Tag Archives: third sector

Are we losing the care in our communities?

Bill Mumford, chairman, Voluntary Organisations Disability Group
When the revolution of care in the community took place, the decision to close long stay institutions resulted in a new, big idea; normal lifestyles, in normal houses, in normal streets.

People found themselves discharged from hospitals into small group homes in virtually every town in the UK. These were shared houses registered as care homes operating effectively as shared supported housing in the days before the supported living drive but without the important security of a tenancy. For many it felt like not only a new life, but a better one.

But now, just as people are looking forward to enjoying this life, due to bureaucratic, regulatory and financial reasons, people are trapped in unwanted small registered care homes. These homes are now closing because of running costs or the need to meet national minimum standards and changes in commissioning practice which prefer supported housing over ‘care homes’.

The problem is these closures are not happening in a strategic or orderly way, so the people living there face the prospect of another move into the unknown.

Take John, for example. He has a complex disability and moved from a long stay institution in 1986 to live in the community. His funding came from the council (let’s call it council A) where his parents lived although his new home was based in a different local authority area (council B).

In 1990 John moved to a smaller house, still registered as a care home (as it was before the supported living options became available), but less rural and with more to do in the community. The new house was still based in council B’s area and the funding arrangements continued.

Over the last 15 years John and his housemates have enjoyed a settled and fairly contented life building up their local support networks. Recently, two of the other people living there have moved on, leaving behind John and a fellow housemate, Mary (she is funded by council C).

The problem is that the charity that runs the home cannot find new people to move in to fill the vacancies – it has continued to run the service at a loss for the past two years.

The inability to find people to join John and Mary has been largely due to the understandable reluctance of authorities to make referrals to registered care placements.

As a solution, the charity could de-register the accommodation so it is no longer classed as a care home, but if it does so, it will come up against two bureaucratic barriers. Firstly, local government ‘ordinary residence’ rules mean council B would have to take on the support costs for John and Mary (while councils A and C would relinquish all funding). Secondly, council B is reluctant to open up its procurement arrangements to recognise the charity as a preferred contractor so will not place people there under contract for supported living!

Unknown to John and Mary, the home is likely to close and they will be faced with a move back to authorities A and C, a part of the country they haven’t lived in for over 20 years where not many family members remain. The costs to authorities A and C are very likely to increase while authority B will lose a good resource that could meet local needs.

The Voluntary Organisations Disability Group (VODG) researched the issues affecting people with disabilities because of the Ordinary Residence rules in 1997.

Our 2007 report titled No Place Like Home recommended three actions: firstly to agree the principle of a person-centred approach to funding and placement, secondly for the government to issue guidance and thirdly to put in place a framework for funding to transfer between authorities.

In October the VODG published Not in My Backyard as a follow up and found that despite the fact that new guidance had been issued there was little evidence of good practice. VODG demands the government include the concept of portability of social care entitlement in the white paper on social care due to be published next year.

We must do right by people like John and Mary; they represent a particularly wronged generation of people. Regardless of promises for future reform we need a kind of national amnesty, one that ensures funding is in the right place, providers and commissioners are working in partnership and individuals are given a proper voice. Because putting people first is not just a one off action, it is an enduring commitment.

How to go off the scale on the Tory happy-ometer

When, where, why and how much were you last really happy? It’s important, because the government plans to spend £2m on measuring our happiness.

For me, it was 2pm last Saturday in a checkout queue in Sainsbury’s, Ringwood, Hampshire. The standout moment of happiness was thanks to my youngest sister, who has Fragile X syndrome, and the charity Camphill. As for how happy I was (forgive the veering into Tom Cruise-esque sofa-jumping territory), it was a pure, punch-the-air-feelgood that catapulted my stomach upwards and made me want to hug my fellow shoppers.

While I avoid supermarkets on Saturdays – they are the next rung down on the ladder of hell from a weekend family trip to Ikea – I would join that checkout queue every week if it made me as happy as I was a few days ago.

So, happiness policy wonks, here’s one way to spread the love.

