Tag Archives: young people

A perspective on the Paralympics

Singer and rapper Dean Rodney, part of the Games Through Our Eyes website
There’s no shortage of media coverage of the Olympics and Paralympics, but one new online platform offers a unique and important perspective on the games.

Games Through Our Eyes is an accessible website for the 2012 Paralympic Games created by young reporters with learning disabilities. The team is supported by arts group Heart n’ Soul and social enterprise communications agency Poached Creative.

Games Through Our Eyes is covering wheelchair rugby, the three Paralympic sports open to people with learning disabilities (swimming, athletics and table tennis) as well as the Cultural Olympiad. This year is first time in 12 years that people with learning disabilities have been allowed to compete after Spain’s basketball team faked their disabilities in the 2000 Sydney games.

The reporting team includes Dean Rodney, a 22-year-old singer and rapper with autism whose audio-visual project, the Dean Rodney Singers, is part of the Cultural Olympiad. Dean, who has honed his performing talents through Heart n’Soul and who I’ve blogged about before, is part of the Unlimited showcase at London’s Southbank Centre starting today. Unlimited is staging cultural events alongside the Paralympic Games, having made major new commissions in disability, arts, culture and sport (for artist Rachel Gadsen’s contribution to the Cultural Olympiad, for example, see this previous post).

As far as the new website goes, Lilly Cook, one member of the reporting team, says the aim is for everyone with disabilities and learning disabilities “to be able to find out about them and all the other amazing things going on around them.” As Lilly adds in a recent blogpost: “Paralympic sports are just as exciting, professional and emotional as the Olympics.”

Alongside Lilly and Dean, the other reporters are Nicola Holley, Poppy Collie, Shalim Ali, and Laura Jarvis.

Expect some good coverage of Dean’s installation; the Dean Rodney Singers is an international digital collaboration of 72 musicians and dancers with and without disabilities from countries including Japan, China, South Africa, Germany, Brazil, Croatia and the UK. Their online interaction results in new music, dance and video and 23 of their pieces will be launched at the Southbank Centre today, with audience participation promised through interactive technology (the idea is viewers and listeners engage with the performers).

As well as the Dean Rodney Singers, other Heart n Soul artists perform in events during the Paralympics – the fabulous Lizzie Emeh at the Trafalgar Square Live Site this Sunday – fresh from accompanying Beverly Knight at the Paralympics opening ceremony – and The Fish Police (which Dean Rodney also fronts) at the Potters Field Live Site on Monday. The arts group’s spectacular multi-media club night The Beautiful Octopus Club (created by and for people with learning disabilities) is on Friday 7th September at Southbank Centre, the final weekend of Southbank’s Paralympic Games celebrations.

Keep up with the news on Twitter by following the Games Through Our Eyes team at @ourparagames

The riots a year on: “If people see me as bad, I might as well be bad.”

Joe Hayman, author, British Voices
“Even though we’re not involved in gangs,” the young man from Hackney tells me, “the way people look at you just puts you down. No matter what you do, you’ll always have that bad name of a black kid from Hackney, so some people think, ‘if people are going to see me like that anyway, I might as well be bad.’”

Last summer’s riots, which began a year ago today, hardened my resolve to write an uncompromising book, British Voices, about our country from the perspective of its people. The comment above comes from a teenager I met in east London last August, not long after the end of the unrest.

The riots felt like an expression of something we had swept under the carpet. It seemed to me that failing to address the way that people in the country were feeling – including the sense that ordinary people’s voices often went unheard – would simply leave those feelings to fester once again. I wanted to approach the widest range of people possible and no matter they said, would present their opinions faithfully.

I started my research three weeks after the end of the riots. One of the first places I visited was Hackney, the scene of some of the worst trouble, and a lot of discussion focused on stereotypes of young people and a lack of opportunities.

“There’s a lot of talent in Hackney,” one young man suggested, “but there are no opportunities to uplift yourself. We’re left stranded; we have to fend for ourselves; so, if you see people with the nice car, you say, ‘I want some of that’. Our generation, we like fancy stuff but we can’t afford it – the riots were an opportunity to get things you know you couldn’t otherwise get.”

Was it worth the risk of a criminal record? “If there are no opportunities anyway,” he replied, “you might as well risk it.”

