Art mirrors life for those of us with an interest in learning disability issues as a London play explores the threat to special needs schools. The play coincides with the government’s plans to overhaul special educational provision and comes at a time when learning disablility support is in jeopardy thanks to public spending cuts.
Actors in Alan Share's Death of a Nightingale
Death of a Nightingale runs at Hampstead’s New End Theatre until Sunday 3 April and focuses on the inclusion agenda which can shoehorn children with special needs into mainstream schools that offer inadequate support.
The play, written by Alan Share, a former chair of governors at a special school, also addresses the problems when a special school is threatened with closure. Since 1997, more than 100 special schools have closed, resulting in the loss of about 9,000 places for children.
Professional actors are joined on stage with learning disabled young people from the Oak Lodge School in East Finchley. The cast includes 18-year-old Max Lewis, an actor with Downs syndrome who appeared in Notes on a Scandal. Lewis plays a pupil who truants from schools that fail to meet his needs.
Written in 2009, the play is being resurrected to coincide with the government’s green paper on special educational needs. Share describes the green paper as “yet another missed opportunity for the government”. He adds: “It wants to find a quick fix for children with moderate learning difficulties and avoid the challenge of meeting more complex and varied needs.”
For more on the green paper and special educational needs provision, check out the very good Guerrillamum blog.
Award-winning sports enthusiast Adam Hayes has already won medals at boccia events, a target ball sport similar to petanque and bowls. As a keen footie fan and Chelsea supporter, the 20-year-old also enjoys a bit of hockey and football too. So it’s no surprise to his mates that he’s participating in the second ever Brighton Marathon next month.
Not only is Adam adding another string to his sporting bow, but he’s making history – Adam will be the first participant in a wheelchair to complete the 26-mile course.
Joining Adam on the start line on April 10th and pushing him along the course will be three Fethneys care staff, Gavin Parrish, Ollie Orchard and Lucie Hammond.
Adam Hayes, seated, the first wheelchair participant in the Brighton Marathon , pictured with (l-r) marathon teammates Ollie, Lucie and Gavin
The foursome is aiming to raise a target of £2,000 for Fethneys, which accommodates 10 young disabled people at a time, teaching them life skills like cooking, managing bills or cleaning and supporting them towards independent living.
“I feel very honoured to be the first wheelchair user in the whole of the country to take part in the Brighton Marathon,” says Adam. He adds of his boccia playing, “I competed in the GB championships and have won medals in regional and national athletics competitions. I also take part in wheelchair hockey and wheelchair football as a hobby.”
Moving into Fethneys five months ago from a local specialist college for disabled people, Adam says he loves his new home: “The staff here are teaching me the skills I need to live totally independently. Thanks to Fethneys I am really looking forward to living in my own flat in the near future – they are helping me to make my dream become a reality.”
To sponsor Adam, Lucie, Gavin, and Ollie visit their fundraising page.
Leonard Cheshire Disability has places on the 10 mile Great South Run on 30 October 2011. Contact the events team at events@LCDisability.org,
By Jewish Care co-authors Sinead Rippington.....and Nana Wereko-Brobby“Each day you spend leaves you with one less, spend them wisely.” Solle Frankel, aged 100
It’s sound advice from Solle yet, as young people, we rarely take the time to stop and listen to the older generation. A survey undertaken late last year by the charity Jewish Care revealed that only a third of Londoners thought that people over the age of 70 were important to society. The charity, which provides health and social care services to hundreds of older people every week, responded in November 2010 with its bold awareness campaign Pearls of Wisdom. The campaign asks the vital question: what can we learn from our elders?
The charity asked fourteen clients to share some valuable bits of advice, drawn from their long and varied lives. The effect was a powerful, unique and at times funny collection of life lessons, ranging from warming affirmations about love – “Get a goodnight kiss, every night” Jerry Cooper, 87 – to astute observations about money – “Don’t buy the things that you can’t afford.. pay your debts”, Jean Nadler, 90.
The fact that older people can be witty, insightful and interesting should go without saying. Yet statistics show that only around half of those aged under 35 have spent quality time with anybody over the age of 70 in the last six months indicating a real reluctance to connect with a social group considered “past it”.