It’s Saturday and I’m visiting my 21-year-old sister, Raana, at the Camphill Lantern Community in Ringwood which she moved to in September from a Camphill college in Wadhurst, East Sussex. The Lantern is an adult community for the learning disabled which aims to foster greater independence in those who live and work there. Supported by staff and volunteers, Raana enjoys life in a shared house, is proud of her work in the shop and of her new skills in the bakery, has joined a local gym and is planning her Christmas shopping in Bournemouth.

Saturday is her shopping day so we’re at the supermarket. I’m impressed that my crowd-hating sister ducks and dives through bodies and baskets like a retail pro while I’m all at sea in an unfamiliar store. My sister’s enthusiasm and confidence hint at what is to follow…

We queue and, as her shopping is scanned, I remember she needs to top up her phone card and buy stamps. From ordering in restaurants to buying train tickets, communication with strangers has always been tricky so, like the rest of my family, I’ve become used to speaking up for her. We usually encourage her to make a stab at speaking for herself but, with the queue snaking behind us, for practical as well as historical reasons, I launch into support-mode autopilot: “And can we have…”

But suddenly my sister pierces the air with: “Can I have some stamps please?’ and I’m left gawping while an unprecedented exchange takes place:

Checkout girl: “Of course – what sort?”
Me (eyes wide as you’d like the checkout aisle to be): “…….!”
My sister: “Book of 12, first class please.”
Checkout girl: “Anything else?”
Me: “RAANA!?”
My sister (nonchalant, in control, ignoring my beaming face): “Yes, a top up on my phone card please.”
Checkout girl: “That’s it?”
My sister: “Yes, I’m paying on a card.”
Me: (grinning, restraining a high five, elbowing Tom off Oprah’s sofa): “RAANA! YOU’VE DONE YOUR OWN SHOPPING!”
Checkout girl and my sister look at me. I feel silly, but very happy.

My sister was clear, confident, polite and – and here’s the thing – her behaviour would have appeared to most people to be entirely unremarkable. She fitted in.

It’s the little things in life that matter – running errands might not be your idea of achievement, but for my sister, making a shopping list or paying for something herself reflects her growing independence. She is benefitting from the holistic approach to social care and education that she has enjoyed since the age of 16, when we first came across the Camphill movement.

Me with Raana at a Camphill event earlier this year

“You’ve not replied to emails this week,” I say later. “I’m very busy!” she replies, indignantly. Raana is sometimes too busy working, learning and socialising to contact us – this is a sign of independence and security because when stressed, she bombards us with texts (my sister is phone-phobic, but I hope one day to have a telephone conversation with her). For the first time, she shares some common ground with her mainstream peers – the “too busy to phone home” line is not dissimilar to the one I’ve peddled since I was her age.

But the spending squeeze threatens to undermine the support provided by organisations like Camphill because the councils which fund those who live there will be reluctant to keep footing the bill. Local government bureaucracy and money wrangles along with government cuts to councils are huge threats to disability organisations.

Raana at her 21st birthday with her niece, Maya.

Cuts have to be made, but the axe is falling on those who need it most.

To return to the happiness survey, the correlation between happiness and strong welfare and social support is well-documented. For example, as social policy professor Alan Walker notes, ‘social quality’ is key to measuring happiness; he defines social quality as how much people are able to participate in society under conditions that enhance their individual potential and wellbeing. Social quality is commonly used in European social policy and, says Walker, the essential foundations of social happiness include health care, housing, employment-related benefits and additional forms of social assistance.

Money alone won’t ever make you happy, but taking it away from social support, and from those who need it most, not only adversely affects their well-being, but that of others around them. And what’s more, the support my sister and her peers receive today unlocks their potential, enabling them to play their part in society tomorrow.

I’m sure the £2m plan to measure the nation’s happiness will include complex statistical science and a multitude of boxes to tick but I quite like this rather more simple equation:
Vulnerable person + resources x specialised support = happiness

Guardian Public Service awards; reaching the unreachable and support for prisoners’ families

My pieces this morning on two of the winners of the Guardian’s Public Service Awards held last night; Elmore Community Services and its fantastic work to reach the ‘unreachable’ with complex needs and the amazing support provided by Prisoners Abroad’s for the families of those incarcerated overseas.

How can you feel at home with bars on your windows?

