Made Possible: Sarah’s story

I loved making this film with Sussex-based actor and campaigner Sarah Gordy, who describes her life in my upcoming book ‘Made Possible, stories of success by people with learning disabilities.’

The critically-acclaimed actor, who I interviewed pre-lockdown, explains how she prepares for her stage and screen roles and shares her tips on acting.

Made Possible shows how and why people’s potential should be supported, and that we all benefit when this happens. It couldn’t be a more apt book for our current times.

Pre-order Made Possible from the usual booksellers like https://amzn.to/3fMJMXh or see if your local bookstore can order it for you. For updates, follow #MadePossible and @Saba_Salman on Twitter and Instagram and the Facebook.

Raana’s Happy Art Gallery

My youngest sister Raana’s in supported living and keeping in touch is tricky during the coronavirus lockdown because she doesn’t use the phone. But she loves drawing and making, so I spent a few days collecting pictures of happy handmade arts and crafts to message her, including pictures of her own, colourful creations.

I decided to create a mini-gallery of crowdsourced crafts and art from the gorgeous images I received. It features homemade treasures from learning disabled people and their families; Raana’s Happy Art Gallery can be viewed here.

Here’s one bright, joyful example:

‘John and Yoko being happy together’. by Ellie Wilson.http://sabasalman.com/happy-art-gallery/

The gems in Raana’s gallery include abstracts, flowers, faces, figures, animals, colour – all made and shared with love. Thanks to all the amazing people and organisations who sent happy art and messages on Twitter and Instagram – I’ve spent the best part of a week gazing in happy distraction at the gallery.

Raana messaged me a characteristically short but accurate verdict about the art share: “that good” and then “very kind”.

Check out Raana’s Happy Art Gallery – open 24 hours and permanently free!

coronavirus impact on deaf employees

Everyone struggles with working from home – from managing conference calls to difficulties with Zoom – but imagine what it must be like if you are deaf or have difficulty hearing.

New research by the charity Action on Hearing Loss found that three-quarters of people who live with deafness fear they will be less productive working from home.

My Guardian report explores the barriers and solutions for deaf employees and highlights the work at the Centre for Deaf Education at City Lit college.

City Lit student and deaf mental health worker Ilyaas Cader explains the impact of not being able to communicate in his first language (sign), and calls for greater use of sign language.

Read the piece here.

Coronavirus impact

Raana, left, on her 30th birthday in June last year. My family doesn’t know if we can celebrate with her this year.

My sister has a learning disability and I can’t visit her because of coronavirus.

Coronavirus has made enforced separation a universal experience, but there are additional and far-reaching challenges for learning disabled people and their families. I cannot visit my youngest sister, Raana, who has fragile X syndrome and lives in supported housing in Hampshire. My family has no idea when we will next see her.

Social distancing, self-isolation and a lockdown for the over-70s will have a seismic impact on Raana (our parents are in their 70s, our father has a lung condition). My sister’s social contact is now limited to support workers paid to care for her and her learning disabled housemates. She uses text messaging but dislikes phone calls and writing letters.

Raana thrives on consistency and routine, including dance classes, baking workshops and weekly shopping. Yet coronavirus means services are closing and people’s movements are restricted. Online equivalents are not the same and do not always appeal if you have communication difficulties. What will happen if her trusted support staff fall ill or she has to self-isolate? What if she needs help with personal care?

The 1.5 million learning disabled people in the UK are already among society’s most segregated people. Communities must not forget them, as I write in this Guardian piece.

beautiful Minds

Featured image: Alice Hewson, youth worker and journalist, who is dyspraxic. Credit: Owen Richards for Positive News

Rather than simply accepting people with neurodiverse conditions like autism or dyslexia, what if we recognised their hidden talents?

Positive News has just posted my article about this issue. I heard from four neurodiverse on how the way their brains work has been key to their success.

As Alice, pictured above, says: “I’ve encountered difficulties that other people don’t have to deal with, and that’s made me incredibly caring. I can put myself in someone else’s situation. I respond in a very different way to people who aren’t neurodiverse.”

You can read the entire piece here

MAde possible: in hardback

Book news: the hardbacks of my upcoming book, Made Possible, are now at the offices of my publisher, Unbound.

Copies will soon be in the hands of all of the great people who backed these first editions and therefore helped bring this book into the world.

The paperback’s out in May and is now available to pre-order from the usual places, like Foyles, Waterstones, Blackwells and Amazon.

In a nutshell, the book is 200 pages that challenge assumptions and it’s packed with power, joy, potential, humanity, humour and much more.

You can find out more about the background to the book on my publisher’s website and in this Guardian piece.

uniting to fight loneliness

A new project unites people at opposite ends of the age spectrum – individuals who are among the most excluded groups in society (photo: Anchor Hanover).

Society is in the grip of a loneliness epidemic. Headlines regularly warn about the scale of this modern scourge, from describing how social isolation increases our risk of death, to lamenting Britain’s status as one of the most age-segregated countries in the world.

What command less column inches are the small-scale solutions. There is little consideration of how hyper-local schemes – when funded, publicised and replicated nationally – could tackle loneliness and shift perceptions about the most isolated people in the country.

I’ve just written about a new project that does just this, for Byline Times. Older people at The Beeches in Leatherhead, Surrey, a home run by housing and care charity Anchor, and pupils from Woodlands School meet weekly for singing sessions run by Intergenerational Music Making (IMM), a local community interest company.