There was also anger towards the police. “They racially discriminate,” another young man said. “They search the black kids and leave the whites. They smashed my brother’s head against a windscreen, pushed me up against a wall, all for no reason. That’s why people rioted – they enjoyed having power over the police. They were saying, ‘If we wanted to take over, we could.’”

“It was great how youths were united by the riots,” one young woman said. “Gangs you wouldn’t expect to mix going up against the police together. It was great to see such spirit.” She went on: “It was wrong to burn people’s houses and family businesses, but the big shops all had insurance so what does it matter? I don’t see how it’s different from MPs and their expenses.”

I asked her whether the expenses scandal justified violence and looting. “No,” she said, “but it sets a bad example.”

It was an argument I heard again and again; indeed a sense of disillusionment, and alienation ran throughout the entire three months I spent travelling around England, Scotland, Northern Ireland and Wales. I went as far south as Lizard Point in Cornwall and as far north as the Shetland Isles, talking to over a thousand ordinary people along the way. They were disillusioned with different things and expressed their feelings in different ways, but the feeling remained.

As I travelled, the anger in the wake of the riots seemed to fade. It was replaced by a sadness, a sense that for all the social, economic and technological steps forward the country had made, a lot had been lost along the way: a sense of community, trust and responsibility to one another.

The riots may prove to be a one-off, a few days of violence consigned to history; and even if there is trouble again, the police will be better prepared to respond. But none of the underlying issues have changed since the unrest began a year ago. Indeed, since then the economy has deteriorated and national institutions – the media, the police, the banks and politics – have all continued to take a battering. Surveyed around the Queen’s Jubilee, 75% of respondents to a Yougov poll said that community spirit had got worse in Britain, chiming with my own findings.

I came home determined to use the lessons I learnt to found a new charitable trust, The Community Trust, aiming to address this issue. My confidence comes from the most powerful lesson from my journey: that, in spite of all the changes in our society and the challenges we face, the kindness and decency of the British people lives on.

I also picked up some valuable lessons on the types of initiative that the new trust might support to harness that kindness and decency and to build a stronger society.

First, projects bringing together people from different backgrounds, building social bonds, fostering trust and breaking down barriers between communities. Second, initiatives enabling people to help each other to navigate their way in an increasingly complex, difficult world, building the skills, networks and personal attributes needed to get through and to thrive.

Small but important initiatives such as these – and the willingness of ordinary people to support them – could foster a greater sense of community and citizenship in Britain. That might not solve our problems, but might help us to face them together, rather than turning in on ourselves.

The next generation of social entrepreneurs?

Amid the talk of troubled families and approaching the anniversary of the 2011 summer riots, it’s tempting for many to pigeonhole young people as feckless and hopeless. A Europe-wide project, however, aims to encourage a new generation of social entrepreneurs into the movement for social change.

There are an estimated 11m EU citizens involved in the social businesses and Brussels-based JA-YE (Junior Achievement Young Enterprise) Europe Social Enterprise Programme aims to motivate young people to find solutions to socio-economic problems, boost their employability and give them practical skills in enterprise and ICT skills.

Teams of young entrepreneurs aged 15-18 from 10 European countries have just competed in JA-YE’s (which is funded by businesses, institutions, foundations and individuals) first competition to create social businesses. with the entries judged different countries.

The winning enterprise Nomeno (“No means no”), from Norway, developed Safe and Sound, a bracelet with a warning whistle that helps summon help in an emergency. The team is donating profits to the to the Norwegian National Association for Victims of Violence. Second place went to Russian young people, for the social enterprise TrustCane to create advanced walking aid canes.

Think Fit, a team from Tre-Gib School, Carmarthenshire, representing the UK, came third. The project, aimed at boosting healthy living, created activity cards in different languages to encourage children to exercise. The social business also produces branded water bottles, T-Shirts, high-visibility tabards and bags. The young people have also created Welsh, French and Spanish versions of the pack.

I suppose the niggling concern I have is how easy it is for kids to access the kind of scheme run by JA-YE- not being an education specialist, I’m not certain how schools would have things like this on their radars. That said, with much focus on the lost generation of n’er do wells, it’s worth nodding anything that aims not only to raise aspirations, but teach practical skills to make young people more employable.