Gemma Eadsforth

Gemma Eadsforth, 25, was in care from 15 to 18. Now a married mother of one, she lives in the North West and has been a LILAC (Leading Improvements for Looked After Children) assessor since January. LILAC is project funded by the Big Lottery Fund and hosted by the charity A National Voice which ensures looked-after children and young people are involved in decisions about their care and in the practices of the services that look after them. Here, Gemma explains how those who have experience of care assess how well services involve their looked after young people, deliver participation and LILAC standards of care.

The aims of LILAC (Leading Improvements for Looked After Children) are to make sure that young people are receiving the right care that they deserve and that they’re listened to by the professionals. We want to make sure that the service is listening to the young people’s views about what they want to change in the care system and be able to chase that up so the young people feel like what they say matters and the young people have a better experience.

I was in care from the age of 15 to 18. My experience was positive but some people have different experiences where they don’t feel like their voice is being heard.

I got involved in LILAC because I wanted to make sure that the young people who are coming into the care system or are already in the care system understand what their rights are and their voices are heard by their social workers or carers.

The simple things to me from my experience was when we wanted to have some sweets or chocolate we had to ask a member of staff to open the cupboard as they had locked it because we all used to eat it in one day, well not everyone but some people did. But if you were in your own home you wouldn’t have to ask and you wouldn’t have locks on cupboards. They say ‘treat it as your own home, make yourself at home’, but how can you when you have bars on your window or locks on doors? It made me feel like it was a secure unit, that it wasn’t home, that I wasn’t trusted and sometimes like it was a punishment for something I hadn’t done.

Some young people don’t like talking to their social workers or carers about what they want to change or anything that is going on with them that they are not happy with as they haven’t had the experience that they have of being in care, so the main reason I got involved in doing this was because I’ve had the experience of being in care and can relate what they are going through so, I feel like I would be the one who they could talk to.

By being involved in LILAC you get to see what is going on in different local authorities and how they run things. Also get to meet young people who are either care leavers or still in care. The main rewarding thing about being in LILAC is real achievement for me and my team to show that not every young person who is/been in care is a bad person or not able to achieve anything because they have been in care as the media only cover the negative never the positive.

In a recent assessment I was impressed by the facilities that were available but disappointed by the lack of involvement that young people had.

We have seven standards to assess on. The main things to have in a care setting are to make sure young people are listened to, to have a voice and be heard. Being corporate parents, would you treat your own children like this?

Every time we do an assessment we always do feedback to let them know how they did or what they need to do and offer our support if they need it. Because we assess on the seven standards they need to get all seven before they get the full LILAC stamp to say that they have been ‘LILAC-ed’ so when the inpection body Ofsted comes round, they can say that young assessors have been here and done assessment on our local authority and we have passed their standards.

If I had one wish for the government to improve things for children in care I’d ask them to try and remove the stigma about being in care. Make it more positive so young people don’t feel like they’re to blame for being taken into care.

Is social enterprise a magic wand?

See the Guardian’s new social enterprise network for my piece on social enterprise as a magic wand: The challenge facing social enterprise, warned Peter Holbrook, chief executive of umbrella group the Social Enterprise Coalition, before the election, “is to be vigilant to ensure that the discourse on social enterprise is not distorted by the next government’s ambitions and policies around it.”

When ‘thank you’ are the best words you can hear

Jo Sharp, parent support advisor

Jo Sharp, 38, from Croydon, south London, is a parent support advisor with the charity School-Home Support (SHS). Jo works in an infant school, a junior and a secondary, all in south Croydon. Here she explains why her role is vital and describes its challenges its rewards.

I became a parent support advisor because…I’d provided support to my neighbours, it became apparent to me that there were many families and children who weren’t receiving the help they were entitled to. I enjoy the range and diversity of the work as well as the fact that I reach out to families directly and provide a holistic service to them.

My aim is…to develop a supportive environment for the families and children. For me, the relationship is often the work and I feel it is a great privilege to be allowed into people’s lives and share in their experiences.

The first child I helped support was…suffering from extreme anxiety over going to school and his attendance was below 50% as a result.

Teachers knew there was an issue with this child because…he’d attend maybe two or three days a week and leave early. He appeared withdrawn and lacked confidence.

The first thing I did was…meet his family to look at possible reasons for his anxiety. His parents were extremely worried and had tried to support him in the best way they could. Despite this, the child would often lock himself away in his room rather than face questions about school. His parents and I agreed that I would meet with him in school rather than at home.

