Category Archives: Third sector

No-one should ever have to feel like they are not worth helping

Richard Turner and his volunteer befriender, Delia Jones
Richard Turner and his volunteer befriender, Delia Jones

“No-one should ever have to feel like they are not worth helping…”

I saw these striking words on a postcard displayed at a recent event to celebrate volunteering. With the massive cuts in public spending and the unprecedented reform of welfare, it’s not hard to see why vulnerable people might think they don’t deserve any support.

The words, written by someone with experience of volunteering, referred to the vital work of London-based charity the Octavia Foundation. In full, the handwritten postcard read: “No-one should ever have to feel like they are not worth helping and Octavia does such a good job of making sure that doesn’t happen.”

The event was Octavia’s annual volunteer awards, honouring some of the 250 local people who have given their time to others through the charity over the last year. Actor Tamsin Greig presented awards to those who support work with local people affected by ill health, social isolation, unemployment or poverty.

The foundation operates in the west London boroughs of Westminster, Kensington and Chelsea, Hammersmith and Fulham, supporting older people, working with young people, focusing on training and employment and debt advice. It runs regular groups and activities as well as some inspiring one-off projects which I’ve written about in the past.

The foundation works in one of the most affluent parts of the capital, but there is much for the charity to do in the pockets of deprivation that also exist.

I helped judge the charity’s awards, reading some incredible testimonies from people who benefit from the help of volunteers.

Delia Jones, who volunteers as a befriender for example, was highly commended. Delia was nominated by Richard, who she visits and who was involved in a serious car accident almost 40 years ago – both are pictured above.

Richard’s mother Joyce Turner, 95, who also nominated Delia, explained: “What Delia does for Richard is vital. He will tell Delia what kind of book he wants, as we have a lot of different kinds and we arrange them alphabetically so she can find them. Delia seems exactly right, and we love her visits because it gives Richard such pleasure to see her. The importance of her visit every week is that he only goes out three times a week, and if its raining or bad weather, she is the only thing that he looks forward to. She never lets us down and we can trust her.”

With welfare cuts and a squeeze on public sector funding, many support services are under threat so the work of volunteers is vital in helping society’s most vulnerable people. Some of the most innovative ideas – and inspiring, unsung heroes – are found in small, community-based projects that often don’t get the attention they deserve. The recent Octavia awards are an opportunity to put that right and focus on the important work carried out in local areas.

A full list of winners and background to the awards is on the Octavia Foundation website.

Storytelling for people with learning disabilities: ‘We just natter away’

Lisa Johnson of the writing group Story Balloons (pic: Jonathan Raimondi)
Lisa Johnson of the writing group Story Balloons (pic: Jonathan Raimondi)
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Lisa Johnson is a writer. The 30-year-old from Sheffield recently had a book published, a collection of poems, songs and stories put together with fellow authors from her writing collective. Today she will take part in a workshop in her home city, explaining the creative process and encouraging others to write.

She says of Story Balloons, her weekly writing group: “It is something I look forward to.” Uptown Boy, her poem about love, she adds, makes her feel “very happy”. “I always wanted to write,’ she says, adding that writing has changed her: “I feel more confident, proud of what I’ve achieved.”

Story Balloons helps counter stereotypes and improve confidence, and has led to a published book – read more in my piece in the Guardian

Why is it OK for politicians to ignore people with learning disabilities?

More than one million people with learning disabilities are eligible to vote – so why are they ignored by politicians?

My interview with Gary Bourlet in today’s Guardian explains how the veteran disability campaigner wants to give people like himself, with learning disabilities, a greater voice and presence so they feature in places other than “secret footage on Panorama”, referring to Winterbourne View, where the abuse of patients with learning disabilities was exposed by the BBC in 2011. To this end, he has set up People First England, to encourage adults with learning disabilities, rather than care professionals, to participate in politics and appear on TV and radio discussing stories that affect them.

“We want people speaking for themselves about issues that concern them, rather than the professionals,” he says. “We want greater powers to be seen, to vote, to be included, have the same opportunities in social life, education and employment as everyone else.” Bourlet, 55, has launched the user-led charity with disability rights activist Kaliya Franklin.

