Category Archives: Music & arts

A perspective on the Paralympics

Singer and rapper Dean Rodney, part of the Games Through Our Eyes website
There’s no shortage of media coverage of the Olympics and Paralympics, but one new online platform offers a unique and important perspective on the games.

Games Through Our Eyes is an accessible website for the 2012 Paralympic Games created by young reporters with learning disabilities. The team is supported by arts group Heart n’ Soul and social enterprise communications agency Poached Creative.

Games Through Our Eyes is covering wheelchair rugby, the three Paralympic sports open to people with learning disabilities (swimming, athletics and table tennis) as well as the Cultural Olympiad. This year is first time in 12 years that people with learning disabilities have been allowed to compete after Spain’s basketball team faked their disabilities in the 2000 Sydney games.

The reporting team includes Dean Rodney, a 22-year-old singer and rapper with autism whose audio-visual project, the Dean Rodney Singers, is part of the Cultural Olympiad. Dean, who has honed his performing talents through Heart n’Soul and who I’ve blogged about before, is part of the Unlimited showcase at London’s Southbank Centre starting today. Unlimited is staging cultural events alongside the Paralympic Games, having made major new commissions in disability, arts, culture and sport (for artist Rachel Gadsen’s contribution to the Cultural Olympiad, for example, see this previous post).

As far as the new website goes, Lilly Cook, one member of the reporting team, says the aim is for everyone with disabilities and learning disabilities “to be able to find out about them and all the other amazing things going on around them.” As Lilly adds in a recent blogpost: “Paralympic sports are just as exciting, professional and emotional as the Olympics.”

Alongside Lilly and Dean, the other reporters are Nicola Holley, Poppy Collie, Shalim Ali, and Laura Jarvis.

Expect some good coverage of Dean’s installation; the Dean Rodney Singers is an international digital collaboration of 72 musicians and dancers with and without disabilities from countries including Japan, China, South Africa, Germany, Brazil, Croatia and the UK. Their online interaction results in new music, dance and video and 23 of their pieces will be launched at the Southbank Centre today, with audience participation promised through interactive technology (the idea is viewers and listeners engage with the performers).

As well as the Dean Rodney Singers, other Heart n Soul artists perform in events during the Paralympics – the fabulous Lizzie Emeh at the Trafalgar Square Live Site this Sunday – fresh from accompanying Beverly Knight at the Paralympics opening ceremony – and The Fish Police (which Dean Rodney also fronts) at the Potters Field Live Site on Monday. The arts group’s spectacular multi-media club night The Beautiful Octopus Club (created by and for people with learning disabilities) is on Friday 7th September at Southbank Centre, the final weekend of Southbank’s Paralympic Games celebrations.

Keep up with the news on Twitter by following the Games Through Our Eyes team at @ourparagames

The science of the sofa

Artist Michael Pinsky launches Fidget (pic: Geoff Caddick/PA)
Is there a science to sitting on the sofa? Any benefit to being on your backside? An art to sitting on your arse? An innovative new project by one of the country’s leading artists blends science and art in a bid to persuade the public that there is, sparking debate about obesity, activity, exercise and health along the way.

Comedienne Katy Brand helps launche Fidget (pic: Geoff Caddick/PA)

Launched in King’s Cross yesterday to capitalise on the Olympics (which many of us will sit around watching, doing very little exercise) the pop up Fidget campaign promises an “interactive canopy housing an arts experience”, created by renowned British artist Michael Pinsky.

Six “game zones” under the canopy encourage people to try simple activities for themselves and learn about the difference that moderate movement can make. On average, people spend about four hours a day watching television.

Dr Wilby Williamson, who has been involved in the development of Fidget (pic: Geoff Caddick/PA)

Run by London Arts in Health Forum and funded and supported by the Wellcome Trust, the project runs for a year, touring London before a nationwide tour of festivals, public spaces and other events this summer including Skegness, Edinburgh, Bradford, Bristol, Taunton, Gateshead and London Broadgate (see website for more details). There will also be interactive online communication tools developed by online charity YouthNet, which support young people online.

