All posts by Saba Salman

Saba Salman is a social affairs journalist and commissioning editor who writes regularly for The Guardian. Saba is a trustee of the charity Sibs, which supports siblings of disabled children and adults, and an RSA fellow. She is a former Evening Standard local government and social affairs correspondent.

“Sometimes I get cross with my parents because we don’t have a normal life.”


Above, young carers talk about their role in a Carers Week film.

Next time you feel fed up with doing the household chores, think about Ryan. At 13, he cooks, cleans, does the laundry and helps both his disabled parents get around the house. His father has Crohn’s disease and his mother is disabled.

Aside from the physical requirements of his role as a young carer, Ryan shoulders a huge amount of emotional stress; life is unpredictable because his parents’ health varies from day to day. Getting ready for school in the morning, for example, is hard because he worries about leaving his parents alone and fears his dad will be in hospital when he gets home. The teenager gets frequent headaches, stomach aches and suffers from irritable bowel syndrome, all of which his GP says is stress-related. It is easy to see how being a young carer can adversely affect education, health and wellbeing and lead to isolation and anxiety.

Ryan, who is lucky enough to be supported by a young carers project run by the charity Action for Children, is one of an estimated 700,000 children and young people who have caring responsibilities. Young carers represent over 10% of the UK’s 6m carers, the group of people highlighted in Carers Week this week.

Action for Children is using Carers Week to demand that the government and councils do not ignore the plight of young carers. The charity has released new figures today which show that, in a survey of 23 Action for Children young carers projects, services supporting 1,192 young carers have had their budgets cut by up to 30%. A further 192 young carers are supported by services that have suffered budget cuts of 40% or more.

As Ryan says, he would be lost without support from his young carers project. “I really rely on that time with my support worker to express my worries. It’s amazing to share my experiences with other young carers who understand what it is like to be me. I love my parents but sometimes I get cross with them because we don’t have a normal life and I can’t do the same things as my friends. I used to feel guilty and bad about those feelings but after talking to other young carers I know that we all have feelings like that sometimes and its okay. The young carers project arranges all sorts of activities for us to help us relax and enjoy our time off from looking after our parents. It’s like having a little holiday away from all the worry.”

Budget cuts to support services for young carers save money now but run the risk of undermining young carers’ futures. As Hugh Thornbery, director of children’s services at Action for Children, says, there is already a huge danger that those who need care start relying on children and young people to support them even more as statutory service provision is decimated. This situation, as the charity stresses, effectively means young carers – many of whom spend up to 50 hours a week looking after a relative – bear the brunt of the country’s deficit and might end up paying for it with their futures.

* To find out more the impact of caring resonsibilities on the young, try also checking out the very good Victoria Cares site, a week-long campaign by children’s charity Spurgeons revealing a week in the life of young carer Victoria.

Terrors on two wheels become social cyclists: the teens transforming their community

From antisocial behaviour to force for social good; Buzz Bikes, Wales.
It’s as much a symbol of antisocial behaviour as hoodies drinking alcopops at bus stops; on the corner of most streets in the middle of most neighbourhoods in the UK, you’ll usually find a gang of beanie-hatted teens, posturing on their bikes before racing up the pavement and causing the locals no end of distress.

But in the small community of Blaina, in Blaenau, Gwent, a deprived area where alcohol and drug addiction is common and where young people have little else to do but get into trouble, a group of teenagers on bikes have proved the exception to this stereotype. They boys have turned their cycling from an activity that caused local havoc into a force for social good.

The seven young people had faced problems at school, some had had run-ins with the police and all of them hung around the town centre on their bikes. The boys, recognising their problems stemmed partly from boredom and a lack of local facilities, heard about the Prince’s Trust and applied for money from the organisation’s community cash awards scheme. With match funding from the Welsh Assembly Government, Buzz Bikes was born in October 2008.

The outdoor cycling club offers a diversion with bicycle maintenance training, health and safety training and organised cycle rides. The group has designed its own logo, now emblazoned on hoodies and T-shirts, and the youngsters runs a small shop in town hiring and repairing bicycles; if the local police knock on their doors now, it is to hire a Buzz Bike (the boys have loaned bikes to local officers).

Around 50 young people now belong to Buzz Bikes while the core founding members have learned skills including negotiating, budgeting and working in a team. None of the original members has been in trouble since starting the scheme.

