Category Archives: Volunteering

What an ex-gangster taught me about standing up to stigma

Reformed hardman Chris  (centre) with Lol and his partner Clair at the Ley centre
Reformed hardman Chris (centre) with Lol and his partner Clair at the Ley centre

What do a mental health nurse and an ex-gangster have in common?

That was the question I was asking myself as I visited the Ley Community, a residential drug and alcohol rehab centre, with Chris Lambrianou, former henchman to the Kray twins.

I visited the Ley at the invitation of Chris, who volunteers at the centre; his life now is about as far removed from his past as is possible. The Krays ruled London’s gangland in the 1960s and were imprisoned for murder. Chris was present on the night Jack ‘the hat’ Mcvittie was stabbed to death. His presence and silence that night in naming Reggie Kray as the murderer resulted in Chris being jailed for 15 years.

Whilst in prison Chris, now 78-years-old, reflected on his life and the mistakes he had made. He wondered how he had found himself to be in such a position. Like many other prisoners Chris ‘found’ God. But unlike many others who use this as a cynical ploy to seek freedom early, Chris knew his life had to change and was determined to make that happen. He wanted to make a difference to others. On his release in the early 1980s he began working at the Ley. His voluntary work there includes accompanying people to court and generally giving them the encouragement to try and turn their lives around.

I had read about Chris’s work in his autobiography, The Kray Madness, and contacted him to discuss our mutual interest in helping people to turn their lives around. After a few phone calls, he invited me to Oxfordshire to a look around the Ley. The centre initially struck me as quite regimented, but it has to be that way to encourage the residents to make the efforts to come off drugs and show self discipline and determination. There is a strong emphasis on group discussions, peer pressure and support, openness and self responsibility.

We have different backgrounds and seemingly different areas of interest – me with mental health campaigning and Chris supporting the rehabilitation of people with addiction issues. Yet we both have a desire to use our life experiences to make a positive difference for others.

Chris has an influential role among young men because of his Kray connections, with much recent interest in his life thanks to the Tom Hardy film Legend – Chris advised on the movie. Chris is not volunteering as much at the Ley due to his age, but when he does he accompanies people to court, and generally encourages them to try to transform their lifestyles and behaviours. They see him as a positive role model and he can relate to them.

Supportive networks are vital to recovery and a focus on relationships is the theme of Mental Health Awareness Week next week. Social contact is the best way of breaking down barriers, misunderstanding, and ignorance of mental illness. It is important for us to have good relationships for our own mental health in the sense of talking and listening to each other.

My own work, for example, has been aimed at encouraging men to seek help early for mental health issues and self-harm. My most recent media advisory role was advising the storyline involving the ‘macho’ character Zak Dingle in TVs Emmerdale during his depression storyline.

Tragically we have very high rates of self-harm among young men in my native north east. Much of this is a consequence of the damaging ‘Big boys don’t cry’ attitude among men, and the damaging misperception that men expressing their feelings is a sign of weakness. This is something Chris would relate to in his own work.

Challenging stigma and addressing feelings of shame is something Chris and I share as a common goal.

Through social media, Facebook, and social contact, we are both starting to chip away at the damaging defensive layering common to all tough guys. We are trying to convince men who think they are somehow immune from mental illness that nothing could be further from the truth.

We have discussed the idea of a joint project, perhaps a book, to try to reach out to men in particular who self harm and feel stigmatised because of having mental illness. Together we are determined to make a difference; we have more in common then we think.

* You can find Lol on Facebook

‘I am different, that is good’: how an actor with Down’s syndrome is changing perceptions

Sarah Gordy, actor.
Sarah Gordy, actor.

Really enjoyed talking to the brilliant actor Sarah Gordy for today’s interview in The Guardian.

As I explain in the piece, the established theatre and television professional, who has Down’s syndrome, is breaking new ground by playing a character without a disability.

She has just appeared in Manchester play Crocodiles, combining this with charity work, including as Mencap’s first celebrity ambassador with a learning disability, a role she took on a year ago.