Art fights social taboos

Living with chronic health problems and facing social taboos are issues at the heart of an international artistic collaboration about HIV/AIDS as part of the Cultural Olympiad.

Portrait by Rachel Gadsen © Rachel Gadsden

© Rachel Gadsden

The powerful images here are part of the Unlimited Global Alchemy project
which launches today as part of the London 2012 Festival. After today’s launch at the Museum of Archaeology & Anthropology in Cambridge, the exhibition culminates at the Southbank Centre during the Paralympic Games.

The project has been produced by Artsadmin and commissioned by the Unlimited programme launched to celebrate arts, culture and sport by deaf and disabled people.

© Rachel Gadsden

Artist Rachel Gadsden, who has lived with disability all her life and whose inspiring work I came across last year, began the project after seeing the work of South African artist Nondumiso Hlwele at the museum in Cambridge – Body Map, below, reflects Hlwele’s experience of living with HIV.

Body Map © Nondumiso Hlwele

Gadsen travelled to the Khayelitsha Township, Cape Town, pictured below, to collaborate with the artist-activist collective which Hlwele leads. The works in today’s exhibition were created over a six week residency in Cape Town in October last year.

Khayelitsha township where today's works were developed

Together, the striking pieces show what it’s like to live with disabling conditions and social prejudice. “At the heart of this life-affirming and timely collaboration is a celebration of survival against the odds,” say the artists. “It is also about access to art in a very broad sense, participation, and the potential for bridges to be built across cultural, educational and geographical divides.”

You can follow the project on Twitter with the hashtag 
#UGAlchemy and the exhibition is at the Museum of Archaeology & Anthropology in Cambridge until 18 August before it transfers to the Southbank Centre, London in September as part of the Unlimited Festival. There will also be a collaborative performance work once the project transfers to the Southbank.

Happy art

Here’s something that raised a smile – if you watch one teeny thing today (it’s 48 seconds long), please make it this fabulous mini-montage of Joe Long’s happy drawings set perfectly to a priceless tune.

Joe, 18, has fragile x syndrome, the same condition as my sister Raana, and is at the Sheiling School in the New Forest, next door to the Camphill Lantern Community which my sister is at. A big part of Sheiling and the Lantern is creative expression, which Joe clearly has in bucket loads.

Next week is Learning Disability Week, which will focus on hate crime. That I’m sharing Joe’s feel good film here is not to pretend that people like my sister and Joe aren’t on the receiving end of some of the worst misunderstanding in society, from sideways glances to outright physical and verbal abuse and discrimination – this is what next’s week’s awareness campaign hopes to tackle.

I’m sharing it because it’s infectiously positive, reminds me of my sister’s own drawings at that age and reveals Joe’s upbeat personality as well as reflecting the abilities of young people with disabilities.

And, of course, it simply made me smile.

Joe’s father Adam says his son, who was 13 when he did these drawings, was always proud to show off his art to “anyone and everyone”, so the family decided to post some of his best sketches on YouTube where they’d reach a wider audience.

Adam says the sketches show Joe’s family (including his parents and sister Tilly) as well as “himself, our cat Monty, and some animal with lines coming out of its mouth…possibly our guinea pig, don’t know for sure…Looking at the drawings always made me smile”

Joe’s thriving and happy at Sheiling, says Adam: “He’s got a lot of friends, he’s learning, becoming more independent, and we’re very proud of him.”

Joe, for your happy artistry and for creating this feel good Friday post, we salute you.

Youth film reveals the hidden gems of black theatre

The term black theatre might conjure up images of a niche and very 20th century concept, but from Ira Aldridge playing Othello in Covent Garden in the 1830s to the 1990 production of Amani Napthali’s Ragamuffin and to grime star Bashy in a rap opera a couple of years ago, the genre is historical and diverse – if lesser known than its mainstream counterpart.

A youth-led film being premiered at London’s Royal Court theatre today, Margins to Mainstream, seeks to demystify and tell the story of black theatre in Britain. Made by young people in west London and Birmingham, in a partnership between London’s Octavia Foundation and Nu Century Arts in Birmingham, with funding from the Heritage Lottery Fund, its visual treasures include forgotten plays and landmark performances.