The science of the sofa

Artist Michael Pinsky launches Fidget (pic: Geoff Caddick/PA)
Is there a science to sitting on the sofa? Any benefit to being on your backside? An art to sitting on your arse? An innovative new project by one of the country’s leading artists blends science and art in a bid to persuade the public that there is, sparking debate about obesity, activity, exercise and health along the way.

Comedienne Katy Brand helps launche Fidget (pic: Geoff Caddick/PA)

Launched in King’s Cross yesterday to capitalise on the Olympics (which many of us will sit around watching, doing very little exercise) the pop up Fidget campaign promises an “interactive canopy housing an arts experience”, created by renowned British artist Michael Pinsky.

Six “game zones” under the canopy encourage people to try simple activities for themselves and learn about the difference that moderate movement can make. On average, people spend about four hours a day watching television.

Dr Wilby Williamson, who has been involved in the development of Fidget (pic: Geoff Caddick/PA)

Run by London Arts in Health Forum and funded and supported by the Wellcome Trust, the project runs for a year, touring London before a nationwide tour of festivals, public spaces and other events this summer including Skegness, Edinburgh, Bradford, Bristol, Taunton, Gateshead and London Broadgate (see website for more details). There will also be interactive online communication tools developed by online charity YouthNet, which support young people online.

Caring and learning: the knowledge gap

As the 17-year-old unpaid carer of a mother with mental health issues, Holly is often asked – by her peers as well as by professionals – about the particular challenges of having a caring responsibility: “When I have tried to explain my situation, the questions have been, ‘Are you homeless? Are you on drugs? Are you being abused? Well things aren’t too bad then’.”

The reaction she often gets shows the low profile and lack of awareness about the particular challenges facing young adult carers. There are thought to be around 230,000 self-declared young adult carers between the ages of 16-25 in the UK but the figure could be much higher because stigma means many do not talk about their caring responsibilities.

Holly’s story is among the testimonies in a new report published today, Voices of young adult carers, stories of young adult carers’ experiences of caring and learning, to mark the start of Carers Week. The week-long drive raises awareness of the contribution the UK’s six million unpaid carers – as reported today, 40% of carers are put off seeking medical treatment because of the pressure of their caring responsibility.

The report that Holly contributed to comes from NIACE (the National Institute of Adult Continuing Education) and highlights the impact of caring on learning. Today’s publication focuses on young adult carers, young people aged 16–25.

Holly was 10 when she realised “my family did not function or behave the same as my friends’ families did”. Her mother rarely left the house, her brother often got into trouble with the police and her parents’ marriage eventually broke up. Referred to her local young carers service by a social worker, she lived part-time between her parents, moving eight times in almost as many years.

As the NIACE report shows, caring leaves young people with little space for school or college, let alone a social life or thinking about their adults futures. As well as having their education disrupted, it is hard for young adult carers to fit apprenticeships or work around caring.

As Holly explains in the report: “The house moves and disruption caused me to change college education halfway through and move to another college. Whilst at a continuous secondary school I was able to find support and the staff were genuine and made good links to my parents, always making sure I had opportunities. Staff even went out of their way to give me a lift home after any outside school activities, especially in the dark winter months. I achieved to my ability and started college where I built up good relationships with tutors. However, on my move to the college 70 miles away I had to restart the course, and although I tried to tell staff about my issues, I was left isolated and have fallen behind in my studies.”

Historically, provision has mainly focused on carers under-18, or adult carers and while NIACE says this is changing, there is still an awareness gap when it comes to knowledge about young adult carers. The situation is not helped because young people like Holly can find it hard to ask for help which, as today’s report suggests, adds to their difficulties with problems such as isolation, frustration, low aspirations and anxiety and behavioural problems. As well as the impact on the individual, there is an obvious knock-on effect on communities and the economy.

Recently, Holly’s mother has suddenly moved again, back to the area the family originally lived in and the teenager has, once more, started the process of changing college.

* More information on NIACE’s work on young adult carers, including resources to support learning providers in their work with young adult carers, is here.

Dads and disability

Zach and his father Kevin, who took part in research about fathers of disabled children published today, Dad & Me.
Imagine feeling under pressure to keep your child a secret from your employer. Imagine, at the other extreme, being abandoned by your friends for focusing too much on the needs of that child. What about if you felt you didn’t fully understand your son or daughter’s abilities, or felt so isolated and condemned to a life of hopelessness that you worry the stress is affecting your health or relationship?