So what’s the thinking behind this? It’s not exactly that we don’t care, but so many of us unthinkingly buy into an established social stereotype: older people are grey, boring and a burden on society. Thankfully, several attempts have made recently to dispel this image. The BBC’s latest hit, When Teenage Meets Old Age, and the recently launched Campaign to End Loneliness, follow a similar track to Pearls. The Campaign to End Loneliness, a collaboration between four different organisations- WRVS, Age UK Oxfordshire, Independent Age and Counsel and Care- wants the ‘Big Society’ to volunteer it’s time to do more for older people. The campaign, which began last month, has highlighted the seriousness of a reality where an average of 10% of our senior citizens feel either “severely lonely” or “always lonely”. Visitors to the campaign’s website are invited to offer their time to an older person or share their tips on how to combat loneliness. It’s not clear yet what the impact has been but the campaign’s report into the UK’s “epidemic of loneliness” is a much needed call to action.
Add to this the success of the website We Are What We Do, an example of original, digital action. We Are What We Do, a not-for-profit company founded by community worker David Robinson, were horrified to discover that two-thirds of Britons now believe that young and older people live in separate worlds. In response, the organisation asked younger people to pledge to make the world a brighter place by undertaking a number of small activities with their seniors. From learning older people’s tried and tested recipes to teaching your granny how to text, the website aims to highlight the myriad ways you can bond across the generations. As a result, nearly 10,000 people have signed up online and the community continues to grow.
At a time when Britain’s population is ageing rapidly and the media seems intent on playing up inter-generational conflict (the supposed battle between the beleagured baby boomers and the spoilt students, as the newspapers like to put it, these new campaigns offer a fresh perspective. It’s also a message that young people are receptive to. As Eitan Amias, a 17-year-old volunteer at one of Jewish Care’s Reubens House residential home in Finchley explains, intergenerational interaction benefits everyone involved: “when visiting the home I feel that I’m not just helping the residents but also myself, as I tend to take that positive energy with me to last the rest of the week”
But for many young people volunteering to spend time with the older generation can offer more than just a glowing feeling of pride. It’s also a valuable way to learn new skills, an increasingly important concern as youth unemployment reaches crisis point.
Indeed, volunteering can be crucial in securing that elusive first job after graduation, as Jamie Field, Jewish Care’s youth and community development officer, discovered. Jamie started working for Jewish Care as a volunteer, aged 15, but the experience he gained through charity work helped him land his current, paid role at the organisation after university.
However, Jamie believes “it’s important to make volunteering cool. It has to be relevant… you could write a newsletter, make a movie or use your skills to help someone use a computer’; young people need to be challenged and inspired and charities can’t be complacent, even in the midst of a recession when young people have more time on their hands to help. Jamie emphasises that young volunteers can use their charity experience not just to get jobs, but also to assist them with their Duke of Edinburgh Awards or to provide additional material for their UCAS forms. So, perhaps it really is time to take Solle’s advice and start spending our time a little more wisely.
A powerful image of a black teenager, eyes downcast and his bare arm criss-crossed with knife scars, is among the striking images in a photographic exhibition about the UK’s gangland culture.
The photograph of ex-gang member Jean Claude Dagrou, who was scarred during a fight between rival south London gangs in his late teens, is part of Another Lost Child, which opened at the Photofusion Gallery in Brixton, south London, earlier this month. Read about it in Saba Salman’s Society Guardian piece today.
As someone who has experienced mental health problems since childhood I was elated to discover, on February 2, deputy prime minister Nick Clegg waxing lyrical about the importance of mental health on breakfast television. It was the new mental health strategy in England, No Health Without Mental Health, a cross-governmental approach to mental health and wellbeing, putting particular emphasis on talking therapies, early intervention and children/young people’s mental health.
£400 million is being invested in mental health services and I applaud the move to improve access to psychological therapies (often described as a ‘Cinderella service’) such as Cognitive Behavioural Therapy (CBT), a type of therapy which works to gradually change a person’s negative thought patterns and behavioural responses over a set period of time.
These types of therapies have been proven to work extremely well for people with mild mental health problems, such as short-term reactive (caused by an external trauma, such as a bereavement or job loss) depression and anxiety. Allowing people access to this type of support at the first onset of symptoms can prevent mental health problems spiralling into more severe forms of mental illness and, if it works, will save the government money as mental health problems are estimated to cost £105bn a year, according to the Centre for Mental Health.