You can read the rest of the piece here while my post from yesterday adds some more context to Bourlet’s message.

Investigation into bullying at special school sparks questions for Winterbourne improvement scheme

Fresh questions are being asked about the government’s beleaguered post-Winterbourne drive to improve care for learning disabled people. An investigation is underway into “bullying accusations” at a special school run by a charity whose chief executive is trying to reinvigorate the flagging £2.86m government improvement scheme.

Bill Mumford, chief executive of MacIntyre which runs Womaston School and Children’s Home in Wales, offered to stand down as director of the Winterbourne improvement programme after allegations of mistreatment at Womaston. The government programme launched after the abuse of learning disabled patients at the Winterbourne View privately run unit in south Gloucestershire, abuse that was exposed by BBC’s Panorama in 2011. It aims to move individuals out of institutional, large-scale, long-stay units and into community-based accommodation.

Concerns about the behaviour of some staff towards children at MacIntyre’s specialist residential service were reported by a member of staff to the school principal in March and police and social services are investigating the claims. The school, home to students aged aged 10-19 with autism, complex behavioural needs and learning disabilities, will close in July with the young people moved to alternative placements. Staff have been suspended, other staff drafted in and, says MacIntyre in a statement, “the alleged behaviours are not occurring in the service now”.

The investigation into Womaston is expected to last several months and there are no more details about what the allegations involve. A BBC online story refers to “physical abuse”, a statement from MacIntyre describes “concerns” about the “behaviour of some other staff members” while a personal statement from Mumford mentions “a small group of my staff…suspended following accusations of bullying”.

The incident has sparked fresh criticism of the Winterbourne programme run jointly by the Local Government Association and NHS England. It aimed to move everyone out of such assessment and treatment units by 1 June 2014 but after little progress (3,250 people with learning disabilities and autism are still in private or NHS-run settings like Winterbourne View), its previous heads left and Mumford took over in January, on secondment from MacIntyre. New NHS figures show only 256 out of 2,615 in-patitents with learning disabilities or autism have dates for transfer into community settings and more are being admitted to NHS settings than moved out.

The death of Connor Sparrowhawk recently reignited debate about the use of such units that cost around £3,500 per person per week and leave people at serious risk of neglect and abuse.

Mumford has issued a personal statement “re the investigation at MacIntyre and my continuing role in support of the Winterbourne prog” (that’s a statement taken from Twitter). In it, he accepts concerns that while he is charged with a national role to improve the care and support of learning disabled people, employees of the organisation he presides over were carrying out exactly kind of behaviour he’s trying to stamp out. He also addresses the fact the drive has been less than successful.

He says in his statement (the square brackets are mine): “It is a very real concern to me and the [Winterbourne improvement programme] partners that the trauma experienced by individuals and families at Winterbourne View and elsewhere should not be exacerbated by the thought that the person responsible for the programme [is] being tainted with serious problems in his own organisation. Indeed it is the unacceptable stories of individuals and families that motivate and challenge us all to step up and do better. Therefore my second decision was to contact the Joint Improvement Partners, including personal phone calls to the representatives of people with learning disabilities and families, to inform them of the situation and offered to voluntarily step down. This couldn’t come at a worse time for the programme partners as it is well know[n] that complexity of achieving the original concordat commitments has been a struggle.”

The MacIntyre chief executive adds that the charity took immediate action: “There has been no cover up, no prior issues of this nature have been raised before and the families and placing local authorities and alerting member of staff are all completely satisfied with MacIntyre’s actions to date. Therefore MacIntyre is dealing with a very serious situation exactly as they should – it is an example of how things should happen and maybe this is an important lesson for the programme to share.”

While the investigation by Powys social services and police continues, Mumford says he is “not only restricted about what I can say but actually what I know. However as soon as it is completed I will share what we have learnt regardless of how painful that might be.”

Discussion (so far mainly on social media) involves support for Mumford and the Winterbourne programme’s aims as well as criticism about why a statement was only made public this morning and why there was not more immediate public transparency after the claims were lodged with the relevant authorities.

