Netbuddy: the special needs Mumsnet

Netbuddy's Emma Sterland and her brother, Ben (pic: Netbuddy)
When Emma Sterland’s older brother Ben, who has Down’s syndrome, was three, their mother saw another child with Down’s walking past their Surrey house. Back then, in the late 1950s, learning disabled people were hidden away in institutional care, and it was the first time June had seen another child like Ben; she ran into the street to shouting: “I’ve got a son like that!”

In the absence of today’s official support networks, a lasting friendship began between the two mothers.

June could have done with Netbuddy, the self-styled “special needs Mumsnet” managed by her daughter, Emma. Just 18 months old, it crowdsources tips, attracting 6,000 new visitors a month and reaching 4,000 people a month via Facebook. Continue reading the rest of my piece on the Guardian’s social care network.

Netbuddy founder Deborah Gundle and son, Zach (pic: Netbuddy)

A photographic platform for learning disability

Had to share these images from a forthcoming exhibition created with people who have learning disabilities.

The show, The Girl With The Heart Shaped Hands, opens on Tuesday March 20th and has been organised by learning disability charity Outreach 3Way. The aim is to improve the mainstream representation of the 1m or so people in the UK with learning disabilities and reflect the personalities of each participant.

The eponymous girl of the show’s title is 38-year-old Samantha Wheeler who lives in Crawley and uses Outreach 3Way’s day centre.

Samantha Wheeler , whose pose lends itself to the title of the art exhibition

The images were taken by photographer Maria-Aurelia Riese who says she hopes the pieces “act as a gentle way of building understanding”: “There is a natural human reaction to feel awkward around those who look and behave differently from what we are used to. Once you really see someone for who they are that melts away. I very much hope this exhibition has that effect.”

Tom Ogle, also featured in the new art show

Participants in the exhibition submitted mini-profiles of themselves, to show the person behind the photo. Tom, 43, above, for example, enjoys “sports, drama, swimming, bicycle riding, listening to my music, walking into town and eating out” and is proud of his drama work. His dream for the future is to do more drama and “get married to my girlfriend.”

Portait of Matthew Dawson

The girl with the heart-shaped hands runs from 20th March to 1st April at Chichester’s Oxmarket Centre Of Arts. You can find out more about the free exhibition here or on the website for learning disability charity Dimensions, which Outreach 3 Way is part of.

Housing ambitions: 30-year plan for London’s biggest council landlord

It is the biggest council housing landlord in London and the fourth largest in the country. With 39,000 rented and 16,700 leasehold homes, a 19,000-strong waiting list and almost 15,000 properties needing repair ( “non-decent”, 2010 figures) the scale of Southwark council’s housing challenge demands a radical response. Housing barrister Jan Luba is to chair a pioneering study into housing need and policy – but will the council listen to it? Read my the rest of my piece on the Guardian website here.

The truth about rough sleeping

The Truth About Stanley trailer from www.thetruthaboutstanley.com on Vimeo.

Think homelessness and film and you can’t fail but think of Cathy Come Home. While the social action that followed Ken Loach’s cinematic call to arms was a one-off, the film project The Truth About Stanley could be a modern take on that artistic tradition; a visually striking and thought-provoking piece of social realism that seeks to raise not only awareness about homelessness, but funding.

Just today the government’s new homelessness figures showed 48,510 households were classed as homeless in 2011, a 14% rise on 2010. The situation has led one charity chief executive, Leslie Morphy, of Crisis, to demand action from the government amid the “perfect storm” – a combination of economic downturn, joblessness, soaring demand for affordable housing, housing benefit reform and cuts to homelessness services.

This is the dire social and economic backdrop to the forthcoming film shot by award-winning director Lucy Tcherniak. The Truth About Stanley tells the story of two rough sleepers who make unlikely friends; Stanley, an elderly Congelese man, and Sam, 10.

Still from The Truth About Stanley
Stanley (Oliver Litondo) in The Truth About Stanley

The non-linear narrative is intriguing, opening as it does with the death of Stanley and developing into questions about Stanley’s past and the reasons for Sam being on the streets.

Sam (Raif Clarke), The Truth About Stanley
Sam, The Truth About Stanley

The lines between reality and fiction are blurred as the pair’s friendship develops and Stanley regales his young runaway companion with stories from his past. Or, as the website neatly puts it: “No home, no belongings, plenty of baggage. A short film about a man, his stories and the boy who listened.”