Not only are the singers at opposing ends of the age spectrum (the youngest is five, the oldest is 90), they are from two of society’s most excluded groups: the adults have dementia or a disability or depression; the pupils have severe learning difficulties, complex needs or autism. 

Uniting two such disparate groups for an hour a week at the care home has had astonishing results.

It’s a small, simple yet strong solution to the society’s most pressing issue – division. You can read the whole piece here.

Different is good

I’m really pleased that my first piece of 2020 is for the much-needed Positive News magazine, on challenging stereotypes about neurodiversity.

It features amazing people talking about how thinking differently because of autism, dyslexia, dyspraxia and ADHD can contribute to success – and what we all miss out on by ignoring this.

The extract above features Alice Hewson, who is dyspraxic, describing the advantages of thinking differently (photograph by Owen Richards).

Regular readers will notice a link between the subject matter and my upcoming book, Made Possible

The print edition of the magazine is out now and the article will be online later this month (positive.news). Amid the current news agenda, it’s a welcome look at all things uplifting and positive.

The good, the bad and the ah here we go again

You can’t rehabilitate someone when they’re locked away” Campaigner Julie Newcombe and her son Jamie, who I worked with on a story in January. Photograph: Martin Godwin/The Guardian.

I’m ending 2019 by looking back at some of the issues I’ve written about this year.

Generally, I’ve covered the good stuff we need more of and the bad stuff we definitely need less of.

Thanks to everyone I’ve worked with (quoted and not) about human rights, disability, learning disability, social care, equality, diversity and campaigning.

So here’s what we need more of and less of in 2020 and beyond, based on what I’ve written about:

1. More human rights and a proper community life for people with autism and/or a learning disability.

2. More of an ‘ordinary life’ for people like my sister, Raana.

3. More professionals putting people – like Nigel Hollins – at the centre of their care.

 Sheila Hollins with her son, Nigel, who is now a Beyond Words adviser and runs one of the Surrey book clubs. Photograph: Martin Godwin/The Guardian

4. …on a practical level this means more professionals truly understanding that people and their families are usually the real experts in their own care. No lip service thanks.

5. More authentic representation of disability on stage, screen, in front of and behind the camera and in the audience.

The Peanut Butter Falcon’s sentimental approach could be construed as reinforcing stereotypes about ‘vulnerable’ people triumphing over tragedy.’ Zack Gottsagen and Shia LaBeouf in The Peanut Butter Falcon. Photograph: Seth Johnson/Signature/Kobal/Rex/Shutterstock

6. More support and social care funding for autistic people and real, honest involvement of people and families in research.

7. Less social isolation so older and learning-disabled people really know their neighbours.

8. Less (or rather zero) health inequalities for people with learning disabilities, special educational needs and profound and multiple learning disabilities.

 Erica Carlin, a woman with multiple learning difficulties, who doctors had written off. Photograph: Andy Lord

9. Less cultural and social prejudice towards BME and Asian disabled women.

10. Less assumptions that people like my sister aren’t interested in or capable of forming relationships of different kinds.

11. Less official reports that bang on about the same stuff we’ve known for years and that fail to actually make any difference.

12. Finally, ending on a positive note – here’s my awesome sister, Raana offering a glimpse into her idea of community with a short film she made with her support worker (spoiler alert: it’s not that different to anyone else’s).

  • This post is based on a Twitter thread and reflects some of the issues that feature in my book, Made Possible, which is being published on 28 May 2020.

An election for all

A million learning disabled people are eligible to vote in the election on December 12, including my youngest sister, Raana.

But despite better awareness in recent years about accessible polling stations, easy read information and the universal right to vote, the Electoral Commission estimates that one in four learning disabled people aren’t registered to vote.

I’ve been gathering some information for my sister which I thought I’d share on this page (and I’ll update it where relevant):

This is a really good guide on elections and voting by the self-advocacy charity My Life My Choice.

Another helpful resource here – a page of information from campaigning organisation Learning Disability England.

This is a useful guide on voting from the charity Mencap and the Electoral Commission.

There is also this resource on politics and voting from charity United Response . The charity is also creating easy read versions of the manifestos

The Green Party easy read manifesto is here

The Liberal Democrat easy read manifesto is here

The Labour Party’s accessible, easy read manifesto page is here. Labour’s disability manifesto is available here, plus an easy read version.

The Conservative Party’s accessible manifesto can be requested by calling or emailing the party via this page

Links to the general (ie not accessible) manifestos are below. I also checked how many times the parties mention autism and/or learning disability.

Green – Greens don’t mention either.

Labour –Labour mentions learning disability once, autism not at all.

Lib Dem –Lib Dems mention learning disability five times, autism twice.

Tory – Tories mention both twice.

Granted, this is a crude litmus test because other policy areas (like health, social care, education and human rights) clearly impact on the lives of autistic and learning disabled people. Still, I can’t help but hear the words of campaigner Gary Bourlet, from a few years ago, ringing in my ears: “Why is it OK for politicians to ignore people with learning disabilities?”

  • This post was updated on Tuesday 3 December to include Labour’s disability manifesto and a new link to request the Conservatives’ accessible manifestos

Saba Salman on social affairs