Category Archives: Uncategorized

Teens teach peers about respect and relationships

Oii My Size, a web-based project to raise awareness about respect in teen relationships
Oii My Size, a web-based project to raise awareness about respect in teen relationships

Late night on the estate, London. Two hooded and capped teen boys hang out, waiting for a couple of teen girls. Nervously the girls approach. Tiana used to go out with Stigz, but she’s not sure about this new guy he’s brought along. She thought they were going out to a party, but the boys lead them to this new guy’s place. His parents are out. Tiana fights her instincts to run. The door shuts. The boys start to grab them. The girls resist but they won’t stop. Everything happens so fast…

Thankfully these events are just part of an awareness-raising film for Oii My Size, a youth-led project targeting teens. The Oii My Size project. For those not down with the kids, “my size” means “my kind of girl”. The project is based on a colourful website full of videos and pictures to help teens understand what makes relations between teen boys and girls appropriate and respectful.

Storyboard-2b

The scenario described above is, however, based on a true story and reflects the reality of life for many teen girls. From serious assault like this, to sharing naked pictures of them (sexting) and being spoken to disrespectfully, life can be a minefield for girls when it comes to teen boys. A recent study by the NSPCC reported up to 40 per cent of young people had been involved in sexting, mainly under pressure from other schoolchildren while a conference in Manchester run by the area’s Safeguarding Children Board heard reports from schools that sexting had become a “daily problem” affecting girls as young as 11 years old.

No one knows this better than the group of 12 teen girls who have shaped Oii My Size.

The girls, aged 16, from Pimlico, London, met to socialise until becoming involved in a Peabody Staying Safe campaign. The girls had previously worked with youth arts company Dream Arts to produce a warning video about staying safe around boys and jumped at the chance to spread the message about safe relationships and the dangers of sexting (sending indecent images to an under-18 is illegal). The video, which starred the girls themselves, is now on the Oii My Size site.

All of the girls had some kind of personal experience with the topic – whether affected directly, like the events in the video, or having friends who had to move schools due to sexting, or being exposed to abuse such as a Blackberry Messenger “slags list” – where girls are publicly named and shamed.

The girls were supported by Peabody, Dream Arts and youth-led media social enterprise Mediorite, which I volunteer with. Peabody worked with the girls under its Staying Safe campaign, Dream Arts supported them to work together and provided them with a specialist support worker for two hours each week after school.

As well as tackling issues such as sexting , Oii My Size focuses on disrespectful chat-up lines (or “churpz”) and when to say no in teen relationships. The magazine-style website also has light-hearted videos of teen boys trying out their best (read:worst) churpz on the unimpressed girls, like “Do you work at Subway? Cos you got me on a foot-long” and invites users to “rate my churpz”. This cleverly avoids preaching by demonstrating that the disrespectful churpz just make girls feel embarrassed, intimidated and degraded. In other words –boys- they do not work.

oimysize_screengrab

The website also contains a video of Althia Legal-Miller, a doctoral research student at King’s College, London, and an expert in female adolescence and violence. She explains the dangers of sexting, promoting the key message of “trust your instincts” to teenage girls in relationships.

The girls behind the project say they “have chosen this topic as we have realized that we feel intimidated and disrespected due to our gender.” Team member Shanice George explains that “hopefully the website will educate young girls and boys that sexting is illegal, cos we didn’t even know it was illegal until we started the project, and if we didn’t know how were other people to know? Also we wanted to educate boys on how they talk to girls… and we are now working with a domestic violence woman from Peabody and we would like to make girls aware about domestic violence too.”

Lucy Ferguson from Mediorite adds that the girls felt the topic “was a real, urgent issue that just wasn’t being tackled at school, and that no one was tackling it…The project was a success because the girls really challenged themselves to think about the audience.”

The girls not only gained new skills from the project but also won a Silver Arts Award, an Open College Network accreditation in project management via Peabody and a Nominet internet safety award. The website got 2000 hits in 24 hours the day after they won the award, and has been promoted at school assemblies by the girls to over 3000 people.

