All posts by Saba Salman

Saba Salman is a social affairs journalist and commissioning editor who writes regularly for The Guardian. Saba is a trustee of the charity Sibs, which supports siblings of disabled children and adults, and an RSA fellow. She is a former Evening Standard local government and social affairs correspondent.

Haunting, detailed and complex: winning work by autistic young artists

I recently blogged about Create! Art for Autism, a national art competition run by Beechwood College, a specialist residential college in Wales. The aim of the project was to show that art can not only encourage learning and instill lifelong skills but boost quality of life and future prospects.

The awards ceremony took place at the weekend – more than 350 entries were received from 52 different schools from all over the UK, and as far away as India and Croatia – and a couple of the very worthy winners are here:

Angel, by Sam Fitzgerlad, Create! Art for Autism winner (pic credit: Huw Evans Agency)

The Digital Category was won by Sam Fitzgerald, above. Angel, the work by the 18-year-old from St Cenydd School in Caerphilly, was praised by judges as having a haunting and metaphysical quality.

Esther Whitney, Aged 24 from Birmingham City University won the 3D Category prize for her sculpture, A Thimble Full. Esther’s work was inspired by her difficulties with social interaction, with the thimbles representing that a thimble full of relationships can be enough for young people with an autistic spectrum disorder. The award was presented by Lucinda Bredin, Editor at Bonhams Magazine and member of the judging panel, who complimented Esther and the other finalists on the “detail, depth and complexity of their work.”

A Thimble Full by Esther Whitney, winner, Create Art for Autism

The prize for the Teacher’s Choice Award was presented by Darren Jackson, Principal of Beechwood College to Alexander Fox-Robinson, aged 15 from Pembroke School, Pembroke for his pencil drawing, The Blitz, which featured in my previous blogpost on the competition.

The Blitz, by Alex Fox-Robinson

The finalists’ work is on display at The Old Library, Cardiff until Sunday August 7 and will move to London early in the autumn. For more information contact Create! Art for Autism. The amazing amount of entries to the competition shows the vital nature of platforms to showcase the talent of young people like Sam and Esther and the organisers say that next year’s competition will include even more categories.

Why beans are more efficient than potatoes, and other eco-wonders

Some of us count the calories when it comes to food, but how many of us count the kilowatts too? Watch the quirky video above – there’s animation and a jolly opening piano melody too – and check out how Brighton-based Rob Smith, a resident of housing association Affinity Sutton, has developed a carbon calculator for the home.

For seven years, Smith has used an online programme to work out the carbon footprint of everything he uses in the home, so that he can find ways to keep reducing it. Beans on toast, he says, comes in at an energy efficient 95w to prepare, while oven-baked fish and chips come in at 200w. Watch Rob work out why the Champions League takes up less energy than the Europa, and how he’s developing his own, open-source programme, which anyone can use to help them make informed decisions about their carbon lifestyle.

Smith’s story will grace the big screen tomorrow evening at a special screening at the Shortwave Cinema, Bermondsey Square, London. He is among five finalists in a national competition run by Affinity Sutton to encourage residents to share their experiences of how they make a positive contribution to the environment.

The five finalists worked with a specialist social enterprise company to create the films which are being put to the public vote on Twitter and via the Affinity Sutton website. The winner will receive an all expenses paid trip to The Eden Project.

Smith adds: “Over the last few years I have been measuring my energy use and then trying to reduce it. But I found that the calculators online were mostly based on estimates. I wanted to develop one to measure absolutely everything you buy, eat and use. I think a lot of people will find it interesting because it provides a more accurate way of measuring your carbon footprint.”

Other green residents include Jeannie and Eddie, from East Grinstead. After approching their housing officer to see if they could plant some bulbs in some disused space, they launched the Salad Project. Over the last year the residents have planted potatoes, runner beans, French beans, and some herbs. An old dustbin was turned into a water butt by a resident, and there is now a composter for food waste.

Power-saving Phil, from Manchester

Then there’s Phil, from Manchester, who uses a “smart plug” to monitor how much energy appliances are using and Tony, Steph and Brian, from Middlesbrough, who launched a recycling facility on their estate. Christine, Ian and Tom, from Stoke, meanwhile, turned a derelict piece of land into a community garden with wildlife area and community classroom facility.

The new recycling station on a Middlesbrough estate

You can still vote for the green superhero here.