The project, a twist on more traditional donation campaigns, aims to raise money for two homelessness organisations, social enterprise The Big Issue Foundation and charity Anchor House.

The film offers a much-needed focus on the twin issues of older and younger rough sleepers. Entrenched rough sleeping is common among older rough sleepers but accurate figures on the issue and that of homelessness among older people are hard to come by, partly because of the hidden homelessness and the lack of age breakdown in head counts.

According to Homeless Link, however, the 2010 total of street counts in authorities with a known or suspected rough sleeping problem was 440 and generally around 18% are over 50-years-old.

As for children sleeping rough, again the figures lack accuracy, but according to the charity Railway Children, at least 100,000 children runaway in the UK every year and many are not reported as missing by their parents or carers. According to youth homelessness charity Centrepoint, 80,000 young people experience homeless in the UK each year.

The 20-minute film is being produced in association with Oscar-winning Trademark Films and features songs by Radiohead and Mumford and Sons. Stanley is played by renowened Kenyan actor Oliver Litondo, the lead from the international feature film The First Grader and Sam by 12-year-old Raif Clarke. This Guardian piece from last year tells you a bit more.

The trailer and shots here (photographs by Ben Millar Cole) have been released ahead of the premiere on April 2 at the Rich Mix cinema in Shoreditch. The film will be and released online on April 4th.

*To donate text STANLEY2, 3 or 6 to 70300 to give £2, £3 OR £6 to The Truth About Stanley fund or visit the project’s
Just Giving page.
100% of the donation will go to homeless charities Anchor House and The Big Issue Foundation. Follow the film on Twitter.

Playgrounds, pupils and promoting mental health

Positive mental health promotion should start in schools and we should teach all our children to be more mentally resilient. This approach means that, as adults, they will face the world with more confidence and have empathy and compassion for others. Currently 1 in 10 – or around 850,000 – children and young people are diganosed with a mental health problem, according to the charity Young Minds.

Research from Warwick University last week suggests that children involved in bullying – as both a victim and a bully – are three times more likely to have suicidal thoughts by the time they reach 11-years-old.

Four years ago when I worked for the Tees, Esk and Wear Valleys NHS Foundation Trust, myself and a non-clinical colleague, Marjorie Wilson, who worked in the Information Department, created a storytelling-based approach to mental health for use in primary schools.

We based our idea on Virginia Ironside’s book The Huge Bag of Worries. It seemed the perfect choice to deliver a powerful message in a creative and interactive way. Our Huge Bag of Worries Emotional Health and Wellbeing Project aimed to highlight the detrimental impact of bullying on a child’s emotional health and wellbeing and promote more understanding of mental health, thus challenging the stigma aspect.

Each session lasted approximately 45 minutes and we visited over 30 schools, fitting in at least four classes into the day

We started by introducing ourselves and asking the children what a nurse did. I then explained the role of a mental health nurse and we asked what the term “mental” meant? After a chat about this, Marjorie then read the book which we also had on a Power Point display so the children could see the beautiful graphics.

We then got a volunteer from the class to put balloons – each of them representing a worry – into a large, colourful sack one by one as we recalled the story’s key messages. The child then walked up and down with the bag to show how difficult it was to carrying around your worries.

We tried to emphasise that you don’t need to carry around your worries and often we have to take each worry out and hand it to our parents or teachers. Children don’t often realise they don’t have to be burdened by adults’ worries.

We specifically highlighted bullying as a worry and what we could all do to prevent and deal with this. At the end of the day 25 children, five from each class, would line up in the playground and one by one they would release the helium balloons. The rest of the school and the parents would stand around in a large circle and watch. Everyone would clap and cheer – that was one of the highlights of our day.

The project was funded for a year but we went on to deliver it voluntarily for a further two years. We still deliver it now voluntarily.

The project was successful as the book carries a simple yet powerful message. It has beautiful graphics and words and we used colourful materials in an informal, creative approach.

It seemed to resonate well with pupils in their final year of primary school who were apprehensive about starting a new school. We also found many of the children were also less judgemental and had far fewer preconceived ideas around mental health than adults.

The children would often say who their best friends were and that they would talk to them if they were being bullied or felt stressed. This was quite touching. One school had a “friendship bench” in the playground that a child could go and sit on if they felt alone so that others would know this and play with them.