The reaction I got from him was… we spent a long time discussing his experiences at school and his feelings regarding his own self esteem and confidence. Because he had started school in year eight, he’d missed out on the bonding with his peers in year seven. This had a big impact on how he felt he fitted in, and he’d started to put himself second to everyone else in his quest to ‘be liked’. He’d also started to develop much faster than some of his peers so felt he stood out too much. All this had left him feeling increasingly anxious about coming to school until he just couldn’t face anymore. Over the weeks we looked at ways of improving his assertiveness and developing a positive image of himself. He was allowed a reduced timetable at school, gradually building up to full days.

I knew we’d started to get somewhere when…he became more active at the weekends and started playing football and socialising more with others. Prior to this he found it difficult to leave the safety of his house for prolonged periods.

The hardest thing was…keeping up the momentum. It would only take a slight knock for him to feel anxious, however by maintaining close contact with him and his family and being there to support him when he was feeling anxious, the anxiety became less severe.

The most rewarding thing was…to find that he’d not missed one day of school and that he’d really turned his life around! His attendance is 100% and he participates in activities outside of school, his teachers have said he’s much more positive in school and appears to enjoy his time there. His family has also expressed their delight at having their son back!

To do this job you need to be…patient! Change doesn’t happen overnight. The rewards are fantastic when you see first hand how the support you have played a part in has had positive effects on families and young people. I believe that you need to be able to connect emotionally with the families, having empathy and compassion whilst also being able to look at the bigger picture and think logically about what support can be provided. A good understanding of local services and outside agencies is key.

The biggest problem facing the sort of young children I help support is…a lack of understanding. Sometimes it is very practical support that is required and at other times it is more emotional, but either way I feel that young people often feel misunderstood because we as adults actually lack a perspective on their world.

If I could have a word in education secretary Michael Gove’s ear I’d…ask that more focus be placed on supporting families and children in and outside of school. It works!

The best thing a child I’ve helped support has said to me is…thank you!

Here’s a neat idea: get rid of the neet label


By Andrew Purvis

I am currently CEO of youth charity Fairbridge, I have 20 rewarding years experience working in the private sector behind me, but it might surprise you to learn that I was ‘neet’ (not in employment, education or training) once – just like the million young people being tagged with that acronym today.

My experience was actually a good one, I had four months off following my first job after university, and it was a very productive time in my life. I gained skills which I then found useful in the job I moved into. Being neet wasn’t a problem for me, it was a situation I knew would be temporary and that I had the wherewithal to get myself out of. But I did not come from three generations of unemployment; I had not been the victim of domestic violence; I hadn’t been in care or excluded from school and I was lucky enough to have two loving parents to support me.

It’s this chasm of difference between the opposite ends of the neet spectrum that worries me in the wake of the comprehensive spending review. While schools funding has been ring fenced, complementary provision like that provided by Fairbridge is vulnerable. Benefits for the jobless and homeless are going to be reduced so for those million young people not in education, employment or training, difficult times are about to get even tougher. But not to worry, the government is using a payment by results approach to get lots of them back into work – so that’s okay, isn’t it?

Well no, it’s not. Having a neat, neet acronym is helpful shorthand and has undoubtedly brought attention to the problems of youth disengagement but the label is now confusing the issue and I want us to stop using it. Being badged ‘neet’ isn’t nice but it’s not the stigmatisation I have a problem with. It’s the fact that by putting the same label on a million young people, we’re preventing help reaching those who need it most.

A recent government report by the Audit Commission segmented the million neets and identified 380,000 young people, who were classed as being ‘sustained neet’. They have the biggest problems, are the biggest cost to society and are in greatest need of investment. By grouping all these young people together, it is easier for those who are commissioning services NOT to focus on these sustained neet. The term now creates great confusion over where support should be targeted. It is a real concern that much of the recent investment in reducing the neet figures, has gone to the top end – those closest to the job market like I was all those years ago – rather than the sharp end where it is genuinely needed.

As the economy recovers, those closest to the job market will move on to a job or education and the commissioners can put a tick in the box marked ‘reduced neet figures’ and go home thinking job done, ignoring the fact that the sustained neets are still there, without any targeted support. The label hides the fact that we need to start putting resource where it is needed most and where it will have the most impact.

