.

The line-up includes Zombie Crash – the groundbreaking metal band that I’ve written about in the past (I was impressed back then by their “shouty, sweary, noisy chaos, big stage personas, a self-proclaimed kick-ass attitude, loud drums, screeching guitars and songs about fighting and sex”…who wouldn’t be?).

Zombie Crash, who will perform at Saturday’s Rock House Festival (photo by Paul Mansfield)

Other names at the new festival, which takes place at music venue The Green Door Store, include 2Decks, The Daniel Wakeford Experience,(who some might recognise from the Channel 4 show The Undateables). Fellow performers include prince vaseline and Sauna Youth. The festival’s wide ranging musical genres include rock, punk, blues, soul, jazz and rock/rap crossover.

Daniel Wakeford, performing at Saturday’s Rock House Festival (photo: Carousel Arts)
The band prince vaseline (photo Carousel Arts)

The inaugural event has been sparked by the successful monthly Rock House nights at music venue The Green Door Store.

For the last eight years, the accessible Rock House nights have attracted crowds of up to 100 and feature one non-learning disabled band, alongside up to five learning disabled bands.

Musician Tom Cook and promoter Richard Phoenix, who runs community interest company Constant Flux, launched the monthly band nights eight years as a showcase for the learning disabled musicians they worked with.

It’s hoped the new festival will become an annual fixture in the UK summer festival scene.

* Festival venue The Green Door Store has wheelchair access and wheelchair accessible toilets. For ticket information, see the festival website.

Pioneering performers: festival season for inclusive dance studio

Adrienne Armorer at a Step Change Studios session (photo: Step Change Studios)

Step Change Studios is the first dedicated pan-disability inclusive Latin and Ballroom dance class in London.

On Saturday, the Westminster-based school kicks off one of many summer season showcases at the Liberty festival at the Olympic Park .

Forthcoming summer appearances include performances and workshops at the Together Fest at the Arts Depot in North London on July 22. The school will also put on an inclusive dance demo at the Disability Sports Coach Summer Festival in West London on July 28.

The pioneering project’s last class before the summer break is on Saturday, and founder Rashmi Becker stresses there are no restrictions on ability, in terms of who can join in.

Step Change, which is based at the Abbey Centre and launched earlier this, is open to all. As Rashmi, a disability advocate as well as a dance specialist, explains: “We have people with learning disabilities, autism, wheelchair users with different physical and neurological conditions such as MS and cerebral palsy, people with visual impairments, young and older people…There are simple things I do to enable people to join in – for example I meet people with visual impairments at the station and support them to the dance space”.

Adrienne Armorer, for example, gave up her beloved salsa 10 years ago after developing the physically debilitating condition multiple sclerosis (MS). But she has taken up dancing again through Step Change, after hearing about the project through her local MS society.

Here’s how Adrienne, who details her experience in full on this blog, described her first Step Change class: “Wow – a 50:50 mix of wheelchair dancers and those without. Cool! A little warm-up and then we were off. I’m not a regular wheelchair user and get fatigued quite easily, so I was worried I wouldn’t be able to keep up. It was fine. Nuno and Rashmi [the instructors] are on hand to help and answer any questions. I also needed to ask one of the other wheelchair dancers how he was managing to turn his chair using just one hand. The hour flew by. What a great afternoon. We left on a high.”

For more information contact Step Change Studios Founder Rashmi Becker on 07976 363861, or email contact@stepchangestudios.com