The project’s audience will undoubtedly grow, as Lucy Ferguson explains: “Most youth groups don’t really explore what someone who doesn’t know them is going to think of their project, they don’t think about how to sell and engage the audience, but these girls really got that. So ‘rate my churpz’ – as a traffic-driver is a really sophisticated idea. It shows they understood the need to engage boys too, and draw people in with a sense of humour, and then engage them with the harder content. Most youth groups are completely unforgiving to the audience. This was a much more sophisticated approach.”

Shakespeare, song and special educational needs

Pupils at a previous performance at Godsen House
Pupils at a previous performance at Godsen House

It’s not the first pairing of the Beatles and Shakespeare, and nor is it unique for making the work of the bard more accessible, both in the theatre and in print. But it is among the most unusual and inspiring.

Students at Gosden House special educational needs school near Guildford will today perform an interactive version of Twelfth Night, influenced by and including music from the album Sgt Pepper’s Lonely Hearts Club Band. An inclusive performance for a young audience with complex learning difficulties, it aims to transform the audience into members of the Lonely Hearts Club Band, with a Shakespearean twist.

Globe Education runs theatre workshops at Godsen House school
Globe Education runs theatre workshops at Godsen House school

The show marks 10 years of an arts education partnership between the school and the educational arm of Shakespeare’s Globe – the first production a decade ago was Romeo and Juliet.

For the last few weeks, Globe Education education staff have visited the school to work with students and teachers and prepare for today’s show (the 10 year anniversary coincides with the retirement of Godsen headteacher and Beatles fan Jon David).

The event is billed as an “eclectic mix of Shakespeare and Sgt Pepper” and students have been involved in creating five original songs while others will be playing music as part of a live band at the start and end of the play. The children themselves become Shakespeare’s Lonely Hearts Club Band.

For Globe Education, the partnership has enabled practitioners to develop similar practices within the Southwark community where the theatre is based. The Globe is also involved in putting on relaxed performances which I’m a big fan of, and is training practitioners to work people on the autism spectrum.

For today, however, the focus is on Godsen’s talented students. To use the words of Lennon and McCartney in Sgt Pepper, “they’re guaranteed to raise a smile”.

Streetwise: building the confidence of vulnerable people

For Streetwise course participant Peter Lomas, the harassment came in the form of kids throwing stones. Another participant on Peter’s course had been so shaken by the shouting and swearing she faced when getting a bus that she was too scared to leave her own home. Others had been conned by people they thought were friends who persuaded them to lend them money they then never saw again.

Bullying of people with learning disabilities can take many forms. According to the charity Mencap, as many as nine out of 10 nationally have been a victim of some form of hate crime or harassment.

That’s why Connect in the North, a Leeds-based organisation led by people with learning disabilities, has been running Streetwise, a tailor-made course to boost the confidence and independence of people with learning disabilities who might be vulnerable to harassment.

The course, which ran last summer and is being provided again this August, it’s run in the summer to allow people who go to college to attend. It brings participants together in a supportive atmosphere to talk through strategies for staying safe when they’re out and about in the city.

In the gaps between the four sessions, held once a week, those on the course are encouraged to go by themselves and then report back on their experiences, with their goals very much tailored to their own experience and capacity so that they are not putting themselves at risk. It’s a simple idea, but an effective one.

For, as Connect in the North consultant and trainer Sarah Wheatley explains, even just a little bit more independence can make a huge difference to people’s lives.
“Some people went from always being met by their support worker at home to meeting them at the bus stop,” she says, “that might not look like big progress but that was incredible for them, that they were starting to get independent. And one woman who had been so knocked back by her awful experience of abuse said on the last day she was going to go to the theatre with a friend and get the bus there herself. She did it.”

A report published by Connect in the North last year showed that, among the successful outcomes experienced by 22 people on the course, one person who often got lost planned and practiced a new journey, another travelled in taxis without support while others used buses, train and a coach for the first time.

Being on the receiving end of verbal abuse – or worse – can be incredibly frightening, But it’s also the fear of the unknown which can prevent people with learning disabilities from getting out on their own. “It’s things like who do you go to if you get horribly lost,” says Sarah. “It’s about building strategies to keep safe rather than thinking the only person I can call on is my support worker or the police. So if you’re on the bus and you miss the stop, then you could just go round again. And in Leeds we’ve got a Safe Places scheme, so there are shops and other buildings people can go in if they’re lost or need help.”