*This post was updated this evening in an attempt to clarify “bullying accusations” and add figures and links relating to the number of in-patients with learning disabilities.

Charity helpline supports abuse victims with learning disabilities

If Simon Tovey gets anxious before using the bathroom, you might assume his panic is linked to his learning disability. Maybe the public convenience is unfamiliar?

Yet Tovey’s fear is the result of the abuse he suffered at Winterbourne View assessment and treatment unit. He featured in the 2011 Panorama expose of the privately run unit near Bristol where he was kicked, punched, verbally tormented – and threatened with having his head put down the toilet.

Tovey’s mother, Ann Earley, says of her son, 40: “The Simon that returned to us was not the same one who left. He was profoundly affected and unable to put into words how he felt. He has a long-term fear of toilets – that’s just one small thing. The other impact is incalculable, like his fear about what’s going to happen next.”

Three years on from the Winterborne View scandal, the effect on residents has been huge – but a specialist helpline offers support for them and their families. Read the rest of my piece on the work of the charity Respond on the Guardian’s social care network.

Ann Earley and her son Simon, who was abused at Winterbourne View specialist unit in 2011
Ann Earley and her son Simon, who was abused at Winterbourne View specialist unit in 2011

Creative minds drive debate about learning disability art

Gold Run, an opera at Glyndebourne (pic: David Illman)
Gold Run, an opera at Glyndebourne (pic: David Illman)

“People say to me how great it is that I ‘help’ people with learning disabilities to make their own films but I don’t do this out of charity. Far from it. I do what I do because I am excited by the amazing talents of the people I work with. Filmmakers with learning disabilities have an ability to offer a view of the world that I don’t. I couldn’t even dream of the scripts that our members write.” So says Will Sadler from Beacon Hill Arts in Newcastle, reflecting just one view about “learning disability arts”.

It’s the same sentiment expressed by Richard Phoenix, who runs music organisation Constant Flux, and who I’ve quoted elsewhere on this site : “Often when I talk to people about working with people with learning disabilities in music I encounter the “Aww…. That’s so nice” attitude, which isn’t intrinsically wrong in any way but it seems to me to represent a feeling that people with learning disabilities are only capable of emotionally neutered art, of things that are ‘nice’ and ‘happy’ which from my experience is completely off the mark.”

So what does that phrase “learning disability arts” mean to the public? What constitutes “good art” is a notoriously subjective and personal view, but what is the quality of work being produced by people with learning disabilities? How is such art produced, judged, presented or received differently to “mainstream” art? How far do non-learning disabled artists who collaborate with people who have a learning disability lead the project – and what standard of art is produced?

The Brighton-based project, Creative Minds, is hoping to lead a much-needed national debate about these kinds of issues. Funded by the Arts Council, Brighton and Hove city council and the John Ellerman and Paul Hamlyn foundations, Creative Minds is run by a committee of learning disabled artists who want to “challenge perceptions of their work being labeled as ‘good therapy’ and have a national discussion about its quality and how that can be defined”.

Horse, watercolour by Carol Chilcott
Horse, watercolour by Carol Chilcott

Leading arts charity Carousel is facilitating the project with some good food for thought already given a platform via the Creative Minds website and the first in a series of conferences will be held in Brighton a week today, on Monday 10 March.

The aim is for learning disabled artists to showcase their work and lead discussions about it. The conferences are targeted at their peers, arts organisations, critics, funders, venue programmers and anyone interested in learning disability led arts

Performances, art and discussion includes Action Space London, Chris Pavia and Stop Gap Dance Company, Corali Dance Company, Face Front Theatre Company, Oska Bright Film Festival and Rocket Artists.

Laundry Boy, Face Front Theatre
Laundry Boy, Face Front Theatre

The Creative Minds steering committee explains that “as individual artists and performers we have had our work not taken seriously when we have shown it in theatres, galleries and on stage”. The group’s aim is “to change peoples ideas and perceptions and the way they see us”.

