Category Archives: Third sector

Young, gifted and blanked?

Sarah Dougan
Caroline Holroyd
“People assume because we’re young and because we have suffered with a mental health problem, what we say is irrelevant,” says 19-year-old Edinburgh student Sarah-Jane Dougan. Dougan and Leeds-based Caroline Holroyd, 21, are members of Very Important Kids (VIK), a panel of campaigners advising mental health charity YoungMinds on its aims.

Both women have experienced mental health issues, including depression, for which they have undergone counselling and therapy. VIK aims to help shape health services; it recently worked with the Royal College of Psychiatrists, for example. Dougan and Holroyd’s brand of user involvement reflects health secretary Andrew Lansley’s patient-led vision for the NHS. Here they explain why politicians and policymakers should listen to them.

We got involved with VIK because… it was a chance to use our negative experience with mental health, and get something positive out of it. I’m sure a lot of service users have opinions on how their service can be improved or change, and they know what worked and what didn’t, and also what needs to be done. As part of VIK we have the opportunity to influence these things, and get the ball rolling to bring change (Sarah Dougan/SD).

Patients must influence services because… We’re the experts; real life experience is what has informed our opinions (Caroline Holroyd/CH).

Young people in particular must influence services because…we are the future, the next generation. We’re the ones who will be using these services in years to come (CH). Having a good service for young people will mean that they are less likely to have to use adult services when they are older. Prevention is better than treatment (SD)!

The biggest challenge has been…making people realise that young people with mental health problems can have a valuable input. People seem to assume that because we are young, and because we have suffered with a mental health problem, what we say is irrelevant (SD).

Consultation today is…rare, but improving. Sometimes I feel when services ask for young people’s participation it is simply a tokenistic gesture – lip service (CH).

The key to real patient involvement is…engaging with people from all areas of society and making sure it is easy for them to get involved (CH). It’s about listening and actually hearing what the patient has to say rather than the organization simply making a bunch of decisions and then asking if it’s ok (SD).

Mental ill-health among the young…isn’t always openly discussed even within families where one or more of them has a mental health problem. Mental illness in itself is an issue that is kept under wraps because of the prevailing stigma, lack of education and the many myths surrounding it, sometimes perpetuated by the media (people with mental illness as serial killers, and so on) (CH). It’s an issue that people would rather admit wasn’t happening (SD).

The biggest problem with the mental health system is…the waiting times for receiving treatment, particularly talking therapies. People can be waiting months and even then not end up receiving the correct treatment for their condition. On the whole treatment can be very hit and miss, and support isn’t always sustained meaning people can be suffering in silence (CH). People can’t access services when they need it. If you have anorexia for example, mental health services only seem to recognize it when your body weight is so low that you need to be hospitalized. This is relying on the patients physical health rather than their mental health (SD).

The biggest problem with psychiatric units is…they can feel like prisons; they can be very disempowering (CH). Patients are there to get help – not to be punished (SD)!

The biggest difference the government could make in mental health policy would be…to treat it with the same seriousness and urgency as physical health (SD).

If we had five minutes with health secretary Andrew Lansley…we’d ask him what he thinks needs to change. If he has the same points as us – why hasn’t something been done about it before (SD)? I’d emphasise the importance of prioritising young people’s mental health services and how promoting emotional wellbeing and using early intervention techniques can prevent more severe mental problems which will ultimately put less pressure on the NHS (CH).

Caught in a trap: why the disabled can’t leave their care homes

From my Society Guardian feature this morning:
Anna McNaughton fell in love with the West Sussex seaside town of Worthing when she moved there two years ago. It’s a stone’s throw from Brighton, around an hour by train from London, and its bars, cafes and restaurants are edged by a tree-lined promenade. Having had a room in a shared house since moving, the 23-year-old wants her own space.

Some interesting comments posted about this article by Guardian readers are here.

Shades, strut and soul; a universal arts experience

Rapper Dean Rodney has a soulful strut, a powerful pair of lungs and a learning disability. Dark shades, smooth black suit, definitely supercool. I’ll be at the Royal Festival Hall on London’s South Bank tonight to see his band, the Fish Police, a fired-up trio that fuses hip hop with funk and punk and lists Japanese anime and fast food among its eclectic inspirations.

Fish Police met when musician and lyricist Charles Stuart trained two learning disabled youngsters, Dean (now Fish Police singer, rapper, bass and lyrics) and Matthew Howe (the trio’s equally cool rhythm guitarist) as part of a youth band based at disability arts organisation Heart n Soul.