Fairbridge runs courses across its 15 centres which focus on the skills these sustained neets will need to get back into employment, often in conjunction with corporate supporters. In London our Employ Me course gives young people, most of whom have never been in a workplace, basic skills to start them on the road to employment. From workplace behaviour to discovering what types of jobs are out there, they need to start from scratch which is what we help them to do. Without this support they will remain unable to take the even the first steps towards employment.

If we could make real inroads into that 380,000 sustained neets then many of our communities would be happier, safer and we would see a corresponding reduced burden on the coffers of the Ministry of Justice, Home Office, Department of Education and – because mental health is such an issue with our youth – the Department of Health.

To do that we need to commit to properly targeted interventions and this requires sophisticated commissioning of solutions. Let’s drop the neet label and let’s stop using money inefficiently by lumping together large groups of the population who have vastly differing needs. Only when we start being honest about where the real problems lie, can we start solving them.

Fairbridge is holding a parliamentary event today to raise awareness of its work among new MPs.

A post-cuts third sector; where business and back office are as vital as compassion

Shaks Ghosh
Shaks Ghosh, chief executive, Private Equity Foundation

By Shaks Ghosh

“A hard road, leading to a better future, is how Chancellor George Osborne spoke of the journey ahead of us in yesterday’s Comprehensive Spending Review (CSR).

All I know for certain is that it’s already been a bumpy ride for charities, many more of which, it’s now been estimated, receive public money than previously thought. The Third Sector Research Centre believes that some 35% of organisations (rather than between a fifth and a quarter) get statutory funding and of those, 23,000, or 14%, regard it as their most vital source of income.

In the youth sector alone, the magazine Children & Young People Now, has found that of more than 130 charities, 82% are already being forced to cut youth projects because of funding shortages.

And, even with the very welcome one-year, £100 million transition fund announced yesterday to help voluntary sector groups adjust to new public spending budgets, it is going to get tougher. Think tank New Philanthropy Capital (NPC) warned on Monday that these government funded charities are approaching a “maelstrom”. It expects the sector’s income to drop by between £3.2bn and £5.1bn.

So that’s just some of the bad news. But there is good news too as we peer into the gaping chasm of what Shadow Chancellor, Alan Johnson, has called “the deepest cuts to public spending in living memory”.

Along with the transition fund, there’s £470 million over the next four years to build the capacity of the voluntary sector to deliver the Big Society.

I don’t know what this expanded delivery role will actually mean, the devil will be in the detail, but the CSR adds that it will “look to set proportions of specific services that should be delivered by non-state providers including voluntary groups.”

Could this support amount to enough of a lifeline? Possibly, but only if we are really bold and act now! During the economic down-turn last year, the Charity Commission found that only 32% of charities surveyed had taken steps to limit the impact of the recession, with just 14% reducing costs.

An ostrich mentality isn’t going to help. And I don’t say that lightly. I’ve felt that pain. As a charity chief executive, I’ve had to lose staff on occasions when the funding didn’t materialise.

What my last few years at a venture philanthropy fund have taught me is the importance for charities to concentrate on their ‘back office’ as much as their compassion.

It won’t be for everyone, as charities are driven by much more complex ‘bottom lines’ than pure profit and there will be a learning curve, but there’s much to gain from partnership with business. The Private Equity Foundation (PEF) has organised some 15,000 hours of pro bono support for its portfolio charities so I’ve seen first-hand how powerful it can be. In some cases, we’ve worked with charities which have managed the move away from substantial government funding to more sustainable models, while others have achieved huge growth in impact.

Which leads me to better measurement and evaluation. Only the demonstration of effectiveness will ensure support, as government tenders and pays for more services by results and funders choose between a deluge of ‘asks’.

It’s not measurement for measurement’s sake; evaluation can also help create a virtuous circle as organisations scrutinise the data to see where they can improve outcomes. It will become a vital tool, in what’s likely to become a ‘race for quality’ and more foundations should be prepared to pay for it.

Funding from the public and philanthropists cannot plug the hole left by government cuts. But, I believe that business does have a huge contribution to make in safeguarding the sector and I will be doing everything humanly possible to bring more of its money and skills to charities in the coming years.