If Gordy looks familiar, it’s because she’s already starred in high-profile BBC roles in Call the Midwife and in Upstairs Downstairs as well as being involved in the Shifting Perspectives exhibition, an annual project from the Down’s Syndrome Association, where she posed for the striking portrait below, entitled After Vermeer (and I blogged about the exhibition here).

Sarah Gordy in 'Sarah After Vermeer', shot by Richard Bailey
Sarah Gordy in ‘After Vermeer’, shot by Richard Bailey

As Gordy told me, “I’m just a normal person who lives a normal life.” You can follow Sarah on Twitter @sarah_gordy

Immigration: what is it like for a child?

An image from the new book Billu Leaves India! (Artist: Iain MacLeod-Brudenell)
An image from Gersh Subhra’s book Billu Leaves India! illustrated by Iain MacLeod-Brudenell

How does a young child cope when he is suddenly uprooted from the people and places he loves and confronted with a new home in a distant, completely alien land? What was it like for a child to be among the first immigrants moving to Britain from the Indian subcontinent in the 1960s?

I like the idea behind a new children’s book, Billu Leaves India!, because it presents the rarely told story – from the perspective of a child – of the impact of immigration on younger members of the family. Launched yesterday at the University of Derby’s multi-faith centre , it aims to help children of immigrant families “make sense of the feelings of dislocation and strangeness, which are part of the immigrant’s journey”.

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Although fictional, the storybook for children aged seven upwards is loosely based on the childhood experiences of its author, University of Derby associate lecturer Gersh Subhra, who left his small Indian village in 1964 aged four; the family settled in Coventry. Profits from the book go to Oxfam and Derby Open Centre, which promotes better understanding between cultures in the city. The author volunteers with both organisations.

drawing copy

The book tells the tale of six-year-old Billu, who leaves his beloved village in India to emigrate to England in the 60s with his family. The book focuses on the boy’s relationship with his beloved uncle Tyaa. Tyaa makes his nephew a copper bowl as a leaving gift, symbolising the pair’s long-distance relationship.

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Subhra, a former youth and community worker and ex-head of the university’s Centre for Community Regeneration, explains: “ “As a boy, I grew up with stories about India and the journey that many in our community made from there to England. These anecdotes were filled with all of the emotions one can imagine; the doubts, as well as the hopes and aspirations involved in moving to a new life.

“Because it was a long time before I went back to the village of my birth in India, I’ve added into my story a fictional perspective on what it might have been like. I even had an uncle who was a bit like Billu’s who, unfortunately, I never saw again after I left for England.”

boyandlady(E) copy

Billu Leaves India! is illustrated by artist Iain MacLeod-Brudenell – also a former University of Derby lecturer – and is published through Matador, part of Troubador Publishing. Copies can be bought via the publisher’s website or on Amazon.

No-one should ever have to feel like they are not worth helping

Richard Turner and his volunteer befriender, Delia Jones
Richard Turner and his volunteer befriender, Delia Jones

“No-one should ever have to feel like they are not worth helping…”

I saw these striking words on a postcard displayed at a recent event to celebrate volunteering. With the massive cuts in public spending and the unprecedented reform of welfare, it’s not hard to see why vulnerable people might think they don’t deserve any support.

The words, written by someone with experience of volunteering, referred to the vital work of London-based charity the Octavia Foundation. In full, the handwritten postcard read: “No-one should ever have to feel like they are not worth helping and Octavia does such a good job of making sure that doesn’t happen.”

The event was Octavia’s annual volunteer awards, honouring some of the 250 local people who have given their time to others through the charity over the last year. Actor Tamsin Greig presented awards to those who support work with local people affected by ill health, social isolation, unemployment or poverty.

The foundation operates in the west London boroughs of Westminster, Kensington and Chelsea, Hammersmith and Fulham, supporting older people, working with young people, focusing on training and employment and debt advice. It runs regular groups and activities as well as some inspiring one-off projects which I’ve written about in the past.

The foundation works in one of the most affluent parts of the capital, but there is much for the charity to do in the pockets of deprivation that also exist.

I helped judge the charity’s awards, reading some incredible testimonies from people who benefit from the help of volunteers.

Delia Jones, who volunteers as a befriender for example, was highly commended. Delia was nominated by Richard, who she visits and who was involved in a serious car accident almost 40 years ago – both are pictured above.