Next month the Fish Police will be releasing their debut album, Cheeseburger Man (Herbie Hancock’s Watermelon Man for the McDonald’s generation?), performing at the Lincoln Center in New York and at Liverpool’s DaDa Fest, the UK’s largest disability and deaf arts festival. Their music is a fresh and freestyling antidote to the conveyor-belt fodder jostling for space in today’s uninspiringly plastic charts.

I came across Heart n Soul over a year ago when I heard about one of its artists, soul singer Lizzie Emeh. Lizzie broke new ground by becoming what’s thought to be the first learning disabled solo artist to release an album to the general public. Loud and Proud was three years in the making and produced with the support of Heart n Soul, 33 years after Lizzie’s parents were told never she would never walk or talk following complications at birth.

In 1984, musician Mark Williams (now Heart n Soul’s director) wanted to explore how music and art could make a difference in communities. He began running creative sessions in east London for a group of people with learning disabilities who went to the local day centre, The Mulberry Centre. Eventually The Mulberry Crew, as they came to be known, moved into a bigger arts complex in Deptford and became Heart n Soul, with the aim of working towards professional productions – not simply, as was then the norm, undergoing art therapy.

The charity now runs a hugely popular club night for people with learning disabilities, the Beautiful Octopus club, and has a consultancy arm to advise other organisations on setting up cultural events for those with special needs. It also employs people with a learning disability and markets arts events to the learning disabled.

The Fish Police, Lizzie Emeh and their other talented peers are also regulars at Heart n Soul’s summer arts festival which is based on the Beautiful Octopus club night. The event isn’t on most people’s summer festival radars, but it should be. Along with live music, the event a couple of months ago boasted a comedy stage, improv and open mic sessions, face painting, a massage tent, a chill out zone designed by the Brockley Jack Studio Theatre, cinema room, dance floor and VJs and DJs. Performance art is notoriously hard to pull off, but the trio of artists performing as Live Heart did so with panache, demonstrating why the Tate Modern recently invited them to perform. K:DNA showed off their inspired blend of funk, reggae and classical music while the Riki Jodelko Band were an amazingly tight soul-pop outfit, astounding when they covered Bill Withers’ Lovely Day and Bob Marley’s Could You Be Loved.

Best of all, I loved the inclusive nature of the event. The Beautiful Octopus invites everyone to have a good time, regardless of ability or special need. When you enter the world of Heart n Soul’s festivals or club nights, when you immerse yourself in the melee of fancy dress, fairy wings and face paints, when someone in a clown outfit tumbles head over heels into a perfect cartwheel right in front of you, whether they have a learning disability or not is irrelevant – what’s important is that they’re having fun. And it’s infectious.

Frankly, in this environment (compared to other events I’ve blogged about) it’s impossible not to roll with the good times. I’m working on my cartwheel for next summer…for tonight, the shades and soulful strut will have to do.

* The Beautiful Octopus Club is at the Royal Festival Hall, Southbank Centre, tonight (Friday 8 Oct) 7pm-12am. Entry is free.

How to ease the care crisis; let granny have a wii (because online octogenarians are very big society)

A suggestion of boiled cabbage, laced with a faint, medicinal whiff. Magnolia-coloured walls lined with chairs turned towards a television set. And staring at the screen is a sea of blank, wizened faces attached to bodies waiting to die; ah the great British care home.

Just think, if the old dears are lucky, someone might even switch on the telly.

Unless, that is, this is the sort of care home that runs adult learning programmes for the elderly (check out the You Tube film) organised by social enterprise Learning for the Fourth Age (l4a).

At the Aigburth care home in Leicestershire, for example, here is an OAP enthusiastically playing tennis on the Wii, egged on by fellow residents, there is a 90-year-old emailing her great-grandson and everywhere is an attitude that sticks two fingers up at the stereotypical view of old people: “When you get to your 90s you feel you want to keep up with things.. it makes you feel you’re up with the world.”

Now I’m not usually one for Oprah-style outbursts, but even I found it difficult to watch the clip without smashing the air with a ‘You go girl!’ as the web-savyy pensioner tapped out her email.

As well as getting residents online, the care homes involved in l4a schemes run music, foreign language, flower-arranging and art sessions – basically any form of learning that people take an interest in. Because sessions are staffed by volunteers and local young people, the byproduct is community cohesion and intergenerational contact.

The experience of care home residents such as those in Leicester isn’t just a nice story. It could be another piece of the jigsaw when it comes to the crisis in care for the elderly.