Hopefully the project and conferences will lead to a high profile debate that reaches beyond the learning disability arts sector.

As performer Bethan Kendrick writes on the Creative Minds site, “Having a learning disability informs your art and helps you produce work of a high quality. I have found that my confidence has grown because I perform my work to audiences. Thinking about quality will help you develop your skills, especially as you work with your company and your director. I take my performance work very seriously. This gives me great confidence in my art.”

• The Creative Minds conference is on Monday 10 March, 10am to 5pm at the Brighton Dome, Church St, Brighton (the venue is wheel chair accessible)
• Constant Flux presents the Fish Police on tour from next month, see website

Home ownership for vulnerable people

How can someone with learning disabilities or mental health issues possibly own their own home? With a long-established but seldom-used form of housing called shared ownership.

The power of the part-rent, part-buy scheme to transform lives is illustrated in a new report, Space to live, published today by social care and housing provider Advance and Disability Rights UK. I was involved in writing part of the report and met home owners like Xenia Kyriacou, who is non-verbal and has complex needs.

Once asked to leave a restaurant after showing challenging behaviour and overturning a table in frustration (she was overwhelmed), only a few months ago, in another local restaurant near the two-bedroom flat she part-owns in east London, Xenia enjoyed a birthday lunch, was presented with a card from the owners and offered a discount on her return.

The change has happened since she moved out of residential care and into her own place.

Home ownership encourages confidence and independence, as was obvious when I met some of the home owners like Xenia and learned more about their experiences. The increased stability can reduce the costs of social care packages and help people get involved in their local areas. The timely report comes as the government considers funding plans for housing for post-2015, including its home ownership for learning disability (HOLD) programme.

You can read more about the report here on the Voluntary Organisations Disability Group website and on the Advance website.

Images of caring captured on camera

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These candid images of caring are among the photographs in a new exhibition that focuses on the role of carers and disability.

Capturing the bond between disabled children and young adults and their parents, professionals, siblings and friends, tonight’s show from the charity Netbuddy raises awareness of the challenges faced by young disabled people ahead of the UN’s Children’s Day on Wednesday. The photographs are a refreshing take on the images of disability which usually appear in the public domain; although representing the difficulties experienced by the children and young people and their families and carers, they also present disability and caring in a family and social context.

The Faces of Caring exhibition by Netbuddy, an online community for parents, carers and professionals looking after people with special needs, includes photographs of people with complex medical needs and a range of learning disabilities.

* Faces of Caring starts at 6pm today The Hub, Tanner Street, London SE1. For more information, contact Netbuddy

More autistic people should be able to volunteer

David Braunsberg
David Braunsberg
My experience proves the benefits of volunteering for people with autism. I was born in 1959 and diagnosed with autism in 1963, at age four. I was one of Sybil Elgar’s first pupils at her progressive school. She was a pioneer in autism and helped develop my language and communication skills.

I then attended a local primary school in Edinburgh, where my mother and I moved, and a mainstream secondary school in London when we moved back to England in 1972. Art was my strongest subject (I passed several O Levels) and I studied furnishing design and textiles at the London College of Furniture. I got a diploma in art and design. I took more courses after that at a local art college and learned things like etching and print making. My most recent works are computer generated greetings cards (see the website).

Following a traumatic event in 2008, I developed severe depression and anxiety . After some time attending a psychiatric unit, social services support and help from my GP, a social worker suggested volunteering and I was put in touch with Volunteer Centre Camden.

It was through the volunteer centre that I started working at the Holy Cross Centre Trust in July 2011. It is a secular organisation in King’s Cross, London, which supports mental health recovery as well as homeless people, refugees and asylum seekers.

I hadn’t volunteered before although I’d had some experience of work. The place where I worked previously was a company providing unpaid employment for people with mental health issues and was run as a social service. The aim was to manufacture and distribute large volumes of greeting cards to the mass market but I wasn’t happy there. The tasks I was involved in were printing and packing greeting cards and using Photoshop on a computer for designing cards for later use and batch production.