I am pleased children/young people’s mental health is at the forefront of the strategy. Mental health service provision for young people is woefully inadequate, despite research showing half of all people who develop a lifetime mental health problems start to show symptoms at the age of 14. I can attest to this and perhaps with early intervention my mental health would not have deteriorated. Not mentioned, and something which is close to my heart, is how schools can assist with early intervention by training staff in mental health and employing in-school counsellors. My mental health problems were exacerbated by the deficit in knowledge about mental health in my school and as such I feel schools need to be included in discussion on early intervention and preventative measures.
As my elation waned and cynicism set in I pondered some questions: what about those with severe or enduring mental health problems? A short course of CBT is rarely enough when your problems are embedded or not easily identifiable, and I can’t stress enough how difficult it is to get sustained support. Regrettably for the government mental health problems are complex and unwieldy; they can accost you unannounced, be rooted in indescribable traumas and take years to recover from or even manage on a day to day basis. They are highly subjective and as such what is required is a subjective approach, there is no therapeutic panacea.
Talking to other young people, who like me have had mental health problems since a young age, there is a worry psychological therapies will be skewed in favour of CBT over other forms of talking therapies such as psychotherapy, art therapy and group therapy, to name a few. There are myriad treatment options out there but it can be extremely hard to gain access to many of them; perhaps they are not available widely in your area, are expensive or you’re simply told you’re not ‘unwell enough’ yet. The latter can be especially disheartening to hear when you have been physically unable to function for months on end and are desperate for even a semblance of support. There is not one cause for someone developing a mental health problem and while CBT works for many people it is important to note it does not work for everybody and there needs to be access to an array of psychological therapies if these proposals are going to work.
Another question I had after reading about the strategy was about how it can possibly succeed with council cuts affecting mental health services the way they are. In my last blog post I expressed concern about how cuts are affecting voluntary sector mental health services and I come back to this point now. With day centres closing around the country, jobs being lost and the lack of psychiatric beds available mental health provision is not in a good place and I’m left wondering how the government think the NHS can compensate for all these crucial losses.
As a resident of Leeds I was dismayed to hear of the decision to close the Leeds Crisis Centre, Leeds’ only instant access counselling service for people needing immediate support. The rationale behind this is that the service itself isn’t unique and is duplicated within the NHS. With GPs and mental health professionals regularly referring people deemed too ‘high risk’ for NHS services they have come out in force to support the crisis centre and postpone the decision until a rigorous consultation has taken place. I have to wonder how serious the government is about helping people suffering mental distress. Will the rhetoric become reality? Or will, as has become the norm, those of us with mental health problems be left floundering about desperately searching for any kind of support?
With age, so it’s said, comes wisdom. While I’m not sure this is always true, I do know that with age also comes a creeping inability to know what it’s really like to be a young person today. This is particularly maddening, most under-24s will tell you, when they hear themselves and their issues being aired in the public arena by politicians, policymakers and commentators twice their age.
Working on a special youth edition of Society Guardian, the overriding feeling shared by the young writers involved was one of frustration at the stereotypical view of young people (and if this sounds like a plaintive teenage whine of “no one understands us”, it wasn’t; their complaints about misrepresentation were more valid than that).
So it’s not surprising that in three years of campaigning and going to conferences, seminars and workshops on youth crime, activist Eliza Reberio, 17, says she feels “the research findings and the observations made did not always convey the reality… nothing that was being done or said was making the changes that were required”.
Which is why Reberio and her young peers at the London-based anti-violence campaign Lives Not Knives are planning a youth-led conference, aptly titled Putting the Record Straight, which they want to hold at the end of March.
Eliza Reberio, Lives not Knives founder, wants more young people to speak on the public stage
Reberio explains: “We think it is time that the young people of London had their chance to speak and in fact put the record straight to significant policy makers and make sure not only that their voices are heard, but the right changes are made.” LNK sends peer mentors into schools to share experiences of gang culture and reduce its appeal.
Eliza Reberio explains the aims behind her Lives Not Knives campaign
The government recently announced £18m for tackling knife crime and gun and gang culture following a report into the issue by former EastEnders actor Brooke Kinsella. Kinsella, whose 16-year-old brother, Ben, was stabbed to death in 2008, was appointed as a government adviser on knife crime last year.