The founding members now want to give something back to the charity that’s supported them so in October this year, they plan to do the Prince’s Trust Adventure Challenge to the Himalayas. All team members have to raise £3,700 each for The Prince’s Trust in order to take part in the challenge – hiking, biking and white-water rafting 286 kilometres in seven days. The money raised will go back to The Prince’s Trust to help more young people.

The Buzz Bikes team

I heard about the project earlier this year when it won the Prince’s Trust Community Impact Award, sponsored by Balfour Beatty, to recognise the positive contribution of young people to the community. I was reminded about it while watching a recent BBC story about the Bike Works project in America to teach children who might otherwise be on the streets how to build and maintain bikes. The project has been a runaway success but, with public services scarce, it is a victim of that success – increasingly finding itself providing emergency care by offering children food, or a place to sleep, rather than concentrating on its central aim.

As Bike Works’ director, Kitty Heite told the BBC: “So many kids are falling through the gaps, and it’s the responsibility of society to help them..We aren’t social services, and we could do so much more with Bike Works, with the fun thing, if we weren’t having to do that. Making the voluntary sector responsible for the glue in people’s lives is a little scary.”

Heite’s words stress an emerging theme in the current cuts climate; that an over-reliance on community-based enterprises might backfire and distract organisations from their founding princples. I’m not suggesting that the Buzz Bikes teenagers are expected to (or could) provide a social safety net if local public services decline, but I do hope that their core aims – what the American Bike Works director calls “the fun thing”, the diversion caused by an interesting activity – will long continue.

* To support Buzz Bikes/the Prince’s Trust, visit the group’s Just Giving page.

No voice for the vulnerable

Can you imagine being so desperate for affordable legal advice that you go on an eight-hour, 300-mile bus trip just to get help? I came across such a case seven years ago; a Welsh man facing eviction from his council-owned cottage when the area was being redeveloped found that the only housing legal aid lawyer willing to take on his case was in West London. So desperate was the man to stay in the cottage he had been born in and so great was his fear of homelessness, he made the trip.

Although this tale is from 2004, it highlights the vital safety net legal aid (when the state pays all or part of the legal costs for those who cannot afford them) provides to society’s most vulnerable. The number of solicitors who carry out legal aid work have been falling in recent years (hence the Welsh man’s 300-mile journey) thanks to uncompetitive pay rates, hours of unpaid work and red tape. But now, under government plans to cut the legal aid budget by £350m, the situation could get worse for those wanting to access affordable legal help. It is estimated that around 500,000 people could lose out on legal advice amid the planned cuts as the government wants to remove clinical negligence, family law, education, non-asylum immigration and housing cases from legal aid’s scope.

Today is Justice for All day, with marches and petitions planned by a coalition of 3,000 charities campaigning against the cuts and you can also oppose the cuts at social action campaign site 38 Degrees.

The Law Society, which represents solicitors in England and Wales, has also launched Sound Off For Justice, a campaign for alternative reforms that it says will save more than the government’s own proposals and protect legal aid funding. The campaign encourages the public to demand the government reconsider its plans and look at the alternative measures which it says would save £384m in the next 12 months. You can record a voicemail for Justice Secretary Ken Clarke against the cuts here. The campaign is supported by, amongst others, housing charity Shelter, the Refugee Council, lone parent charity Gingerbread and housing association Eaves.

Here’s the campaign’s latest video:

There’s something rotten going on when an endless glut of super-injunctions protect the privacy, reputations and careers of the super-rich but a lone parent, for example, is denied basic access to his children because he simply can’t get the afford the advice.

“The kid who talked of burning down the place is now volunteering to paint it…”

Hutton Hall Community Centre - Community Asset Transfer
Hutton Hall community centre, photos by Podnosh

A year ago it would have been pointless painting a mural on the wall of Hutton Hall; it would have been covered in grafitti within a day. But after the building was transferred to community group Comm:pact by Birmingham city council in April, youngsters treat it – and its new exterior artwork – with pride. Read about how to make community asset transfer work in my Guardian piece today.

Silver Surfers’ Day

It’s Silver Surfers’ Day and even if you don’t like the name of the annual event (for something so future-focused, it sounds dated), who can argue with its aim of promoting digital technology among older people?