Streetwise also addresses the issue of “mate crime”, an all-too common experience for those with learning disabilities. “It’s the biggest risk – there are probably more cases than somebody being abused,” says Sarah. “People will pretend to be their friend and then borrow money and not pay it back. It’s about teaching the people on the course that that is not all right and they are worth more than that.”

It’s a sad fact that with social care resources ever more stretched, the one-to-one support available for people with learning disabilities for activities deemed non-essential is unlikely to increase any time soon. But who can put a value on being able to take a stroll to the shops or a bus trip to a community get-together?

Peter, who’s one of the directors of Connect in the North, relishes his own independence and is a powerful advocate for the Streetwise model after being on the course himself. “I’d tell anyone it’s a good thing to do,” he says. “It tells you what is safe and not safe.”

Lizzie: people should see me with no limits, no barriers, no name tags

Lizzie in the studio
Lizzie in the studio

It’s no surprise that soul singer Lizzie Emeh has called her forthcoming second album See Me: “I want people to see me and accept me as I am. I want people to see me as a disabled person with no limits, no barriers, no name tags. I want to inspire other people with disabilities, for them to say– if she can do that, so can we. People with disabilities are always told, you can’t do this, you can’t do that. I want to change all that!”

Lizzie became the first person with a learning disability to release an album in 2009, now she hopes to complete her second, breaking new ground by using crowdfunding to produce it. Lizzie’s first album, Loud and Proud, took three years to make, produced with the support of arts organisation Heart n Soul, which she is still working with.

Lizzie, who was never expected to walk or talk following complications at birth, has performed at Number 10 and at the London 2012 Paralympic Games Opening Ceremony. She is hoping for more donations ahead of her crowd funding deadline for donations on Saturday – this week has been the final push for support. You can find out more and see Lizzie talking about her work and what her second album means to her here.

Singer Lizzie Emeh

Heart n Soul’s long-running multimedia club night Beautiful Octopus takes place on Friday 13 September on London’s Southbank, with live performances, DJs and “interactive zones” where the audience can participate in the music, dance and other art-related events and activities showcased.

* To donate to Lizzie’s campaign for her second album, see this link

How the media must mind mental health

Stephen Fry’s recent disclosure of his attempted suicide last year highlights that mental illness does not discriminate between the “haves” and “have nots”, the famous and the “ordinary”. None of us are immune from the feelings Fry described.

The representation of mental illness in the media in recent years (you need only think of Frank Bruno’s treatment by the tabloids), in television dramas and soaps has not, over many years been empathic. People with mental health issues seem to be either suicidal or mostly violent and dangerous – the two extremes of mental health geared more towards boosting viewing figures than portraying realism and authenticity.

These exaggerated displays of mental health only perpetuate the stigma and stereotypes. In fact it would be fair to say media representation has often been ignorant, discriminatory, and at times criminalising towards the mentally ill. In fact earlier this month, the actress Glenn Close apologized for her depiction of a mentally ill woman in Fatal Attraction.

Sensationalistic storylines and stigmatising stereotyping have only served to misinform and cloud the viewers image of someone who is ill and needing help – but that someone could be any one of us at any time of our lives.

The Time To Change media advisory service, which I am involved in, was set up to change negative perceptions and offer advice and guidance to promote more realism and sensitivity when covering mental health storylines. Advising the soap Emmerdale on a storyline featuring Zak Dingle, the popular loveable rogue, felt like living a double life for a year as the programme documented how his mental ill health spiraled downwards. Emmerdale provided me with a unique test: to positively influence a popular soap storyline. It afforded me the opportunity to use my own personal experience of depression, and lifetime working as a qualified mental nurse, to bring realism and authenticity for a change. I took on the role with a gusto I had not felt for many years.

I immersed myself in the role to the point of drowning. I knew that only by doing this could I truly empathise with Zak’s plight and engage the viewing public. I read countless scripts going over each one with a fine toothcomb burning the midnight oil. I spoke for hours on the telephone with Fiona, the researcher, and my mobile phone was constantly in use for texting and talking over the scenes. I so wanted this to be right.