This is the reality facing many fathers of disabled children, according to new research published today among 500 dads carried out by disability charity Scope and online community Netbuddy.

As one father told researchers during the survey carried out in April: “My friends have abandoned me because they don’t understand why I have to care for my child so much. And I know she won’t ever get better….My career, once promising to put me at number one in the world at my specialist area, is now going nowhere as permanent exhaustion means that talking intelligibly is a major achievement. But I love and care for my child. It isn’t her fault.”

The research, Dad & Me, aims to raise awareness about the role of male carers; while an estimated 5% of the population are carer dads, so far there has been little research into their experiences.

Today’s findings suggest that:
• 15% of dads keep their child a secret from their employers
• 40% do not fully understand their child’s disability (“Medical appointments are usually in the day and I cannot always get time off work to attend…this leaves me with less first-hand knowledge of what my daughter’s autism means and makes me feel inadequate.”)
• 72% say caring for a disabled son or daughter has affected their relationship with the partner with stress and tiredness among the causes
• 61% think mums are treated differently from dads

Deborah Gundle, Netbuddy founder and mum to Zach who has Angelman syndrome (pictured with his dad above), says: “We wanted to highlight the important role that dad carers have, but to realise the extent of the problems dads are facing has been overwhelming. Even I had not considered the extent of dads’ involvement – both emotionally and practically – and it is commonly the case that mothers are assumed to take all the responsibilities of caring on board.”

Dads feel marginalised as carers as the common view is that women cope better in the home, are listened to more and given more support and sympathy while the role of the father is to support the family financially.

As Richard Hawkes, chief executive of Scope, explains: “This survey shows that everyone involved in supporting families’ needs look long and hard at what can be done to support dads to play a part in caring for their children.” Hawkes argues that if the government is truly to create the family-friendly society it wants, it needs to do more to promote flexible working to support family relationships and finances. Scope also has a support group for fathers, which it hopes to expand.

The fathers in the survey suggest improvements which could help support them in their role as dad carers such as appointments outside working hours, specific help and advice sessions for dads and more employer awareness. Like all parents and siblings of disabled children, they also argue that better social integration – more opportunities for children to integrate with others in their age group in “everyday” social situations – would help.

While in theory parents of disabled children have a right to ask their employers for convenient hours and employers must seriously consider this as an option, there is a gap with reality, according to dads who took part in today’s survey.

Netbuddy has also recently launched a new forum for dads.

James’ story
James is a father to eight-year-old twins Thomas and Alice, who both have dystonic quadriplegic cerebral palsy, and to baby India. A PR consultant, he leaves the house at 6am and returns at 8pm, when his carer role kicks in. “Holding down a demanding job and being a carer can be a stretch at times,” he says. “I’m lucky enough to have a very understanding team of colleagues, but I do worry for dads who get held back in their careers because their employers feel they already have enough on their plate. People are sometimes denied opportunities to move up the ladder.”

James says most people assume that because he works, his wife does all the caring. The dual demands of work and the additional needs of his children means there is precious little time is left James and his wife to be together as a couple. “We have very little time to be together on our own and the pressures of caring for our twins and sleeplessness do take their toll. However, it has had a positive effect too – in building a strong bond through the difficult times we face.”

James would like to see more support for dads in terms of out of working day appointments and extra support services. “All support is during the working day so it’s not accessible for working dads. Asking for support as a father can be seen to be a weakness and a sign that we are not coping. There isn’t enough support or help available to us – and this is essential so that we can provide the best possible care when looking after our loved ones.”

How I fell back in love with learning

The recent Mental Health Awareness Week made me reflect on my experience of mental health problems and how studying is helping me – hopefully – recover.

Recovery from a mental health problem is rarely easy and, in my opinion, highly subjective. Medication may form part of a person’s recovery but those little green and white capsules aren’t the magic “happy pills” you may have envisaged and sometimes the first step is simply trying to access the right help and support to manage your symptoms.

While I’m dubious as to whether I’ll ever fully recover in the medical sense – complete absence of symptoms – by understanding myself and my condition better and am slowly learning what may help alleviate the impact depression and anxiety has on my life.