Take 79-year-old David Le Clair, for example, who’s learning new computer skills which he hopes will help him to write a book about his life. David is a resident of James Hill House, an extra-care scheme run by housing association Octavia Housing in west London, and has just joined his social landlord’s free IT training project for older people.

David Le Clair in the digital techology room of his extra-care housing scheme

According to Digital Unite, the provider of digital skills in the community behind today’s annual event, around nine million people, many of whom are aged over 50, “continue to be excluded from large parts of daily life because they have no access to a computer and are not online”. Silver Surfers’ Day is the culmination of a week of events to encourage computer skills in the community, aiming to introduce older people to technology at a local level through libraries, community centres, schools and sheltered housing schemes, with taster sessions, for example. This year’s Silver Surfers’ Day coincides with Digital Day, part of Adult Learners Week.

At James Hill House, the digital course David is on is being taught using extra large screens and keyboards and shows older people how to use the internet, webcams and how to create Word documents. Funding from the government’s former Get Digital programme means residents now have their own camcorder, colour printer, TV and Wii games console too. The digital room is always open but residents can also use a laptop if they want to use the technology in their own flats.

The aim, says Octavia Housing, is to enable older people not only to use these technologies to connect with their family and friends, but to pursue their own projects of interest. For David, a former policeman, it is a chance to use the internet to reconnect with his past including his time in Nigeria where he lived for over 50 years. He’s hoping this will help him write his life story.

Vlado Veljanoski, James Hill House scheme manager, says the benefits go beyond simply sending emails or looking up things online: “Our residents now help to put together quiz nights and have developed interests in creating their own websites; two of them would like to showcase their paintings on the internet, others have interests in flowers and plants.”

Veljanoski and the James Hill House residents know that getting online brings more than simply social benefits but new research published yesterday suggests that the practical advantages are not exploited by older people. Research by the Payments Council, the body that sets the UK’s payments strategy, showed that, despite increasing numbers of over-55s getting online, not many take advantage of online or telephone banking. In a survey of 4,500 adults across the UK earlier this month, says the Payments Council, only 32% of over 55s use either telephone or internet banking, and only 24% of over 65s, compared with 60% of 16-24 year olds, 71% of 25-34 year olds, 69% of 35-44 year olds and 57% of 45-54 year olds.

While technology allows isolated or vulnerable people to access online social networks – to complement face to face interaction, not replace it – digitial inclusion is equally important for an ageing popultion from a more practical perspective, encouraging new, time-saving ways to manage daily chores, accessing public services or locating information online. Given that public sector and gassroots organisations are key to spreading the digital message in communities, how long before the digital drive is adversely affected by the spending cuts impacting on other local services and campaigns?

Whether silver surfers are just dipping a toe into the digital waters like David in west London, or are on the same tech-savvy wavelength as their younger counterparts (sorry – the title of today’s campaign makes obvious puns irresistable), the reasons to get online are brilliantly put by an older IT-fan from a previous blogpost, “When you get to your 90s you feel you want to keep up with things.. it makes you feel you’re up with the world.”

Is Cameron’s ‘big society’ reserved for the rich?

A school-based performance of The Homophobia Project, by Peer Productions, a Surrey youth arts group supported by local philanthropy

Local philanthropy and volunteers have driven the ‘big society’ in Surrey for years. So is David Cameron’s flagship project only viable for affluent communities? England’s well-heeled home counties are the natural habitat of Cameron’s “big society”. The combination of a time- and cash-rich population and minuscule pockets of deprivation is more conducive to citizens becoming involved and running services than in more deprived areas. Click here to read the piece in Society Guardian today.

What no big society?

Amid the vibrations of doom and whiff of ennui surrounding anything stamped with the politicised big society seal, a new campaign tagged in plain terms as a grassroots effort to improve a neighbourhood is a bit of an attention-grabber.

Shockingly, no one’s claiming it’s part of some shiny new renaissance in volunteering that will allow the state to retreat on the sly, but a tried and tested idea, backed by an organisation that’s been doing similar, citizen-led work for years.

Quick – Dave’s on the line – he wants his big society back!

Today’s launch of Shoreditch Citizens – part of well-established community organisers programme London Citizens – follows an audit of 200 organisations in the east London area, plus 500 meetings to identify local issues that matter and train community leaders.