I felt duty bound to make a difference having been given this opportunity. I advised that showing Zak’s vulnerability and fragile emotional state, rather then the often stigmatising “Mad axeman is dangerous” image, would encourage the viewer to also empathise more. This worked well and delivered the right message to the viewers.

I was made redundant halfway through this work and understandably my self-confidence and esteem was badly dented. In fact it became non-existent. Conversely my work with Emmerdale helped me regain this. I felt I could empathise more with the Zak character as my mood plummeted. I became Zak, or at least this was how I felt at the time. We walked the same troubled path for a while.

The advisory service will continue to influence and craft storylines around mental health. We will continue to provide personal advice and information to researchers, directors, journalists and the stars themselves to make mental health depictions credible. We will provide guidelines and key tips such as to try to allow the characters storylines time to develop. And that recovery can be a long process.

We will encourage the listening of peoples personal stories, and encourage careful thinking about how the other characters in the soap will react. The use of humour is not necessarily a bad thing and bringing in some humour and warmth will challenge peoples often misinformed stereotypes of mental health.

Mental illness doesn’t make people bad so by reinforcing this we can discourage programmes using a mental health storyline to try and explain bad or strange behaviour. For far too long criminalisation of the mentally ill has existed on TV and Radio and this misperception must change.

We have a long road to walk in our media advisory work to get this right. Or as near to accurate as we can. It is crucial that we walk this long and no doubt winding road together. Through collaboration and mutual respect we will make damaging stereotyping of mental illness a distant memory in the media. It is a win-win situation for all concerned.

* Read more thoughts from Lol on the Emmerdale storyline here

* Tips for storylines featuring mental health issues that create dramatic and interesting narratives without alienating audiences, resorting to stereotypes or using a mental illness to try and explain “bad behaviour”:
– to make a charactor plausible and accurate, speak to as many people who have mental health problems as possible. They are the best consultants available and most want to see accuracy on screen
– think about your camera shots. Certain mental health conditions can lead people to feel isolated or to experience altered reality. This can be reflected through close up shots, POV shots or hand held
give the storyline enough time to develop. It is common that symptoms of mental health problems will manifest over a period of time and build in intensity, rather than develop and explode in the space of one episode
think about how other characters react. Stigma and discrimination can be as bad as the mental health problem itself for many people. Can you show any empathy from others?
get expert advice from mental health charities and experts to ensure that the symptoms you are showing on screen are relevant and realistic
think of your dramatic climax carefully. Most people with mental health problems are not violent so it is unrealistic for a storyline to always end in violence or homicide

Based on information from the Time to Change media advisory service. Read more here.

Ordinary residence, extraordinary mess

Disabled people in residential care who want to live more independently are being prevented from doing so by funding wrangles between local authorities” – that’s taken from a piece I wrote three years ago, but since then little has changed.

The original piece is on the Guardian website:

"Caught in a trap: disabled people can't move out of care",  The Guardian October 2010
“Caught in a trap: disabled people can’t move out of care”, The Guardian October 2010

Here’s the mess: an individual’s “ordinary residence” is usually in his or her original local authority area, so if a council places someone in residential care outside the area, it remains financially responsible.

But when someone decides to move from that residential care in the new area into supported accommodation within the same (ie “new”) area, their original authority argues that it is no longer responsible for funding. However, the new authority – where the person actually lives – argues against funding someone not originally from the area. The result – limbo.

Confusing? Not really, what it boils down to is that councils are passing the buck over people’s care, effectively dictating where people should live -and all the while, individuals themselves appear to have no say. And quibbling over the care bill will only get worse as local authority cuts continue to bite.

I’ve been involved in a piece of work published today by social care organisation Voluntary Organisations Disability Group. The VODG has previously demanded action to resolve such ordinary residence dilemmas and, this time, it argues that the Care Bill offers ample opportunity to finally tackle the challenge. The new briefing, Ordinary residence, extraordinary mess, is available from the VODG website, with this post outlining how the situation has become “business as usual” in many areas.