I did not get satisfaction there as I was mostly restricted to printing other people’s designs and this did not allow me to express my own ideas. Their bias was to produce Christmas cards and my inspiration for designs comes from many sources which are irrelevant for Christmas. The repetitive tasks were soul-destroying.

But at the Holy Cross where I am now, my role is to help and encourage people to draw and paint, also to set up and tidy the art materials. I work noon to 3pm. Everyone is kind and friendly and there is a positive buzz to the place. Not only is helping out so satisfying and rewarding, it helps me to gain significantly in confidence and the thrill of feeling respected and valued as part of a team is fantastically liberating. I have made many friends and can see myself thriving there well in the future.

Suitable volunteering should be open to more autistic people as the skills required such as attention to detail, reliability or some special talents are well suited to the autistic trait and may prove to be great assets for the workplace. On their part autistic people can benefit from mixing and socialising with people of different nationalities and backgrounds and feeling respected and valued. To me the regular routines, the structure to the week and the sense of purpose in society are most satisfying.

Autistic people may encounter some difficulties. For example, travelling on public transport, especially long distances, or unintentional and misinterpreted challenging behaviour may cause problems. But with foresight, awareness about autism, guidance and the right support I see no reason why autistic people should not be accepted and be very successful doing voluntary work. I am quite sure that, giving the right conditions, volunteering can be “autism friendly”.

The fact I am high functioning autistic has presented no problems in my volunteering. One of the benefits of working there is that it has a knock-on effect on my closeness, love and affection towards members of the family. I now feel so optimistic about the future. Socialising now comes with ease. I am thrilled with life!

* See more of David’s work on his website

Hope, health and happiness: new show at arts charity

Aaron WJ Pilgrim , Martika
Aaron WJ Pilgrim , Martika

Hope is the focus of a new exhibition by artists from the CoolTan arts and mental health charity.

Stayin’ Alive, which opens today, includes works in different media including oil on canvas, acrylic, printmaking and sculpture. The stigma-breaking south London-based organisation is run by and for people with mental health issues and encourages the idea that mental wellbeing is inspired by creativity. The recent World Mental Health Day was the impetus for the artworks.

Aaron Pilgrim has four pictures in the exhibition and has been involved in CoolTan for five years. His Warhol-like Music (Martika) (above) is about the impact of music on mental health (“and I love listening to the 80’s pop star Martika”). Aaron’s last picture, Drawing futureristic cars (Michael), reflects how he helped to frame the exhibition and taught two volunteers how to mount, cut and frame pictures in the exhibition.

He says of The Globe Theatre & The Tate Modern “the arts help keep me well, especially painting, and these two places represent the arts. This picture is in the style of Turner.

Another of Aaron’s picture, My beautiful daughter Grace is about “being a good dad & my family help keep me well”.

Liz Innes, who has been attending art classes at CoolTan for around seven years, shows piece depicting a Lake District landscape. Liz adds: “I wanted to submit my landscape painting which was inspired by a photograph I took 20 years ago. I enjoyed painting this as it reminds me of my younger, more lively days when I often went walking with friends. I have really enjoyed my work in pen and ink recently and feel it is developing well. I have received a lot of encouragement from the staff and tutors at CoolTan.”

Marjorie Mclean, who has been involved with CoolTan for eight years, is showing her watercolour My Allotment. “For me going to the allotment, being in the sunshine and seeing things grow, producing food, makes me feel hopeful and happy”, she says.

Marjorie McLean, My Allotment
Marjorie McLean, My Allotment
Ese Imonioro, Gotcha
Ese Imonioro, Gotcha

Ese Imonioro’s work in collage and felt-tip was done about a difficult time in her life” “At that moment I felt quite persecuted, but I could not convince anyone of what was happening. The painting is of a doctor who helped me during this period and made everyone see the truth. I will always be eternally grateful to him for that and for giving me my freedom.”

Lynn Hughes, Kingfisher
Lynn Hughes, Kingfisher

* The CoolTan exhibition runs until 26th November, Monday to Thursday 10-5:45, Fridays 10-5 at CoolTan Arts, third Floor, 224-236 Walworth Road, SE17 1JE