Richard’s mother Joyce Turner, 95, who also nominated Delia, explained: “What Delia does for Richard is vital. He will tell Delia what kind of book he wants, as we have a lot of different kinds and we arrange them alphabetically so she can find them. Delia seems exactly right, and we love her visits because it gives Richard such pleasure to see her. The importance of her visit every week is that he only goes out three times a week, and if its raining or bad weather, she is the only thing that he looks forward to. She never lets us down and we can trust her.”

With welfare cuts and a squeeze on public sector funding, many support services are under threat so the work of volunteers is vital in helping society’s most vulnerable people. Some of the most innovative ideas – and inspiring, unsung heroes – are found in small, community-based projects that often don’t get the attention they deserve. The recent Octavia awards are an opportunity to put that right and focus on the important work carried out in local areas.

A full list of winners and background to the awards is on the Octavia Foundation website.

Charity helpline supports abuse victims with learning disabilities

If Simon Tovey gets anxious before using the bathroom, you might assume his panic is linked to his learning disability. Maybe the public convenience is unfamiliar?

Yet Tovey’s fear is the result of the abuse he suffered at Winterbourne View assessment and treatment unit. He featured in the 2011 Panorama expose of the privately run unit near Bristol where he was kicked, punched, verbally tormented – and threatened with having his head put down the toilet.

Tovey’s mother, Ann Earley, says of her son, 40: “The Simon that returned to us was not the same one who left. He was profoundly affected and unable to put into words how he felt. He has a long-term fear of toilets – that’s just one small thing. The other impact is incalculable, like his fear about what’s going to happen next.”

Three years on from the Winterborne View scandal, the effect on residents has been huge – but a specialist helpline offers support for them and their families. Read the rest of my piece on the work of the charity Respond on the Guardian’s social care network.

Ann Earley and her son Simon, who was abused at Winterbourne View specialist unit in 2011
Ann Earley and her son Simon, who was abused at Winterbourne View specialist unit in 2011

Christmas for care leavers

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A groundbreaking support scheme run by care leavers for care leavers is hoping to help vulnerable young people for a second year Christmas running.

478 blur Bilal on right with hat and blue top

Named in memory of a 23-year-old care-leaver, Topé, who took his life several years ago, the Tope Project helps care leavers and held its first festive event last year, allowing those who live alone to enjoy Christmas Day in a safe environment (the pictures here are from last year’s event).

Youth worker, Shalyce Lawrence, 24, who was in care for 10 years and considered Topé “like a brother”, started the volunteer-run project because some of Topé’s friends had nowhere to go. The group is raising £5,000 to make the Christmas event happen for around 80 young people. While the law was recently changed to allow young people in care to be supported beyond 18, Christmas and New Year – times when most people are with family – can be an isolating and difficult experience for many young people in care.

You can follow the project on Twitter: @TheTopeProject or find it on Facebook and help raise the £5,000 needed to run this important event again this year via JustGiving.

More autistic people should be able to volunteer

David Braunsberg
David Braunsberg
My experience proves the benefits of volunteering for people with autism. I was born in 1959 and diagnosed with autism in 1963, at age four. I was one of Sybil Elgar’s first pupils at her progressive school. She was a pioneer in autism and helped develop my language and communication skills.

I then attended a local primary school in Edinburgh, where my mother and I moved, and a mainstream secondary school in London when we moved back to England in 1972. Art was my strongest subject (I passed several O Levels) and I studied furnishing design and textiles at the London College of Furniture. I got a diploma in art and design. I took more courses after that at a local art college and learned things like etching and print making. My most recent works are computer generated greetings cards (see the website).

Following a traumatic event in 2008, I developed severe depression and anxiety . After some time attending a psychiatric unit, social services support and help from my GP, a social worker suggested volunteering and I was put in touch with Volunteer Centre Camden.

It was through the volunteer centre that I started working at the Holy Cross Centre Trust in July 2011. It is a secular organisation in King’s Cross, London, which supports mental health recovery as well as homeless people, refugees and asylum seekers.