We met a number of children who were caring for parents with ongoing mental health issues. Often, they enjoyed their caring roles and in a way they felt proud of what they were doing. I feel our project helped them to ‘normalise’ their circumstances and showed the other children in the class that because mental health affects one in four of us, they were not so different to their classmates.

The path to positive mental health and the shattering of stereotypes and stigma can start in the classroom and children. While the government’s new mental health strategy, No health without mental health, promotes more teaching of mental strength, or “resilience”, in schools so children grow up better prepared to face the stressors of the world, the caveat is that there will be no extra money to fund this.

“Enough is enough”: London teens campaign against knife crime

The poster for the London anti-knife crime campaign designed by young people
“We see 12-year-olds holding knives. They are doing it in daylight.” That’s the shocking reality of gang membership on south London’s Rockingham estate, as witnessed by 18-year-old Tanvir Hussain.

On my way to meet Tanvir and his friends, I pick up the Evening Standard. It carries a couple of stories on gang-related crime, including a heart-wrenching plea for an end to the violence from the mother of a 15-year-old boy stabbed to death while out on his bike. It’s a reminder, if any were needed, of the terrible impact of knife crime in our capital city.

Last year, more than 2,000 young people were injured by a knife in London and south of the river the problem is particularly bad, with Lambeth and Southwark last year recording the highest number of knife crimes in the capital. Earlier this month the Met launched a new drive to target gang crime.

For youngsters on the Rockingham, a spate of nine knife assaults three years ago was the final straw. They decided to come together to warn others about the grim consequences of gang culture and have since produced two films and, most recently, a hard-hitting poster campaign on knife crime.

“We’ve been affected by knife crime – we are telling a true story, it comes from the heart and it’s not like something you see on TV,” says 18-year-old Shabir Ali. “We just really felt enough was enough and we wanted to get the message out.” What’s so impressive about the youngsters’ work, through their Faces in Focus Boys’ Group, is that they have led the project every step of the way, inspired by their own experiences – and in some cases their own brushes with the law.

They are aiming their message at the youngsters, often only just at secondary school, who get involved with gangs to try and look cool. They’ve run sessions in schools to discuss gang violence and significantly have also opened a dialogue with the police about how policing methods such as stop and search can fuel community tensions.

But although the project is very much young person-led, it’s brought together a range of partners across local government, housing, voluntary organisations and the private sector. They include the Southwark-based charity Faces in Focus, Peabody Housing Trust, which has supported the work as part of its cross-London Staying Safe anti-crime project and Poached Creative, the social enterprise which brought its design skills to the table. The launch of the drive was hosted by campaigning charity Art Against Knives last month.

Khalis Miah, who helped the youngsters get their ideas off the ground after approaching them through the Connexions service three years ago, says their experience is a positive one on many levels. “Some were in court themselves,” he says. “But they have turned their lives around – they have been doing something positive for the community instead of getting into trouble.” The pay-off projects like these can have in terms of building confidence, leadership and employment skills is important too.

But with young people’s services hit hard by the cuts, support is crucial from social landlords like Peabody, which is currently supporting nine different anti-crime campaigns under the Staying Safe banner.

“Our approach is working with young people, not patronising them but working with them on a professional level,” says Lajaune Lincoln, Peabody’s Staying Safe and special projects manager. “Not only are they putting out an important message on crime, but it is also productive for them, improving their skills and helping with employers.” The members of the Faces in Focus Boys’ Group are continuing to work hard to get their message across – including to London Mayor Boris Johnson, who, they say, has not yet responded to their offer to discuss ways of tackling knife crime.

“We just want to get the word out,” says Shabir. “Knife crime is still going up and we want people to know it does have consequences.”

Stephen Greenhalgh: localism hero or demolition man?

Stephen Greenhalgh is hated and feted. To Labour, he is a tyrant for keeping council tax low at the expense of frontline services in the west London borough he has led since 2006. To the Conservatives, he is a town hall trailblazer, praised by the communities and local government secretary, Eric Pickles, who describes Hammersmith & Fulham council as “the apple of my eye”.

Greenhalgh has perhaps baffled both parties by announcing he is to quit the leadership for the council backbenches in order to help steer a pilot community budget in White City, a deprived area of the borough. Rumour had him in line for a peerage. Read the rest of my interview with Stephen Greenhalgh in the Guardian’s Society pages.