Last year I began studying with the Open University (OU), a short science course on particle physics which did not require me to leave the house or interact with anybody face to face; my idea of heaven. One of my issues is severe anxiety triggered by social situations, when I’m at my worst I am unable to leave the house for fear of seeing another human being and becoming paranoid, agitated and having to run away.

I’m 23 now and left school with five GCSEs at the age of 16, since then I’ve been in and out of college and university, believing if I was strong enough I could “get over” my mental health problems and fit in with my peers. Unfortunately being in a classroom inevitably triggered my anxiety due in part to bullying in high school which I’ve struggled to recover from.

I was always reluctant to study with the Open University despite encouragement from my mum, a fellow OU student. Part of me felt I was somehow “giving up” by not facing my issues head on and forcing myself to be around people in an educational setting. But, fed up of being a drop-out and realising I’d always preferred the autodidact way of learning I signed up and haven’t looked back since. Studying with the OU allows me to continue my education despite my problems and has helped me fall back in love with learning again, something I doubted would ever happen and believing the opportunity to gain a degree and have a career was something other people had, not some anxious wreck terrified of the world.

Following the completion of some short science courses to ease me back in to studying again I’m now aiming for a degree in physics. It’s not always being easy, concentrating on differential equations for hours on end when you’re depressed and crying your eyes out can be horrific but the university has services on offer for students with disabilities which include the Disabled Students Allowance (to pay for any additional costs relating to your disability), flexibility with assignment deadlines and individual support during examinations. I have asked for extensions for a couple of assignments due to struggling to motivate myself because of my depression.

The study is also part-time which makes things less stressful and means I can study alongside receiving treatment for my mental health. The number of hours I study a day or week varies quite a bit, but on average, around two hours a day are dedicated purely to study. I’ve found when my assignments are due I become a bit obsessive with the studying and can spend days or nights on end studying.

Some people find distance learning isolating and admittedly, sometimes it’d be great to sit down and have a chat with fellow students; there are plenty of opportunities to chat online via the forums, Facebook and Twitter, which suits me.

I have used the forums available on the OU website which is part of it “virtual campus”. I have also used one set up by students on Facebook where I just chatted about the course rather than anything mental health related; it helped remind me I wasn’t on my own.

For some courses there are face-to-face or online tutorials every few months where you get to communicate with your tutor, who is always available by email and telephone. I’ve been too anxious to go to face-to-face tutorials which is why I’m so glad online ones were provided.

Studying as a way of managing a mental health problem may not be for everyone but it has managed to keep me focused and helped me realise my life doesn’t have to be defined by being unwell and a mental health service user. Recovery may be long and arduous but I’m convinced studying – and I hope to finish the degree in another four years – will be an integral part of keeping me mentally healthy.

* Carrie is involved in the charity Young Minds’ VIK (Very Important Kids) project which campaigns on youth mental health. You can follow Carrie and Vik on Twitter @vikproject

Youth film reveals the hidden gems of black theatre

The term black theatre might conjure up images of a niche and very 20th century concept, but from Ira Aldridge playing Othello in Covent Garden in the 1830s to the 1990 production of Amani Napthali’s Ragamuffin and to grime star Bashy in a rap opera a couple of years ago, the genre is historical and diverse – if lesser known than its mainstream counterpart.

A youth-led film being premiered at London’s Royal Court theatre today, Margins to Mainstream, seeks to demystify and tell the story of black theatre in Britain. Made by young people in west London and Birmingham, in a partnership between London’s Octavia Foundation and Nu Century Arts in Birmingham, with funding from the Heritage Lottery Fund, its visual treasures include forgotten plays and landmark performances.

Those who appear in the film include playwright and broadcaster Kwame Kwei-Armah and Pat Cumper, director of the Talawa Arts Centre. The film was shot at locations including Theatre Royal East, London Southbank Centre, Royal Court Theatre, Old Vic and The Tabernacle.

The cross-city project allowed young people in London and Birmingham to learn and develop skills in media, research and film-making and is the latest in a series of innovative community filmmaking initiatives from the charity.

Zakiya, 18, a sixth form student studying photography, media and sociology and a tenant of Octavia Housing, adds that working on the project has inspired her to see more theatre and be more creative: “I didn’t really know anything about black theatre before, or theatre in general but it was really great and we saw some good productions…this project has helped build my experience in the field – I’m studying media, sociology and photography and want to be a photographer when I’m older. Seeing the finished film and knowing I’ve been a part of it is incredible.”