The artists redrawing our perceptions of disability

Bengali Welcome, by David Constantine

Photographer David Constantine – he’s the creator of the arresting and uplifting image above, Bengali Welcome, above – has a theory as to why his subjects relax once they’re in front of his lens; his wheelchair breaks the ice.

Constantine’s work is being shown as part of the inaugural Bloomsbury Art Fair that opens today at the Goodenough College, Mecklenburgh Square, London. As well as works by popular artists Banksy and Damien Hirst, there are pieces for sale by new and emerging artists. The three-day charitiable event raises money for spinal injury-related charities.

Constantine, for example, began taking pictures as a teenager and sold his bike to buy his first camera. While on a working holiday in Australia in 1982 he broke his neck in a diving accident and became quadriplegic. Paralysed from the shoulders down, he gave up photography for a year. But while he wasn’t able to pick up his camera, he continued to “see” images. As he writes on his website: “During that year I realised that I was still ‘seeing’ pictures, choosing images in my head even to the point of deciding on film types and composition I would use for a particular shot. The only thing I lacked was the physical ability to use a camera. I realised that this was a ridiculous reason for giving up and all it need take was some adaptations to my camera and wheelchair to enable me to take pictures.”

Exactly a year to the day of his injury he began the process of taking pictures again. He travels with his work for Motivation, the international disability charity he co-founded, and his main subjects are people in their own environments. As he says, “the disadvantages I foresaw with my photography after becoming a wheelchair user have turned into advantages.” He has developed different skills and enhanced others: “I am so conspicuous that it has made me bolder, I am happy to go and ask someone for their picture. If I can’t communicate verbally I make it very obvious that I would like to take their picture, people make it quite clear whether they are happy for me to photograph them or not.”

Love, by Sophie Morgan

Among the participating artists is Sophie Morgan, who was runner up to Britain’s Missing Top Models. Morgan had a car accident in 2003 that left her paralysed and in a wheelchair for life. Her beautiful piece, Love, is above.

Morgan’s website declares that she is (in this order) an “Artist, Portraitist, Writer, Arts Psychoth

What’s the role of the press in explaining social care?

If a week’s a long time in politics, it’s enough to induce amnesia in the fourth estate. The changing headlines over the last week – they began with the Dilnot Commission, moved onto phone hacking and returned to social care with the break up of Southern Cross care homes – prove that today’s news really is tomorrow’s fish and chip paper. Find the rest of my post over on the Voluntary Organisations Disability Group (VODG) blog.

How the housing safety net is shrinking further

As councils tighten eligibility criteria for housing at the same time as benefit cuts hit, charities warn of an increase in homelessness. With the trend growing for councils to overhaul their allocation policies, there are fresh concerns about people being forced into the unaffordable private rented sector or pushed out into cheaper suburbs. Read my Guardian piece here.

Art competition gives voice to youngsters struggling to be heard

Painting, by Jake Rose

Bold, intricate, colourful and thought-provoking – some of the artworks here wouldn’t look out of place in a city art gallery, but in fact these pieces are among the powerful creations produced by young people with autism and related conditions.

Earlier this month, to mark World Autism Awareness Day, a specialist residential college in Wales launched a national art competition (the works here are from the shortlisted finalists), Create! Art for Autism, open to those aged 11 to 25 who are formally diagnosed with an autistic spectrum disorder (ASD). The aim of Beechwood College is to show that art can not only encourage learning and instill lifelong skills but boost quality of life and future prospects.

The college cares for students aged 16 and over with ASD and teaches students to articulate themselves through creative programmes including music, 2D art, 3D art, digital media and horticulture. As Beechwood principal Darren Jackson says, “art and creativity programmes can transform the lives of young people who previously struggled to make themselves heard”.

Drawing by Alex Fox-Robinson

There were more than 350 entries from 52 different schools from all over the UK with entries also sent from as far afield as India and Croatia. The judges have chosen six finalists in each category of 2D art, 3D art and digital media art, who will attend an awards ceremony at Beechwood College on July 24th. To support and recognise the work that schools undertake, both the winners and their schools will receive prizes and there is also a “teacher’s choice” allowing teachers to choose the winners.

Ceramic work by Nicola O'Leary

The judging panel includes Brendan Stuart Burns, artist lecturer at The University of Glamorgan, Lucinda Bredin, editor at Bonhams Magazine, Hugh Morgan, chief executive of Autism Cymru and Beechwood principal Darren Jackson.

Painting by Evan Findlay

The finalists’ work will be rolled out into a national art tour open to the public, first at The Old Library in Cardiff and then in London in September. Finalists and other artwork can be viewed here.