Those who appear in the film include playwright and broadcaster Kwame Kwei-Armah and Pat Cumper, director of the Talawa Arts Centre. The film was shot at locations including Theatre Royal East, London Southbank Centre, Royal Court Theatre, Old Vic and The Tabernacle.

The cross-city project allowed young people in London and Birmingham to learn and develop skills in media, research and film-making and is the latest in a series of innovative community filmmaking initiatives from the charity.

Zakiya, 18, a sixth form student studying photography, media and sociology and a tenant of Octavia Housing, adds that working on the project has inspired her to see more theatre and be more creative: “I didn’t really know anything about black theatre before, or theatre in general but it was really great and we saw some good productions…this project has helped build my experience in the field – I’m studying media, sociology and photography and want to be a photographer when I’m older. Seeing the finished film and knowing I’ve been a part of it is incredible.”

After the premiere in London the film will be screened at venues throughout London, Birmingham and the rest of the country and made available to theatres, arts and community groups and other interested groups later on this year. You can find out more about the screenings here.

Art in aid of disability

Bladerunner, a sculpture of champion sprinter Oscar Pistorius by John Buckley, exhibiting at the Bloomsbury Art Fair
There are 20m people across the world who need a wheelchair and don’t have one, according to the World Health Organisation, and the average life expectancy of a paraplegic in a developing country is far shorter than in the western world.

The charity Motivation designs wheelchairs that can cope with these challenging overseas environments and is among the charities benefitting from the second Bloomsbury Art Fair, which I blogged about last year.

At this year’s event in July there is more than a nod to the Olympics and Paralympics (one of the pieces in the exhibition, Bladerunner by John Buckley, is pictured above). Organisers are hoping to draw bigger crowds and funds than last year with works as diverse as Sophie Morgan’s beautiful drawings and Olympic and Paralympic sculptures from Art At The Edge.

Flowers, by Jo Oakley, showing at the Bloomsbury Art Fair

All profits from the Bloomsbury Art Fair will be donated to three charities, including Motivation, which support people following a life-changing injury. In its inaugural year last year, the event drew more than 3,000 visitors and made more than £60,000 for its chosen disability charities.

Another beneficiary is Southern Spinal Injuries Trust supports the Duke of Cornwall Spinal Treatment Centre in Salisbury and people living with a spinal cord injury in the South and South-West of England. Funding donated from the 2011 Bloomsbury Art Fair is currently being used to build a pioneering rehabilitation garden in the grounds of the centre.

Walking With The Wounded supports young military servicemen and women who have suffered injuries and will also benefit from the art fair. Money raised will finance new qualifications, courses and further education for people who are seriously injured, enabling the blind, burn victims, amputees and people with other long-term injuries to rebuild their lives and to return to work.

This year’s event also features a creative arts programme and live music and sculpture demonstrations in the courtyard of the exhibition venue Goodenough College. Among those returning to this year’s fair are artist Sophie Morgan, photographer David Constantine, sculptor Ian Edwards and The Helium Foundation, which will be showing works from artists such as Nick Walker and Damien Hirst.

With such a diverse range of mediums and pieces (prices range from £50-£25,000) and a huge array of galleries, dealers and artists (and by huge array, I mean established and emerging artists as well as able-bodied and disabled), it promises to be a fascinating event.

* The Bloomsbury Art Fair runs from 6-8 July 2012 at Goodenough College, London House, Mecklenburgh Square, WC1N 2AB. Ticket information is here.

Face the facts, not the film fiction

It’s an uphill struggle for those with so-called invisible difficulties (people with conditions on the autistic spectrum, for example,) to achieve mainstream representation or indeed capture the attention of broadcasters, newspaper editors, politicians and the public.

So imagine the challenge for those with more visible differences.