One way forward, which the bill could accommodate, is strengthening the duty on local authorities to cooperate with providers and with each other to prevent delays in funding when people want to move from one care setting to another. The Epilepsy Society, for example, which contributed to today’s publication, estimates that in the last three years it has covered gaps in fees totalling £350,000 and “staff time involved in chasing fees over the same period has amounted to approximate 340 days across all departments including senior and service managers, finance and administrative staff”.

Here’s just one story from today’s publication, from a social care provider in central England:
“Joe moved out of residential care into supported living accommodation nearby, run by the same charity provider. Council A, where Joe is now ordinarily resident, is refusing to take over funding from Council B which had previously paid his out of county residential care fees. Some 14 months later, the social care provider (a medium sized charity) is owed nearly £50,000 from Council A for this one client. Members of the charity’s finance team chase Council A each week and include copies of previous correspondence and agreements. Council A continues to delay payments, giving the provider different reasons for not paying and passes the query around different council departments. The charity has continued to provide care and covered this gap in fees.”

While the powers-that-be seem unwilling to either acknowledge the scale of the problem or indeed have the confidence to untangle the mess, vulnerable people across the country remain in limbo, unable to move to the place of their choice because of bureaucratic wrangles.

As Anna McNaughton’s mother told me three years ago: “All Anna wants is to live in a suitable home – it’s a basic human need, not a luxury.” It’s a desperate situation that three years on, her words still have the same resonance.

Jenny’s job, and why we need more like it

Jenny Dimmock at work, City Hospital, Sunderland (pic: Positive Negatives)
Jenny Dimmock at work in the pathology lab (pic: Positive Negatives)
Jenny Dimmock works in a pathology lab. She and her scientist colleagues handle between 3,000-4,000 blood samples a day. The 21-year-old is also an ambassador for younger students, speaking about her experiences at conferences, like how part of her job involves placing specimens on a robot. Handling the robot, however, as her workmates say, is probably the easiest part of her working life.

Jenny, who has Down’s syndrome, trained on the job with the Project Choice scheme at City Hospitals Sunderland NHS Foundation Trust before she won her paid post.

As colleagues point out, while she was learning about the intricacies of the path lab, she was also learning about everyday practicalities like getting to and from her job on time or how to interact in the workplace. This week, her achievements are recognised with an award to celebrate Adult Learners’ Week this week.

We are more used to hearing about the failings of the NHS when it comes to its treatment of people with a learning disability. Only today the NHS ombudsman outlined the catalogue of mistakes which contributed to the death of Tina Papalabropoulos, a young woman with physical and learning disabilities.

In March, the government’s Confidential Inquiry into premature deaths of people with learning disabilities found that 37% of deaths of people with a learning disability who died between 1 June 2010 and 31 May 2012 in the South West of England were avoidable. Put bluntly, patients with a learning disability died whilst they were supposed to be receiving treatment from the NHS.

If attitudes are to change among organisations which fail the vulnerable, one way forward is to make them more inclusive as employers so they reflect individuals from all walks of life. It’s one thing to stick up a learning disability awareness sign to help staff recognise vulnerable patients – as I spotted in my local hospital (it’s a good start) – but it’s entirely another to have people with learning disabilities on your radar as potential work experience students, interns or trainees.

Public sector organisations especially are encouraged to be more inclusive and diverse through their board membership and recruitment policies, with the Equality Act binding organisations to develop a more diverse workforce and uphold equal rights. But people with learning disabilities are one of most overlooked groups in the labour market with most employers unaware of – or perhaps put off by – the kind of support that learning disabled employees might need.

As Mencap points out in its campaigning material, people with a learning disability are more excluded from the workplace than any other group of disabled people. According to Mencap, less than one in five people with a learning disability work (compared with one in two disabled people in general), but at least 65% of people with a learning disability want to work. Of those people with a learning disability that do work, most only work part time and are low paid. Just one in three people with a learning disability take part in education and/or training.

Project Choice in Sunderland shows what can happen when employers take a more inclusive approach to recruitment and training. The scheme aims to provide work-based learning and experience for young people with learning disabilities.