After the premiere in London the film will be screened at venues throughout London, Birmingham and the rest of the country and made available to theatres, arts and community groups and other interested groups later on this year. You can find out more about the screenings here.

Netbuddy: the special needs Mumsnet

Netbuddy's Emma Sterland and her brother, Ben (pic: Netbuddy)
When Emma Sterland’s older brother Ben, who has Down’s syndrome, was three, their mother saw another child with Down’s walking past their Surrey house. Back then, in the late 1950s, learning disabled people were hidden away in institutional care, and it was the first time June had seen another child like Ben; she ran into the street to shouting: “I’ve got a son like that!”

In the absence of today’s official support networks, a lasting friendship began between the two mothers.

June could have done with Netbuddy, the self-styled “special needs Mumsnet” managed by her daughter, Emma. Just 18 months old, it crowdsources tips, attracting 6,000 new visitors a month and reaching 4,000 people a month via Facebook. Continue reading the rest of my piece on the Guardian’s social care network.

Netbuddy founder Deborah Gundle and son, Zach (pic: Netbuddy)

The truth about rough sleeping

The Truth About Stanley trailer from www.thetruthaboutstanley.com on Vimeo.

Think homelessness and film and you can’t fail but think of Cathy Come Home. While the social action that followed Ken Loach’s cinematic call to arms was a one-off, the film project The Truth About Stanley could be a modern take on that artistic tradition; a visually striking and thought-provoking piece of social realism that seeks to raise not only awareness about homelessness, but funding.

Just today the government’s new homelessness figures showed 48,510 households were classed as homeless in 2011, a 14% rise on 2010. The situation has led one charity chief executive, Leslie Morphy, of Crisis, to demand action from the government amid the “perfect storm” – a combination of economic downturn, joblessness, soaring demand for affordable housing, housing benefit reform and cuts to homelessness services.

This is the dire social and economic backdrop to the forthcoming film shot by award-winning director Lucy Tcherniak. The Truth About Stanley tells the story of two rough sleepers who make unlikely friends; Stanley, an elderly Congelese man, and Sam, 10.

Still from The Truth About Stanley
Stanley (Oliver Litondo) in The Truth About Stanley

The non-linear narrative is intriguing, opening as it does with the death of Stanley and developing into questions about Stanley’s past and the reasons for Sam being on the streets.

Sam (Raif Clarke), The Truth About Stanley
Sam, The Truth About Stanley

The lines between reality and fiction are blurred as the pair’s friendship develops and Stanley regales his young runaway companion with stories from his past. Or, as the website neatly puts it: “No home, no belongings, plenty of baggage. A short film about a man, his stories and the boy who listened.”

The project, a twist on more traditional donation campaigns, aims to raise money for two homelessness organisations, social enterprise The Big Issue Foundation and charity Anchor House.

The film offers a much-needed focus on the twin issues of older and younger rough sleepers. Entrenched rough sleeping is common among older rough sleepers but accurate figures on the issue and that of homelessness among older people are hard to come by, partly because of the hidden homelessness and the lack of age breakdown in head counts.

According to Homeless Link, however, the 2010 total of street counts in authorities with a known or suspected rough sleeping problem was 440 and generally around 18% are over 50-years-old.

As for children sleeping rough, again the figures lack accuracy, but according to the charity Railway Children, at least 100,000 children runaway in the UK every year and many are not reported as missing by their parents or carers. According to youth homelessness charity Centrepoint, 80,000 young people experience homeless in the UK each year.

The 20-minute film is being produced in association with Oscar-winning Trademark Films and features songs by Radiohead and Mumford and Sons. Stanley is played by renowened Kenyan actor Oliver Litondo, the lead from the international feature film The First Grader and Sam by 12-year-old Raif Clarke. This Guardian piece from last year tells you a bit more.

The trailer and shots here (photographs by Ben Millar Cole) have been released ahead of the premiere on April 2 at the Rich Mix cinema in Shoreditch. The film will be and released online on April 4th.

*To donate text STANLEY2, 3 or 6 to 70300 to give £2, £3 OR £6 to The Truth About Stanley fund or visit the project’s
Just Giving page.
100% of the donation will go to homeless charities Anchor House and The Big Issue Foundation. Follow the film on Twitter.