If you see facial disfigurement in movies, its usually a handy hint just in case you have trouble figuring out the baddie (think Nightmare on Elm Street’s Freddie Kreuger and just about every Bond villain). Trying to see if I could disprove this theory, I randomly remembered Liam Neeson in Darkman – scarred, with a grudge, ultimately fighting for justice – but then looked up the tagline” “hideously scarred and mentally unstable scientist seeks revenge against the crooks who made him like that”. Ouch.

Movie memo to kids (they might not know Freddie Kreuger but you can be sure they know Batman’s The Joker or Harry Potter’s Voldemort): look bad on the outside, and you’re bad inside.

Today, Changing Faces, the charity for people and families whose lives are affected by appearance-altering conditions, marks or scars, launches a nationwide film campaign. Please watch it, it’s powerful, elegantly produced and only a minute long.

You might already have spotted the charity’s poster campaign not so long ago which aimed to stop people in their tracks long enough to make them think (instead of simply staring). Today’s Face Equality on Film campaign, it is hoped, will go some way towards tackling the prejudice and crass assumptions experienced by people with facial disfigurement.

The campaign calls for balanced portrayals of people with disfigurements on screen and the film, which will be shown in 750 Odeon cinemas, invites audiences to challenge their assumptions about Leo Gormley, a man with burn scars. It also stars Downton Abbey actor Michelle Dockery.

As a teenager in the ’80s, my first foray into the mind-boggling world of skincare and “beauty” products involved a desperate desire to cover barely perceptible blemishes, inspired by the seemingly zit-free stars on my Smash Hits front cover. But since, then the concept of “beauty” has become even more extreme, and digital wizardry can clear imperfections in the blink of a heavily-made-up eye.

I’m conscious that my seven-year-old daughter, for example, is growing up in a media environment dominated by images of identikit, airbrushed, photoshopped lovelies projecting an unobtainable and flawless version of “looking good”.

In a world where older women are elbowed off the television news because their faces, rather than their news judgement, start to sag, what hope for those whose features even further removed from what is deemed be aesthetically pleasing? Changing Faces has already worked with Channel Five news to shatter such stereotypes.

But if women, ethnic minorities and people with disabilities are under-represented in television, then people whose differences are more obvious are, ironically, even more invisible.

And if facial differences feature on television, they do so in a medical capacity, in documentaries that present abnormality as something to be gawped at or “put right”. While the concept behind The Undateables might have been well-intentioned, it was the title of the show that put me off.

As Changing Faces’ chief executive James Partridge said in response to that Channel 4 series: “TV series with derisory titles makes life just that bit more difficult – it’s so unnecessary and it’s unfair. Very good factual and sensitive documentaries on disfigurement-related topics are frequently spoiled by offensive titles such as ‘Freak show family’, ‘The man with tree trunks for legs’ and ‘Bodyshock’. They are contrived to attract audiences but actually label the human being in the film in a sensationalist and voyeuristic way, treating him or her as an object rather than a person.”

At the risk of getting sidetracked down this road, I remember gritting my teeth a few years ago to get past the utterly ludicrous title of The Strangest Village in Britain. It was, was in fact a sensitive portrayal of life at Camphill’s Botton village which featured much of the good support that has made a difference to my family’s life – not that you’d know that from the objectionable title.

Back to today’s campaign launch; a YouGov survey of 1,741 adults commissioned by the charity last month found that bad teeth, scars, burns and other conditions affecting the face are viewed as the most common indicators of an evil film character. According to the poll, ethnic minorities, bald and disabled people are all thought to be portrayed in more diverse ways than those with disfigurements.

Responding to the poll, 66% said people with bad teeth mainly play evil characters
and 48% said that people with conditions altering their appearance mainly play evil characters. Meanwhile, 30% said that bald people mainly play evil such roles compared to 13% who felt those from ethnic minorities mainly portrayed bad characters.
Interestingly, 6% said that people with physical disabilities (in a wheelchair or have missing limbs) mainly play evil characters.

Partridge adds of today’s campaign: “It would seem as if all the film industry has to do to depict evil and villainy is apply a scar or a prosthetic eye socket or remove a limb and every movie goer knows that it’s time to be suspicious, scared or repulsed…Freddie Krueger, Scarface and Two-Face are just some of the names that our clients get called at school, on the street and at work. They have to put up with people laughing at them, recoiling, running away or staring in disbelief that they can and do live a normal life.”