Dilnot: reaction round up

Today the Dilnot commission on social care published its conclusions in its Fairer Care Funding report. Among its findings are that care costs should be capped and the means-tested threshold increased under major changes to the funding of adult social care in England.

The report is a chance to finally fix a shattered system, there will be widespready reaction and analysis later today and beyond to what Dilnot himself calls a once-in-a-lifetime chance to overhaul social care but for now, here’s a selection of today’s responses which I’ll try and update throughout the day.

Sue Brown, Head of Public Policy at the national deafblind charity Sense: “Sense welcomes the Dilnot report, and in particular the key finding that additional public funding for adult social care is urgently required. But we are concerned that the media focus is only on older people which obscures some critical aspects. We believe the report clearly shows that not only can the Government afford to support disabled people of all ages, but crucially as a society we can’t afford not to. It is now up to the Government to fund adult social care so that it gives disabled people of all ages quality of life. For deafblind people social care means communication and mobility support, not just personal care.”

Julia Unwin, the Chief Executive of JRF and the Joseph Rowntree Housing Trust (a non-for-profit provider of housing and care services): “Today marks the most concrete and credible step for years. I believe that the proposed reforms have the potential to bring about a radical step-change in how we value social care, how we think about disability, and how we all – as individuals and as a society – plan and prepare for longer lives.
It is positive to hear commitments from all the main parties to set aside party differences and consider the Dilnot report with the consideration it clearly warrants.
The JRF now urges the Coalition Government to abide by its promises to deliver a White Paper in the next six to nine months. It would be a tragedy for this, one of the most pressing and defining issues of our age, to be kicked, yet again, into the long grass.”

Jeremy Hughes, Chief Executive, Alzheimer’s Society: “Today’s welcome report could bring to an end the scandal of the colossal Dementia Tax where every year tens of thousands of families are left to pay all their care costs whilst other diseases are paid for by the NHS. The government mustn’t miss this opportunity to right a wrong that is destroying lives. In a new system we must end the postcode lottery that gives different support depending on local authority. The Dilnot Commission has given the coalition government the opportunity to show that it is a caring government. Pending implementation they must also show they care, protecting social care spending in the way they are doing for health.”

TUC General Secretary Brendan Barber: “The TUC welcomes the increase in funding for the care of the elderly over the next few years, and the news that social care will be free for those who become disabled before the age of 40.
“The introduction of a national eligibility assessment should avoid a ‘postcode lottery’ and make it possible for those receiving social care to move around the country without losing their care provision.
“The TUC believes that social care should be provided free for those who need it, and funded from general taxation. The Dilnot Commission’s proposals could, however, be transformed into this NHS model by continually reducing the level of the cap on care costs. The government must not set too high a cap – a level above £50,000 per person would mean that families could still face losing their homes to pay for the vital care they need.”

Gordon Morris, managing director of Age UK Enterprises: “The Dilnot commission report delivers a clear call to action to the financial services industry to work with government to develop the innovative products needed to fund long-term care. Existing products, such as equity release and annuities, could present a solution, but far more has to be done to build flexibility into these products to increase access and ensure these products evolve to meet changing financial needs.”

Stephen Burke, founder of social enterprise United for All Ages: “Under the commission’s regressive proposals, the winners would be richer families whose inheritance will be relatively protected, while most families will face a more confusing and potentially costly care system. The proposed cap on care costs will still result in some older people being forced to sell their homes to pay for care and related costs.
“The proposals aim to reform the current inadequate system for funding care. But they would lead to a more complex, fragmented and confusing care system … This could be seen as a care ‘poll tax’ for the so-called squeezed middle.”

An interesting reaction from by social workerSarah Smith“: “It is local authorities that take the hit from policies devised by central government, and we can only hope that all parties are brave enough to act together for the country’s interests rather than consider of their own chances at the ballot box. We deserve much better than that.”

Labour leader Ed Miliband: “The last thing Britain needs is for Andrew Dilnot’s proposals to be put into the long grass. We three party leaders are of similar age and the same ­generation. This is a once-in-a-generation opportunity which our generation must address.”

Which? executive director Richard Lloyd: “Consumers tell us that long-term care is their top health care priority* so we welcome these recommendations and urge the Government to act sooner rather than later. If private insurance is to play a part in funding long-term care, then we need to learn lessons from the past, where products have either failed to meet people’s needs or have been mis-sold. This will be a new market with a clean slate so it’s important that strong consumer protection is in place from the start.”