Compared to the high-profile Kinsella launch – welcome as it is – Reberio’s has a more grassroots feel to it. She launched LNK in 2007 at the age of 14 because, as she explains, “the toll of teenagers being stabbed due to youth crime and gang culture made an impact on me and others around me.” Expelled from her school for disruptive behaviour, Reberio realised that she was accepting knife crime as nothing out of the ordinary: “I heard about friends being stabbed and I thought it was normal..I would get texts saying someone had been stabbed the night before and I wasn’t shocked. Then I looked at my friends’ little brothers and sisters waking up to those texts and I wanted to change things.”
Printing and selling t-shirts emblazoned with the words “lives not knives” to family and friends, Reberio used the proceeds of the sale to hold a DJ night in her hometown of Croydon, south London, “for youth to have fun without violence” attended by 150 young people.
The campaign mushroomed and corporate donations lead to a booklet written and drawn by young people, depicting their experiences of knife violence and gang culture – thousands of copies were distributed to Croydon schools. LNK now has a 20-strong team of mentors including those who have either lost a friend, been a victim or perpetrator of violent crime or are ex-gang members. Reberio has just won a Diana Award for her work and the project is part-funded by Croydon council, which has made her a local ambassador.
Last year, the young campaigner was picked to feature in the Channel 4 project, Battlefront, which follows a group of 14-21-year-olds as they turn their issues into campaigns.
Now, Reberio’s plan with the youth conference is to work with other community youth led organisations and show organisations such as the police, youth justice staff, politicians, policy makers, adults, parents and teachers “how life really is for young people on the streets of London, how youth violence is affecting our lives and the real changes that need to be made to make London a safer place for young people”.
The young campaigers are now looking for a central London venue and help with everything from organising the event to identifying contacts – young people as well as youth-related organisations – who might benefit from the event.
Anyone who can help or advise should email Reberio livesnotknives@hotmail.com or leave a message on this page.
Real freedom, as Mary Pearson, mother to a learning disabled young person, says in the short film below, requires freedom of movement.
The film, by David Herman of the learning disability charity Camphill communities , is part of the ongoing campaign to help disabled people in care who want to live more independently but who are being prevented from doing so by funding wrangles between local authorities.
The cuts agenda combined with local government red tape means forcing vulnerable people (and their families and carers) through hoops if they want to move from one council area to another – and there’s no guarantee of success if you attempt this. But learning disablity campaigners are calling for funding to follow individuals. A sort of portable personalised budget and assessment system is what’s needed.
The film is part of the charity’s submission to the government-appointed Commission on the Funding of Care and Support which is due to report back in July. The scenes here offer a snapshot of the sort of rich community life that my sister is thriving in at The Lantern Camphill community.
Liz Astor, mother to 18-year-old Olivia, who has autism, realised how desperate her daughter was to socialize on nights out with her peers when, in response to being offered a packet of dates to snack on, the teenager blurted out (entirely seriously and with great indignation): “I want to go on a date! I don’t want to eat one!”
Many similarly amusing moments tinged with a serious edge have been enjoyed in my family thanks to my youngest sister’s grappling with the vagaries of the English language and her inability to take words anything other than literally.
There was the time she stormed home from school, complaining that she had been told to “puck off!” in the playground. My mother was caught between the pedant’s reaction of correcting my sister for mishearing the word (“Actually darling, it’s not ‘puck off’ it’s…”) and an anger-fuelled desire to advise her to tell her potty-mouthed peers to puck right off back (coining a new breed of Shakespearean insult in the process perhaps?). Instead, we checked there was no bullying involved and told my sister to maintain a dignified silence.
The silent treatment shut those stupid playground puckers right up, I can tell you.
I digress. Thanks to her daughter’s literal take on the date conversation, Liz Astor realized how much Olivia wanted to enjoy the sort of nights out her mainstream peers take for granted.
Spotting a gap in provision for young autistic adults in her local area on the Surrey-Kent borders, she launched a not-for-profit group, Disco Dreams, late last year. The specialist nights in a community hall in Oxted, Surrey, are aimed at 18-30-year-olds with autism or moderate learning difficulties. “Why shouldn’t young people with autism have the same opportunities as others their age?” asks Liz.
Autism charities offer vital support for the autistic and their families, and there’s some great work being done by inclusive arts charities, but even without taking into account the fact their future is under threat in the funding cuts, opportunities for young adults with autism to socialise is patchy around the country.
The Disco Dreams nights are tailored specifically for those with autism; the DJ is aware of when noise levels overwhelm the young people, a chill-out zone provides a quiet space and entry is £10 but free to carers.