The Shoreditch arm is the latest chapter for London Citizens, an alliance of 160 groups representing faith institutions universities and schools, trade unions and community groups; the founding member is The East London Communities Organisation (Telco), the UK’s largest independent community alliance launched in 1996.

Shoreditch Citizens has high hopes in aiming to join forces to impact on poverty, poor housing and gang crime – around 75% of the area’s children live below the poverty line and four in 10 adults are unemployed. The campaign, funded by the Mayor’s Fund for London and £270,000 over three years from the community investment arm of Barclays Capital, also wants an alternative to the education maintenance allowance (EMA) to encourage young people to stay in education. There is also a plan to make Shoreditch a “Living Wage” zone, where everyone who works in the area can be sure to earn a decent amount to live on. The Living Wage campaign was first launched by London Citizens in 2001, which says it has won over £40 million of Living Wages, lifting over 6,500 families out of working poverty.

By December 2012, the Shoreditch engagement programme aims to train 300 community leaders from 30 civil institutions and hopes to impact on up to 15,000 families. All this is nothing if not ambitious, but if you don’t have goals…

Midlands movers shaking up the arts scene

A scence from Visitor, by Movers theatre company

It’s not unusual to view art as an escape from daily life. It’s more rare for the audience to be transformed from observer to participant and to feel so immersed in a theatrical event that they feel like the only world they inhabit is the one on the stage.

I’ve just come across what promises to be a uniquely interactive drama experience, Visitor, by the East Midlands-based theatre company Movers. The installation-style performance, designed with disabled children and their families in mind, takes place in a dream-like, enchanted forest with “hidden activities” for the audience to participate in, a multi-sensory environment and the intriguing promise of some “interactive pods”. Audience members sit in a clearing in the “magical forest world” for the performance and, if they feel like it, interact with the characters, technology, materials and colours.

For some reason, I’m imagining A Midsummer Night’s Dream minus the foliage-related trip hazards and The Bard’s English…but the performance promises much more than this.

An actor performs with Movers theatre company

Movers, a company of learning disabled actors, is part of the 15-year-old Speakeasy participatory arts company based on the Saffron Lane Estate in Leicester. Speakeasy works in schools and youth theatres to create an accessible environment, which can be safely and freely explored. The group has developed a non-verbal, movement-based style, which audience-goers report to be quite mesmerising.

Movers performed in front of an audience of 25,000 at the opening ceremony of the 2009 Special Olympics hosted in Leicester (check out the amazing costumes). Formed by Speakeasy in 2004, the theatre company’s aim is to create professional quality touring performances which are inspired and created by the learning disabled adults involved. The company, which includes 11 adults aged 19 to 60, creates at least one new performance a year, and its recent work has included commissions for the Leicester City NHS Primary Care Trust – Make my stay, about experiences of healthcare from a learning disabled point of view – and an educational play about personalisation and the changes to the benefit system.

Speakeasy, which costs about £30,000 a year to run, relies on commissioned projects to make its work possible and, through Movers, has worked with roughly 20 learning disabled artists since 2004.

Speakeasy artistic director Andy Reeves says of Visitor: “We’re trying to make a piece of theatre which, though it’s imagined, devised and performed by learning disabled artists, will be a great audience experience for everyone. Visitor gives the audience the chance to get closer to the action, interact with characters and technology in a dream-like, woodland setting. Our goal is for everyone- disabled, non-disabled, young, old- to come out with a smile on the outside and a warm feeling inside.”

Movers actor James Langley adds: “It’s not going to be your average performance,it’s going to be completely different to what you’ve seen before, because it’s going to be by Movers, who do things differently to everyone else.”

Langley’s fellow actor Emma Shuttlewood says she wants to provoke an amazing response in the audience: “I want them to say ‘wow’!” Based on Movers’ previous successes, I’m sure they will.

Visitor premieres on Wednesday 1st and Thursday 2nd June at Embrace Arts, Leicester, as part of the Spark Children’s Arts Festival.

How the law stops young people using advanced wheelchairs

Like most 13-year-olds, Jenny Wilson likes to go shopping with friends. Her athetoid cerebral palsy means that she has used a wheelchair for almost a decade, but she is capable of negotiating busy high streets. Yet Jenny’s independence is under threat – not from her disability per se, but by a legal anomaly that means she breaks the law if she uses the wheelchair that best meets her needs. Read my piece in Society Guardian here.