The project starts with 16-21-year olds doing half a day a week work experience for six weeks. Students have one to one sessions with a mentor to help develop an understanding of the world of work. Next is an unpaid internship for four days a week in a work place and one day in college. Students, who can have up to three placements in the year, again have a named mentor and progress to working independently. Learning is reinforced in the classroom and interns undertake a work qualification like a Foundation Learning Programme or NVQ.

The final part of the scheme is, hopefully, an apprenticeship, job – as Jenny has proved – or further learning.

Jenny started with work experience under Project Choice and did an internship in 2010 when she left school. She spent a year as an intern in three departments: on a clinical ward where, among other things, she used her sign language skills to communicate with deaf patients, then in the hospital pharmacy and in the laboratory. She learnt on the job but also had one day a week at college learning about things like employment health and safety. As she says, “I have had amazing times since starting my work experience and have fulfilled my ambition of getting a permanent job.”

Project Choice isn’t, of course, the only supported employment scheme of its kind but it’s a pathway to work and training in a sector not usually open to people with learning disabilities. It’s the kind of scheme that can change attitudes both within healthcare and in wider society. We just need more like it.

* New figures released for Adult Learners’ Week, which ends on Friday, showed that the proportion of young people aged 17 – 24 taking part in learning has fallen by seven percentage points in the last year. There has also been a fall of six percentage points in the proportion of unemployed people participating in learning. The survey for NIACE interviewed 5,253 adults, aged 17 and over, in the UK 13 February–3 March 2013.

“It’s important that while I’m having fun, Stanley is having a great time too”

Stanley Holes is, says his little brother Albie in the brief video diary above, simply “the best brother I could ever have.” Albie’s love for his 16-year-old brother is reflected in this short film which I just watched and wanted to share. Produced for Autism Wessex, the charity that supports Stanley, it stands out for me because it’s presented from a sibling’s perspective: “I love him very much,” says 11-year-old Albie of his teenage brother, “and he is very important to me and my family.”

Diagnosed with autism at three, with no speech and, as Albie says, “little understanding of the world that surrounds him”, Stanley hadn’t been to an autism-specifc setting until last year when he started Autism Wessex’s Portfield School in Dorset. Underlining the vital need for autism-specific support, only now is Stanley receiving proper speech and language therapy – and he’s thriving on the specialist care and education. In one of the previous schools he was at, his family was told that as Stanley was autistic, there was no point in him getting speech therapy since his condition made communication impossible.

Stanley was regarded as a child whose behaviour challenges, his complex needs mean he is prone to anger and violent outbursts (“episodes”, as Albie explains in the film). Yet his story shows that even in complex cases, positive outcomes are possible.

Stanley has started to shows more awareness of his surroundings, and is becoming more independent, using signing with more confidence. Younger brother Albie, meanwhile, is more assured about talking to people about his older brother and how autism affects him and his family’s life.

Stanley’s family realised after a few short months that he seemed much happier at his new school compared to previous special needs environments; as Albie says in the film, “It’s important for me to know that while I’m having fun, Stanley is having a great time too.”

Stanley is a weekly boarder at Portfield, coming home for the weekend, where Albie his parents, plus fellow siblings Mabel, 15, and Elsie, 7, are keen to spend time with him. Before starting at the school, as their father Paul says, Stanley’s behaviour was having an adverse impact on his siblings. Now, says Paul, the change in the family dynamic and in Stanley is “the difference between living and existing”.

Art thinks outside the box

Head of David Rushbrook, James Lake's sculpture of the baritone
Head of David Rushbrook, James Lake’s sculpture of the baritone

One glance at James Lake’s giant 3D portrait of baritone David Rushbrook, and you may never look at a cardboard box the same way again.

Lake’s showstopping sculpture, created through the painstaking layering of cardboard, is intended to move, sing and perform alongside the other performers on stage (the head has already featured alongside the opera singer in Glyndebourne).

As the artist explains on his website, he chose the “inexpensive, commonplace and recyclable” medium because he “wanted to sculpt beyond the traditional materials and without the need of an arts studio”. Lake’s right leg was amputated after bone cancer at the age of 17 and his work focuses on humanity, strength, and vulnerability. His aim is to create work that breaks down the barriers in the art world.