Aside from the social benefits, the positive impact of music, exercise and dance in relation to a host of health-related conditions is well-documented. For example, there was a great BBC documentary last year, Autism, Disco and Me, which showed how disco dancing transformed a young autistic boy’s life
Back on the Kent-Surrey borders, the next Disco Dreams night is scheduled for tomorrow night, Friday 21, if there is enough interest (email discodreamsdance@gmail.com for more information). The whole project is funded entirely by Liz, Lady Astor of Hever. Plugging a gap in provision in this way is very big society, but not every community is lucky enough to have such philanthropic verve in its midst. Let’s hope the venture is successful and inspires similar events elsewhere, so Olivia gets to eat her date and have one too.
The Miller Road project, Banbury, where disparate agencies are tackling youth housing as well as training. Pic: John Alexander
Aiming to crack two of the public sector’s greatest challenges – homelessness and the Neet issue – is daunting enough. Doing so with a multi-agency partnership spanning the sectors of local government, charity, education and housing makes the task even more ambitious. Read more about the scheme in Banbury in my Guardian Public article today.
Alex Scott, a 20-year-old psychology undergraduate at Surrey University, is spending a year with youth volunteering programme City Year London. The project, launched in September, involves 18-25-year-olds spending time in London primary schools, mentoring and supporting those younger than themselves. It is based on a successful American model of civic duty that began in 1988.
I’m sure everyone is weary of hearing how they can make a difference. We may tire of saying that you’ve changed the world by holding the door open for the person behind you or by bundling loose change into the upturned hat of a homeless person. True, being generally polite and selfless to one another is an honourable feat, but I’m writing about an organisation that requires a little, no, a lot more, commitment.
I’m a team leader for an organisation called City Year, which has emigrated from the USA after establishing itself in 20 other locations before reaching London, England, and it aims to have the same success that it has achieved across the Atlantic.
This year, City Year London has called together a diverse team of over 60 young people to volunteer a year of service with the agenda of making a real difference to the communities it reaches.
Primary schools in Hackney, Islington and Tower Hamlets were signed up to receive a group of 18–25 year old full-time volunteers in their school to act as role models and mentors in the key stage two (seven to 11 year olds) classes. As Team Leader for the Towerbrook team based in Sebright Primary School in Hackney, I lead a group of nine volunteers who are there from when the first child arrives in the morning, to when the last child leaves when school ends. The team take part in after school clubs, breakfast clubs, spend time in the playground and lunch hall every day and are a constant presence in the classrooms; often targeting children that teachers identify as needing extra support that may have not always been able to receive.
But as amazing as this may sound, the volunteers that City Year accepts through a strict interviewing process aren’t superheroes, no matter how they may look in their uniform red jackets and Timberland boots. Full time volunteering isn’t easy; and City Year asks a lot of its ‘corps members’. Expenses are offered for up to £100 per week and there is the opportunity to receive a Citizens Service Award of up to £1000 upon graduating the year of service, but that £100 can only get you so far and the early starts and late finishes definitely adds a few premature wrinkles. So why do it?
I heard about City Year through an advertisement on a placement website, having searched for year long placements in London with the aim of taking a year out of my University studies to work in a professional setting. I was offered the role of Team Leader, and although I approached it with trepidation, I have been able to see the developments that my team have made first hand. Sebright Primary School has welcomed us with patient and trusting arms, allowing us to take real responsibility over our effect in the school.
First thing in the morning, the volunteers run exercise routines known as physical training with the children in an attempt to combat lateness. During the school day, each volunteer has been assigned the task of daily supported reading for Key Stage One children, and a select few have the responsibility of improving the phonic skills of students who require that extra bit of guidance so that they don’t get left behind. The volunteers have taken on the task of an after school club as well, a sort of ‘citizenship’ session where the children who attend are taught skills and acquire knowledge that will help them both in and outside the school setting.
What has impressed me the most, however, is how well integrated the volunteers now are with the children at the school. It doesn’t seem to matter how early they have to wake up or how late they get to leave, each volunteer will always have a swarm of children around them at playtimes, and will never be too tired to join them in a game or listen to their stories for the week. I will only be in my position as team leader for a year, then I will return to university, but I have high expectations for all that City Year hopes to achieve based on how my team have performed thus far.
My time so far with City Year has made me a more confident and self assured person, but more importantly, it has taken a chip from my cynicism and shown me that through spirit, discipline, purpose and pride, anyone can hope to make a difference to the world around them.