Life expectancy is rising and by 2026, the number of people aged 85 and over will double and the number of people aged 100 and over will quadruple. In some 20 years’ time, around 1.7 million more adults will need some sort of care or support. Just last week the global dementia bill was said to be £388bn, according to the World Alzheimers Report. While I’m certainly not suggesting that getting ocotgenarians online will solve the crisis in care or provide the answer to one of modern society’s most pressing health problems, but surely anything that improves quality of life and cuts down healthcare bills is worth exploring further?

Programmes such as those in Leicester, says NIACE (the National Institute for Adult Continuing Education) transforms people. They are more interactive with each other, with the staff and with their families and are on fewer sleeping pills and anti-depressants; a reduction of 50% at one home that’s running adult learning scheme programmes.

Staff also reap rewards. As well as the fact residents are more motivated, they interact with them on a friend rather than carer-patient level. Anecdotally, absenteeism is rare and turnover low.

On the business side, money is saved because there’s less reliance on sleeping pills and anti-depressants – imagine the savings if this was replicated in every care setting in the country.

Politicians and policymakers take note; public finances are in a parlous state but if your granny has a wii, you might have to spend fewer pennies.

* Age UK recently launched a digital manifesto for older people with the Foundation for Art and Creative Technology, the digital media institution. It demands an end to digital illiteracy among the elderly by 2020. The manifesto argues that because the Internet is the public’s primary source of information, being able to surf, blog, or take part in community TV broadcasts not only empowers people but helps breaks the isolation that older people often experience.

Despite the fact that more pensioners have Internet access at home than ever before – almost 40% now compared to 11% 10 years ago – campaigners say it’s vital that older people are not left behind.

FACT says the issue is one of social justice that as it promotes localism and active citizenship.

Sounds like big society to me.

Today’s new Society Guardian housing pullout

If you want a bite-sized glimpse of social housing setting out its stall ahead of the spending review, scroll down to the end of this post to see the Society Guardian pullout that I commissioned and which is published today. It echoes many of the issues being aired at the National Housing Federation annual conference that started in Birmingham today.

By a marvellous quirk of publishing fate, it can even be read by social housing’s alleged fat cats without fear of criticism as it had to go to press well before housing minister Grant Shapps officially put them in the austerity spotlight. Even more quaintly, not only is it a Shapps-free zone, but it’s also not yet online – hence the old school PDF format I’ve resorted to here.

Click on page 1 for a description by ex-Inside Housing editor Kate Murray of how the rising demand for homes, predicted budget, reduction in housebuilding and a plethora of other regime changes has left the affordable housing sector facing an unprecedented challenges.

Check p2-3 for a feature by housing specialist Chloe Stothart on how social landlords are making it easier for their tenants to find employment. There are also features by Mark Gould and Anita Pati on how associations are working in partnership on training their tenants and how other organisations have launched neighbourhood contracts to improve their areas or schemes to boost the inclusion of marginalised tenants.

The last page is worth a read, given the announcement today of the expansion in personal budgets – the scheme that allows patients more control over their care. The feature focuses on the work of landlord Look Ahead on the personalisation agenda, boosting choice for vulnerable tenants so they’re regarded as “customers” with real choice.

So even if you’re rattled by the telephone number pay cheques of social housing’s highest earners, there’s still much to be admired in the sector, not least, as I’ve stated in the pullout’s intro, its far-reaching social and economic impact.

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Who knows how to set up a peer mentoring project?

Moktar Alatas
Kicking off a regular interview slot, 18-year-old Moktar Alatas explains how he’s launching a local peer mentoring project, aspire2inspire (a2i) to encourage disaffected teens into work and training. He is driven by the experience of his brother, who is currently serving a prison sentence for a minor offence. Moktar lives in Ladbroke Grove, in the west London borough of Kensington and Chelsea which boasts some of the capital’s most affluent streets as well as pockets of deprivation. He was involved in a youth-led documentary in his area run by the Octavia Foundation, a charity set up by social landlord Octavia Housing.

My name is Moktar Alatas.

I’m a first year law student at Brunel University.

I’m trying to set up a project to inspire hope and instill confidence into disengaged young people from disadvantaged backgrounds, mainly by drawing these young people back into the world of work and education.

I started doing this a month ago, even though the idea has been around for much longer.

I want to do this because I feel that the area that I live in needs something that can realistically go about challenging the barriers that many of us deal with. As a young person myself I know how hard getting employment can be, I would say however that my brother’s experience in going to prison, has truly been the inspiration behind the project.