The power of a poem: how reading broke David’s isolation

EleanorMcCann, TheReader project

Guest post by Eleanor McCann, The Reader project

Whenever I arrived to read with patients at the psychiatric hospital, David was always alone. I approached him a few times but the weeks went by and he seemed unreachable, saying nothing and making no eye contact. One evening, I came on to the ward to find him lying on a sofa with the lights off, his hood up and his earphones in. All the barriers were up. I handed him a poem and, to my amazement, he took his earphones out, his hood down and said: “Can you turn on the light?”

The poem I gave to David was Release, by R.S. Gwynn. It goes:

Slow for the sake of flowers as they turn
Toward sunlight, graceful as a line of sail
Coming into the wind. Slow for the mill-
Wheel’s heft and plummet, for the chug and churn
Of water as it gathers, for the frail
Half-life of spraylets as they toss and spill.

For all that lags and eases, all that shows
The winding-downward and diminished scale
Of days declining to a twilit chill,
Breathe quietly, release into repose:
Be still.

I think the poem’s stillness broke David’s silence. After that, he joined the reading group on his ward, where we enjoyed short stories, such as Saki’s The Lumber Room and Doris Lessing’s Through the Tunnel; extracts from novels including Jane Eyre and The Old Man and the Sea and poems old and new. We read Release with the group and David said he loved the last two lines, especially. He said: “Poems can move you even though you’re sat still. Probably you actually have to be still like it says there. It’s different from feeling manic.”

Weekly Get Into Reading groups bring people together to read aloud. Pic: The Reader project

David has instructed me to always approach him: “Come and knock on my door, even when I’m in the dark and I’ve got my back to you.” This is the essence of why the reading project exists: to knock on doors, bringing light and lightness through reading.

David’s group is one of about 280 Get Into Reading (GIR) groups across the UK. GIR brings people together through weekly read aloud groups, where people can choose to read and are invited to give personal responses. We have groups in locations such as care homes, libraries, prisons, mental health drop-in centres, community centres, schools, hostels, refugee centres and workplaces. Sessions are an opportunity for people of all ages, backgrounds and abilities to engage with reading for pleasure. The work aims to bring about, what we call, a Reading Revolution. This means we want to make literature available to those most in need in our society, as a way of fostering individual wellbeing and social cohesion.

Reading as part of a group can bring mental health benefits. Pic: The Reader project

I work specifically within mental health settings so my groups are in a variety of health-care environments: older people’s care homes; psychiatric units; secure hospitals and addictions services. This type of work is an innovation. The medical director of Mersey Care NHS Trust has said that “Get Into Reading is one of the biggest developments in mental health practice in the last 10 years.” We believe our model is a pioneering way of using creative partnership to deliver meaningful activity to patients. Reading should not be merely an additional intervention; I would identify it as an integral part of the care provision for mental health patients.

My grandmother was an occupational therapist in the 1960s and 70s, and she remembers reading aloud with some of the people with whom she came into contact. It’s just that we are only now really realising the full extent of the potential that literature has to help people- and that this can amount to the transformation of lives and communities.

We have recently carried out some evaluation so have statistics to substantiate this. 54 reading group attendees, both inpatients and outpatients, filled in a questionnaire. The results showed very encouraging responses to their experience of the reading groups.

There were some overwhelmingly positive results, for example, 94% of people agreed with the statement ‘The reading group has given me a chance to take part in interesting discussions’ – but the results form our research are particularly relevant in the context of mental health. In response to the statement “reading has improved my mood”, 78% agreed, 18% neither agreed nor disagreed and just 4% disagreed. And in reaction to the statement that “in the group I’m able to be myself”, 79% agreed, 19% neither agreed nor disagreed and just 2% disagreed. Our research showed 85% agreed with the comment “I’m more able to relax” while 11% neither agreed nor disagreed and 5% disagreed.

I find my work extremely rewarding, primarily because of qualitative, individualised stories like David’s, but this is verified by a growing evidence base, pointing to cost-effective, lasting benefits for our readers.

* Eleanor McCann is a project worker with Mersey Care Reads, a collaboration between The Reader Organisation and Mersey Care NHS Trust. The organisation was a runner-up in last year’s Guardian Public Service Award. Eleanor’s work involves delivering weekly reading groups in mental health settings across Merseyside. She is also studying for a masters in Reading in Practice, a course combining literature and health science, at the University of Liverpool and is co-editor of The Reader magazine. Eleanor can be contacted at eleanormccann@thereader.org.uk

Lessons in leadership: how to grow youth talent

Guest post by Alison Bradley, youth charity Mosaic
The world is changing rapidly for young people who have to learn to survive and perform in a competitive global environment. Now, more than ever, is the time for young people to take the lead in developing themselves and in having a positive impact on the individuals and communities around them.