Michelle Mitchell, charity director at Age UK, tells the Guardian that the report set out “a clear blueprint” for sustainable reform. Production of a white paper by next spring was ambitious but achievable, Mitchell said. But she warned: “Delay beyond Easter would be indefensible.”

Mark Goldring, chief executive of learning disability charity Mencap, said: “Now is the time for monumental change and it is vital that the government does not bury social care reform.”

John Adams, Voluntary Organisations Disability Group (VODG) general secretary: “Today is about more simply demanding more money – vital though additional funding is – it is about urgent reform of a broken system. The Dilnot commission has taken great pains to build cross-party consensus; ministers now need to match the warm rhetoric with which they greeted today’s report with swift action. The government must find the courage to put its money where its mouth is, succeed where previous administrations have failed and exploit what Dilnot himself describes as a “once-in-a-lifetime opportunity” to create a fair and sustainable system of social care.”

Senior Fellow at The King’s Fund, Richard Humphries: “The budget deficit should not be used as a reason for inaction. This is a long-term issue and questions of affordability go beyond the current economic situation. The additional public expenditure needed to fund these proposals is less than 0.25 per cent of gross domestic product – this should not be too high a price to pay for providing a care system fit for the 21st century….Where they have failed in the past, politicians from all parties must now seize the best opportunity in a generation to ensure that people can access the care and support they deserve in later life.”

Su Sayer, learning disability charity United Response’s chief executive: “The report’s recommendations are the first step towards creating a better system which ensures that people in need of care receive it, funded in a way that is not only fair, but seen to be fair….Whether viewing this economically or morally, we cannot afford to ignore these recommendations, which is why we urge all political parties to work together towards a better social care system for all.”

Guy Parckar, acting director of policy, campaigns and communications at Leonard Cheshire Disability: “The system as it stands is creaking at the seams, with more and more people missing out on the care that they need. This report must be seen as a clear call for action. All of the political parties must come together with one agenda and that is to agree a fairer settlement for social care. We cannot go on with disabled and older people missing out on care because of a system that simply cannot cope with the demands placed upon it…Too often disabled people with significant social care needs can be charged into poverty by our social care system. People are unable to work, unable to save, unable to buy a home as any income or assets will simply be taken to cover the costs of care. This is a critically important recommendation that could make an immense difference, and it is absolutely imperative that the Government acts on it.”

Domini Gunn, Chartered Institute of Housing (CIH) Director of Public Health and Vulnerable Communities: “In reforming the funding of social care, we urge the government to follow Dilnot’s recommendation to review the scope for improving the integration of adult social care with wider care and support system. This must include housing, and housing support, providers and could help drive a more preventative approach, incentivised through funding arrangements.”

Sir Stuart Etherington, Chief Executive of NCVO: “This review makes major strides towards identifying how we can achieve an affordable, sustainable and fair funding system for all adults in the UK. The challenge now falls to all parties to resist turning the review into a political football and to prioritise responding swiftly and decisively. It is the most vulnerable who will suffer if we cannot seize this golden opportunity to improve the funding of adult social care.”

The big society bypass


Above, Ian Harvey, from heroin and rough sleeping to charity volunteer, gardening enthusiast and Chelsea Flower Show winner.

The big society concept might be a touch nebulous – as its creator Philip Blond effectively admitted this week – but one transparent element is the fact that volunteers are its backbone.

The drive is a potentially all-inclusive one as the big society dream is of a volunteering renaissance that unites the young (nothing else paid on offer), the more mature (nothing else to do in well-heeled retirement) and the professional (nothing as good as a bit of CSR in the city to justify that fat salary and boost the CV).

But any official messages about big society bypass a huge swath of society; the homeless.

The vulnerable are excluded from the big society agenda and a potential volunteering resource remains untapped, as new research published this week by homelessness charity St Mungo’s argues. The organisation suggests that volunteering can help the homeless move from social exclusion to being active in their community.

Its figures show that only 14% of around 200 St Mungo’s clients and staff surveyed (84 of the 200 were clients) think homeless people are included in society. The report from St Mungo’s, Enough Room: is society big enough for homeless people?, has been released to coincide with the charity’s action week to raise awareness about the social exclusion of the homeless. According to the latest figures, 3,975 people were seen rough sleeping in 2010/11 on the streets of London – a rise of eight per cent from the previous year.

The charity says there’s a real wish among those it supports to give something back. Of the homeless clients surveyed, 70% wanted to volunteer to “give something back to their local community” or to “help other people.”