My aim is to transform the lives of many of the young people in my area who feel that there isn’t any hope for them. I believe that if I can give these young people financial independence, then many of the social ills that are poverty driven, such as drugs, crime, will be eliminated. The idea is to conduct ‘social surgeries’. Young a2i members go out into the community, targeting ‘hard to reach’ areas, and talking to their fellow young people with the aim of bringing them into our offices with the incentive of getting a employment/training. Next, a series of steps, including one-to-one meeting to identify and overcome any barriers that that young person may have. Finally, we work with that young person to find suitable placement.

So far in just a month we’ve managed to get over 50 people on our books, conducted numerous CV workshops, helped three people into paid internships, and helped another young homeless person into housing.

I hope to raise funding for it through the work that we do. By this I mean that rather than a charity, I want a2i to function like an actual employment agency. This, I believe will better fit into the premise of big society.

The hardest thing so far has been trying to provide the service with an imaginary budget.

The most rewarding thing will be to prevent people from going to prison, and instead into employment and training.

I’d love to hear from you if you could help me with any ideas that you have on how to go about organising, fund raising and delivering the service.

How to avoid today’s children becoming tomorrow’s ‘NEETs’

Shaks Ghosh
Shaks Ghosh, chief executive, Private Equity Foundation
“Gob-smacking” is how Labour MP Frank Field, chair of the government’s Review on Poverty and Life Chances, referred last week to findings that, from their first day at school, children from families on the lowest incomes were already lagging behind their richer peers. Ahead of presenting evidence to the Prime Minister, Field said he would be concentrating attention on what happens during a child’s first five years that so impacts on their life-time opportunities.

But such statistics should come as no surprise, certainly not to those attending our annual conference today, Intervening Before its Too Late.  Earlier this year, Ex Curricula, a report by Demos, funded by the Private Equity Foundation (PEF), found that over one in 10 five-year-olds are at severe risk of disengaging from education when they begin school.  These so called ‘nursery NEETs’ (not in education, employment or training) don’t have the behavioural skills they need to learn.

Demos advocated that the focus of resource and policy for dealing with the NEET issue should be turned on its head.  It looked at “identifying the earliest possible point of intervention to prevent disengagement”.

This isn’t about branding babies but about dealing with risk factors as soon as they arise.

It makes sense. Vast sums are spent on dealing with the consequences of disengagement (this generation of NEET 16-18 year olds will cost society an estimated £35 billion over their lifetime).  And over the last decade, NEET numbers have remained shockingly steady at around 16-17% of 16-24 year olds.

However, although Field has said (with provisos) that “later interventions do look much less cost-effective”, I would argue that the right, evidence based charity interventions continue to stack up financially and that it’s imperative that we don’t stop at age six.

Take, for example, the social safety net that charities can provide in primary schools, charities like The Place2Be and School-Home Support which, by tackling serious emotional and family issues, remove disadvantaged children’s barriers to learning, leaving teachers to teach. They also bridge the critical journey to secondary school when, unsupported, the vulnerable can so often disappear into a black hole. As previously highlighted on The Social Issue, a review of SHS has found that for every pound spent on it, £21.14 is saved across the whole of society.

But what about engaging teenagers before they walk out of the school gate and become ever harder to reach? It’s at 14 that young people really show their propensity to become NEET and that targeted and yes, cost-effective help can turn around young lives.

Skill Force, a charity that works with 14-16 year olds is a case in point; 60% of its students who are entitled to free school meals go on to further education, compared to 6% nationally. Exclusions are reduced from a predicted 30% to less than 7%. The organisation, which has helped around 35,000 young people since it launched a decade ago, estimates that it saves the public purse some £40 million a year by reducing the number of young people likely to become NEET. That is why PEF supports its good work.

Skill Force staff, drawn mainly from the armed forces, provide outstanding role models and deliver an alternative in-school curriculum which draws together vocational qualifications, community volunteering and life skills both in the classroom and through outdoor activities. Amongst other things, students work towards the Duke of Edinburgh’s Award and the Young Lifesavers Award, studying their alternative curriculum for a day a week for up to two years.

A recent Skill Force rock climbing activity, encouraging team work and mutual support

Karl’s just one Skill Force beneficiary: “I never used to bother with going to school on Mondays – I used to take it as a day off. School really bored me. But then Skill Force was every Monday and I saw it as a good, positive start to the week. I started to enjoy what we were learning.” Fellow student Ryan adds: “What I have achieved has surprised everyone at college because they thought that I would have been kicked out by now”.

Would just one chance, pre-six, have been enough to help Karl and Ryan?  It’s impossible to tell.  So while I commend Field’s consideration of the welfare of the very young, I would welcome a wider shift of emphasis to prevention rather than just early intervention if we’re to avoid the children of today becoming the NEET statistics of tomorrow.