* You can sign the charity’s online petition demanding an end to the stigma reinforced on screen.

Storytelling in senility: revealing dynamic personalities beneath the dementia

One of my biggest regrets is that I didn’t take down more of my mother’s stories before her slide into dementia accelerated. I would have liked to know more about her brief engagement to a Vietnamese diplomat, or the time she visited Benidorm when it only had two hotels, or what more she could tell me about her older brother who was killed in the war.

That’s why I was fascinated to meet David Clegg, the man behind an inspirational project dedicated to collecting the life stories of people with dementia. His Trebus Project has collected a huge range of stories, some of which have been published in two books and collected on a record and some of which have formed the basis for a Radio 4 series, produced by Paul Whitehouse and Charlie Higson. He’s now working on a short film.

It is estimated that over the next decade, the number of people with dementia will hit one million and today the prime minister is due to launch a “national challenge” on the illness, describing it as a “scandal” that the UK has not done more to address dementia. The cost to UK society is estimated at £23bn.

The prime minister is due to announce a major funding boost for dementia research, reaching £66m by 2015, from £26.6m 2010. He is due to say that “the quiet crisis” is one that “steals lives and tears at the hearts of families”

David Clegg’s Trebus Project is about revealing the fascinating and rich histories of people with dementia; it is about celebrating the lives that appear to have been lost.

Trebus began after Clegg closed down the art gallery he used to run and began working on art projects with care home residents. The very first person he met happened to be a woman with a fascinating tale to tell: she’d once been the girlfriend of the notorious acid bath murderer John Haigh.

“Nobody knew it,” he recalls. “They saw to her needs – it took two people to get her into a hoist for example, but they didn’t know anything about the fact that she was bohemian beyond belief. She would have given William Burroughs a run for his money – she’d hung around with Princess Margaret and made her way back from the south of France wearing only a fur coat and high heels.”

Sheila, one of the Trebus "storytellers" in her extrovert younger days
Sheila socialising (note she's standing in front of cricketer Fred Truman)
Sheila at her care home, in front of a portrait of her younger self

Clegg is full of anecdotes about the people he’s spoken to. One of my favourites comes from an elderly gay man, who remembered celebrating VE day in London. “I asked him: ‘Did you go to the Palace and see them on the balcony?'”, Clegg says. “He replied: ‘No I was in the toilets – I got off with seven soldiers that day and one more in the tube.’”

It’s a perfect illustration of Clegg’s point that far too often we try to sanitise the lives of people with dementia. “A person with dementia is presented as someone fading away, leached out, who’s a shadow,” he says. “But many of the people I’ve worked with are not shadows – they are trying to make sense of their lives in difficult circumstances. They are not any less as people – they can be as funny, vibrant, passionate and randy as they ever were.”

His is a refreshingly unsentimental view of dementia. “We need a new story on dementia. We either present it as a global epidemic or a tragedy,” he says. “But we have got to get the message across that these are people who were not always old, who have lived lives that were full and eventful. Sometimes we might disagree with what they did or the opinions they held but dementia care needs to grow up and embrace some of the complications.”

Clegg, who did a stint working as a carer to see what it was like, plays down talk of being an agitator for the human rights of people with dementia. “I go in and listen and keep coming back,” he simply says. But his project does shine a light on the appalling way older people can sometimes be treated.

A striking shot from the Trebus Project, this time of Marianne, another storyteller

Take the story of John, a man with no living relatives, who when Clegg first saw him was lying on a bed staring at the ceiling, in a completely bare room without even a clock to mark the passage of time. When care home staff were asked by Clegg to bring him a clock they did – but then fixed it on the wall behind his head.

Clegg says the vast majority of care workers do their best, reserving his ire for the lack of resources to stimulate residents and the managers or directors who only want to fill their beds – and who have sometimes banned him from their premises because they were nervous about what he was doing.