Investing time in supporting vulnerable people to volunteer can bring long-term benefits – stability, greater self-esteem and social integration and the chance to develop new skills.

I recently came across the Crown Centre in the deprived area of Stonehouse, Plymouth, for example. The centre supports vulnerable people through projects such as the Plymouth Foodbank, ensuring those in crisis do not go hungry. Every week, the centre relies on its 47 regular volunteers to run coffee and lunch clubs supporting 120 service users. Half the volunteers have health or dependency issues and are “supported volunteers”, needing more guidance and supervision than their peers donating time for free.

Back in London, St Mungo’s client turned volunteer Ian Harvey (scroll up to the video above), is the kind of volunteer we could have more of. Ian, a former rough sleeper and ex-heroin addict, has been supported by St Mungo’s to work with the charity’s community gardening scheme, Putting Down Roots. Ian has tuned his life around with specialist support and from involvement in the volunteering scheme; not so long ago he was self-harming and sleeping on the streets, now he’s the proud owner of a silver award from the Chelsea Flower Show and is looking forward to winning gold next time.

Roger is another St Mungo volunteer, a former drug-user who slept rough, he volunteers for the charity’s employment team and encourages clients to improve their basic computer literacy skills. He explains: “I realised that the key to me moving on with my life was training and qualifying. It also became very clear that I would get nowhere without knowing my way around a computer …Since November last year, I have been volunteering for St Mungos’ employment team and have been helping more clients get online with weekly drop in sessions and support with basic computing courses.”

Lorette, a volunteer peer advisor with St Mungo’s resettlement service, explains the strength of the ex-homeless supporting those who still need support: “I think the client feels they can relate to you more if you have been through what they have. You can swap stories and experiences, which I think enables them to open up to you more…Volunteering is great for your self esteem and confidence, especially if you have been out of work for a long time, there’s new skills to learn, great people to meet and a great feeling of self worth that you really are helping people and doing something really worthwhile.”

Yet so far the big society drive has largely failed to include or capture the attention of the vulnerable. As the St Mungo’s research demonstrates, the neediest in society neither feel part of the campaign nor understand what it stands for (although frankly they’re not alone in that latter complaint). A big society, but one that’s currently too small for the vulnerable.

“I feel privileged to be different; I wouldn’t want to be the same as everyone else.”


Above, a film about the making of a play about Down’s Syndrome at a Camphill Village Trust community, The Grange in Gloucestershire.

Today’s the start of Learning Disability Week. What’s it like living with a learning disability? A few years ago, my sister, who has Fragile X syndrome, spotted the teenager next door embark on her first driving lesson. “I’ll never do that,” she quietly remarked. Quick as a flash, my mother replied: “You might not, but there’s plenty of other things you do brilliantly.”

Another time she asked why she had Fragile X syndrome. A plain, simple question and one that the rest of us asked for some time after her diagnosis (the answer: the genetic lottery). That was a tricky moment – it wasn’t that she required a literal explanation of the genetic make up that set her apart, but she was struggling to make sense of why there were certain things she found difficult to do and certain situations she felt uneasy in.

Unable to avoid some cliches, we explained that everyone’s different – wouldn’t the world be a boring place if we were all the same? – and talked about her amazing achievements which regularly leave us awe-struck, biodynamic farming among them.

If you’ve no experience of learning disability, you might assume that people like my sister potter along aimiably, existing in a smiley, hand-flapping, blissful state of ignorance, unable to articulate or appreciate the extent of their special needs.

The illuminating and moving film, above, about the making of a play about Down’s Syndrome at a Camphill Village Trust community, The Grange in Gloucestershire, lets the actors speak for themselves:

“I can’t be like Robin or Claire; I’m different.”

“It feels weird being with Down’s Syndrome.”

“To be honest, I feel quite privileged to be different; I wouldn’t want to be the same as everyone else really.”

The playwright, whose brother has a learning disability, recalls the days when those with learning disabilities were ushered away from mainstream society: “I was seven and he was nine when we were separated…my brother was tucked away in a sheltered workshop.. he would be a footnote..something to be forgotten.”

While grim institutional care is no longer the only option for people with learning disabilities, the horrific goings-on at the Winterbourne View care home and new Mencap research on disability hate crime are just two reminders of the massive problems that remain.

For me and my family, the awareness week that starts today means not only appreciating the scale of the challenge when it comes to creating a fairer society for the learning disabled – and demanding action – but celebrating the achievements of those we feel proud to call “different”.