The question is, how?

Despite their best attempts, with the current economic climate, a growing number of young people in the UK and abroad face unemployment. In addition, in the last year we have seen the disenchantment of young people culminate in large scale events, both in the UK riots in the summer, and in the ongoing protests for regime change across the Middle East.

I work for Mosaic, a charitable initiative of HRH The Prince of Wales, creating opportunities for young people of every background. We aim to have a positive effect on confidence, employability and self efficacy. By showing young people what inspirational leadership looks like, introducing them to role models who they can relate to, and persuading them that they too can be leaders who make a positive impact on the people around them – we aim to turn frustration and inertia into action and responsibility.

A Mosaic secondary school mentoring session

We have found some key factors to encouraging young people to discover their leadership skills. First is the definition of what is successful and inspiring leadership. For many young people, they do not consider themselves leadership material because they are not famous enough or wealthy enough or old enough.

However, through examining the character traits of effective leaders, using real life examples, we identify that the skills of a good leader are those which can be trained and developed – they are not simply based on an individual’s position or celebrity or charisma but instead are focused on serving others and behaving responsibly and consistently. A good example is that of listening skills. Every leader needs to demonstrate that they can fully attend to a colleague’s concerns, reflecting back on what they have heard, and asking clarifying questions to help reach a solution. This is a skill which can be taught and honed amongst young people.

Mosaic runs mentoring programmes for primary schools

Second is the recognition of personal emotional resilience. It is critical to understand that all leaders face difficulties on a daily basis, and that the ability to navigate these with a positive outlook and bounce back from disappointments, brings strength rather than demonstrates failure. We ask young people to recall a time when they have felt particularly under pressure, and to consider how they endured this and who supported them. This has as much relevance for school aged students as it does for those in the work environment, and is certainly a skill that can be developed.

Third, and related to resilience, is the need for leaders to have a network in which they can share resources, continue learning and be open to feedback. The Mosaic International Summit, our international leadership development programme is a great example of this; by bringing together leaders from different backgrounds and perspectives, invaluable exchange of ideas takes place and also, many cross cultural stereotypes and fears are shattered. As one of our alumni said, “there is no source of inspiration greater than a person who has been in the same place you are, yet has surmounted the odds. “

* Alison Bradley is the international director at Mosaic, a charitable initiative of HRH The Prince of Wales. She oversees the leadership development programme, which aims to grow leadership ability in young people and equip them to be a positive part of their communities. Alison has previously worked in a number of organisations which support young people, in the UK and abroad.

Painting, prisons and penal reform

Some thoughtful and attention-grabbing images on display this week at The Big Issues exhibition, a project that forms part of prison outreach work at Surrey’s recently restored Watts Gallery.

Peace on Earth, Louise HMP Send

The exhibition is the result of the Compton-based gallery’s Art for All project. The outreach scheme involves artist-led workshops with inmates in prisons including Send and Coldingly in Surrey and Bronzefield in Middlesex – the pieces featured here are by female offenders at Send and Bronzefield.

Everyone Deserves A Chance, Amanda HMP Bronzefield

The inclusive arts project is in keeping with the beliefs of the gallery’s namesake, Victorian artist George Frederic Watts. Watts and his artist wife Mary Watts supported penal and social reform, believing in widening access to art, using the medium to benefit individuals and the community and arguing against prejudice towards ex-offenders. The couple’s aim of transforming lives through encouraging the socially excluded to engage with art underlines the gallery’s current outreach work.

Mother and Child, Juliet HMP Bronzefield

Art for All aims to build confidence and self-worth in people usually deemed socially excluded – prisoners, young offenders, addicts, and those with mental health issues or experiencing homelessness housing. One former prisoner at HMP Send, for example, was released before Christmas and been accepted on a foundation course at Brighton University. Another participant described the project as “some light in the dull, grey prison world”.

Rehabilitation through art can provoke controversy and the Watts gallery scheme is by no means unique, but with prison numbers at a record high and a proven reoffending rate of 26%, the value of projects like this is clear.

The exhibition is on until Sunday.

Saba Salman on social affairs