His main motivation, he says is to collect words that would otherwise be lost. In the process, he is putting together something incredibly powerful: stories that are sometimes funny, sometimes moving, sometimes, as he recognises, almost like a Samuel Beckett play in their bleakness.

The Trebus Project provokes you into looking behind dementia stereotypes

It also, says Alison Wray of Cardiff University, has very real benefits for the person with dementia, putting them at the centre of the process and allowing both them and their carers to reconnect with their identity. In Clegg’s recent work, he has been doing less editing to give the stories a traditional narrative structure. Instead they are presented as fragments. Says Clegg: “It can show what dementia is like from the inside.”

To buy the publications or to donate to support the work of the Trebus Project, go to the website or email information@trebusprojects.org

All-embracing arts

Some of the UK’s most inspiring performers are taking part in a two-day disability arts showcase that kicks off in Leicester tomorrow.

Embrace Create Connect, 15-16 March, is a national conference for performers with a learning disability and for those who work with people who have a learning disability.

Movers Theatre Company (pictured here performing The Sorting Office, 2009) feature in the two day arts extravaganza

The event, which takes place at Embrace Arts, Leicester University’s arts centre aims to share learning and present the huge and rich range of learning disability arts work, connecting performers, producers and promoters.

A scoping document for the event, Written by Andy Reeves, artistic director 
of the Leicester-based Speakeasy Theatre Company (I featured the participatory arts company’s great work here) describes the East Midlands as “an interesting region in terms of performing arts and disability” because activity from the sector has learning disability, rather than physical disability, as its primary focus.

Anna Pearce and Hanna Sampson in Shadowed Voices, part of StopGAP Dance Company’s trainee programme

There’s tons of good stuff on the conference agenda. Performances include Heavy Load, StopGAP Dance Company, Club Soda and Movers Theatre Company. Other artists include Bamboozle and Salamanda Tandem.

Participants can get involved in workshops and debate with Action Space Mobile, DIY Theatre Company, Stay Up Late, Unanima, Oska Bright and more.

Tomorrow’s event is more positive movement in the field of inclusive arts. Events like this should help discourage the kinds of assumptions that leave many people with a learning disability excluded not just from the stage, but from the audience.

As Reeves acknowledges in his scoping report, while there is “a wealth of interesting learning disability practice happening nationally and regionally”, connecting up this kind of work “is much trickier”. Tomorrow’s unprecedented event will, buoyed by the strong vision of the companies and artists in the region, kickstart a learning disability performing arts network in the region.

Painting, prisons and penal reform

Some thoughtful and attention-grabbing images on display this week at The Big Issues exhibition, a project that forms part of prison outreach work at Surrey’s recently restored Watts Gallery.

Peace on Earth, Louise HMP Send

The exhibition is the result of the Compton-based gallery’s Art for All project. The outreach scheme involves artist-led workshops with inmates in prisons including Send and Coldingly in Surrey and Bronzefield in Middlesex – the pieces featured here are by female offenders at Send and Bronzefield.

Everyone Deserves A Chance, Amanda HMP Bronzefield

The inclusive arts project is in keeping with the beliefs of the gallery’s namesake, Victorian artist George Frederic Watts. Watts and his artist wife Mary Watts supported penal and social reform, believing in widening access to art, using the medium to benefit individuals and the community and arguing against prejudice towards ex-offenders. The couple’s aim of transforming lives through encouraging the socially excluded to engage with art underlines the gallery’s current outreach work.

Mother and Child, Juliet HMP Bronzefield

Art for All aims to build confidence and self-worth in people usually deemed socially excluded – prisoners, young offenders, addicts, and those with mental health issues or experiencing homelessness housing. One former prisoner at HMP Send, for example, was released before Christmas and been accepted on a foundation course at Brighton University. Another participant described the project as “some light in the dull, grey prison world”.

Rehabilitation through art can provoke controversy and the Watts gallery scheme is by no means unique, but with prison numbers at a record high and a proven reoffending rate of 26%, the value of projects like this is clear.

The exhibition is on until Sunday.