The giant piece of Rushbrook, who has a learning disability, is just one big reason to visit Shape Arts‘ pop up multimedia gallery in London, Shape in the City, which is now open until May. The disability-led arts charity works to improve access to culture for disabled people and Lake is one of 30 disabled or deaf artists featured over five floors and 60,000 feet of exhibition space.

Lake’s 3D work head is shown alongside prints, paintings, film and video, poetry, performance art and installations. The showcase features established as well as up and coming artists plus pieces from the London 2012 Cultural Olympiad programme: ‘Unlimited’.

Here’s a bit more information about three other pieces on display:

Sitting Without Purpose’, James Lake's depiction of his father
Sitting Without Purpose’, James Lake’s depiction of his father

Lake’s life-size Sitting without Purpose depicts his father during redundancy, aiming to reflect a man contemplating the challenges of life.

Noemi Lakmaier paints 500 pairs of shoes in  paint used used to mark accessible parking bays
Noemi Lakmaier paints 500 pairs of shoes in paint used used to mark accessible parking bays

Visitors to the exhibition can watch Noemi Lakmaier live or via webcam painting 500 pairs of shoes in the kind of paint used to mark accessible parking bays in homage to her 2008 piece Experiment in Happiness. Lakmaier’s work explores ideas of the “other”, such as how the individual relates to surroundings and identity. By the time the pop up gallery closes, it will be filled with hundreds of painted shoes.

Chrisopher Sacre's 'See What This Man Gave Birth to After Using 2000 Condoms in 22 Days'
Chrisopher Sacre’s ‘See What This Man Gave Birth to After Using 2000 Condoms in 22 Days’

Chrisopher Sacre‘s artistic epiphany, as he himself has said,”may have arrived in an unexpected form” – but his work has been transformed since discovering “a happy marriage between condoms and plaster”.

* Shape in the City, in partnership with Photovoice and Action Space, 40 Gracechurch Street, London, EC3V 0BT, 10:00am to 2:00pm. For more information email popupgallery@shapearts.org.uk

Puck, peppermint tea and posh frocks: my fabulous sister

With my fabulous sister, Raana
With my fabulous sister, Raana

Learning disability charity Mencap has a marvellous blog, which features, amongst other things, some very personal contributions. The site recently featured a lovely and touching piece from journalist and Mission to Lars filmmaker Kate Spicer on her brother Tom (he has Fragile X syndrome, like my sister Raana) and I contributed some thoughts too, so here’s Raana, in rhyme:

The Fabulous Raana Salman
What does “puck off” mean, you asked,
When a playground jibe you misheard,
It’s an insult, we said, with a bittersweet laugh,
And “puck” is quite a rude word.

You’re older now, and more in the know,
And you’re still just brilliantly funny,
We love how you call my other half “bro”,
And our mother is always called “mummies!”

You constantly amaze us with all that you do,
You garden, you cook and you bake,
You’re a music fan who likes her tunes loud,
Full volume – bloody early – at dawn break.

You love Chinese food and movie nights in,
And sometimes the pub if it’s near,
Remember your fury when we ordered you juice,
And you indignantly cried: “I want beer!”

“You’re fried!” you shout, knowingly wrong,
After watching The Apprentice on telly,
You say it when angry or to make us smile,
And it shows you’ve fire in your belly.

You’re creative and busy and do stuff we can’t,
You’ve woven and painted and grown,
I love having you stay so you’re able to see
How your art brightens up my home.

You’re thoughtful with gifts, matching present to person,
(You know I like peppermint tea)
We joke how “mummies” foots the bill sometimes,
And you say of your gifts: “They’re for free!”

You love baggy sweatshirts, they comfort and cloak,
You categorically refuse a posh frock,
You know your own mind, you’re fabulous and kind,
And basically Raans, you rock.

* The film Mission to Lars will be released on 8 April, with proceeds going to Mencap to help support people with a learning disability and their families. The film follows Tom Spicer who has Fragile X syndrome, a form of autism. He has a dream to meet his hero – Lars Ulrich – and his sister Kate tries to make that happen.