I hadn’t volunteered before although I’d had some experience of work. The place where I worked previously was a company providing unpaid employment for people with mental health issues and was run as a social service. The aim was to manufacture and distribute large volumes of greeting cards to the mass market but I wasn’t happy there. The tasks I was involved in were printing and packing greeting cards and using Photoshop on a computer for designing cards for later use and batch production.

I did not get satisfaction there as I was mostly restricted to printing other people’s designs and this did not allow me to express my own ideas. Their bias was to produce Christmas cards and my inspiration for designs comes from many sources which are irrelevant for Christmas. The repetitive tasks were soul-destroying.

But at the Holy Cross where I am now, my role is to help and encourage people to draw and paint, also to set up and tidy the art materials. I work noon to 3pm. Everyone is kind and friendly and there is a positive buzz to the place. Not only is helping out so satisfying and rewarding, it helps me to gain significantly in confidence and the thrill of feeling respected and valued as part of a team is fantastically liberating. I have made many friends and can see myself thriving there well in the future.

Suitable volunteering should be open to more autistic people as the skills required such as attention to detail, reliability or some special talents are well suited to the autistic trait and may prove to be great assets for the workplace. On their part autistic people can benefit from mixing and socialising with people of different nationalities and backgrounds and feeling respected and valued. To me the regular routines, the structure to the week and the sense of purpose in society are most satisfying.

Autistic people may encounter some difficulties. For example, travelling on public transport, especially long distances, or unintentional and misinterpreted challenging behaviour may cause problems. But with foresight, awareness about autism, guidance and the right support I see no reason why autistic people should not be accepted and be very successful doing voluntary work. I am quite sure that, giving the right conditions, volunteering can be “autism friendly”.

The fact I am high functioning autistic has presented no problems in my volunteering. One of the benefits of working there is that it has a knock-on effect on my closeness, love and affection towards members of the family. I now feel so optimistic about the future. Socialising now comes with ease. I am thrilled with life!

* See more of David’s work on his website

The season to be jolly?

Christmas isn't all it's cracked up to be. Pic: The Topé Project (see end of article for info)
Christmas isn’t all it’s cracked up to be. Pic: The Topé Project (see end of article for info)

Hooray, it’s Christmas! Yes, the season to be jolly is upon us once again. But that’s OK because everyone loves Christmas, right? Well, I’m not a fan and I know I won’t be the only one shunning the Christmas cheer, preferring instead to hide away with old Ebenezer Scrooge until the tinsel is put away and a new year begins.

This Christmas will be a difficult time for many people, even more so for those with mental health problems. Our society expects a lot from us at Christmas; shops, TV, advertisements and jolly newsreaders perpetuate the myth that we all have to be happy simply because it’s ‘that time of year’.

Being unwell at Christmas as a result of a mental health problem is rarely spoken about since the expectation is that everyone ought to be enjoying themselves; quaffing wine, eating too much and watching the Eastenders Christmas special. Knowing that people are suicidal or spending Christmas locked up in a psychiatric ward distorts this myth and exposes the reality of what Christmas is like for many of us.

Why aren’t you happy? It’s Christmas!

Telling people to ‘get a grip’ or ‘pull themselves together’ doesn’t help, ever, but especially not at Christmas when people are no doubt already chastising themselves for not being in the Christmas spirit and feeling like they are letting friends/family down. If this was possible there would be no such illness as depression, nor any other mental health problem. Making someone feel guilty over how they’re not feeling helps no one.

Having a mental health problem is a lonely experience and can make you feel like an outsider. It can be difficult to find people who ‘get it’ and are willing to listen, especially at Christmas when most people would rather be thinking about what presents they are going to buy.

It becomes less acceptable for people to speak honestly because we’re all supposed to so happy. People are more likely to keep quiet about how they are feeling at Christmas because of the pressure to be positive and have everything ‘perfect’ for the day itself. This quest for perfection can be dangerous because it is unattainable and doesn’t allow for people to let others know they are struggling.

Between Christmas and the New Year the usual support systems that people rely on aren’t available. Mental health services close during this period and on Christmas Day itself even places like coffee shops are closed. This may seem like a trivial complaint to some but when you rely on little things to help you get through the day – such as being able to go out each day and sit in the local coffee shop – not having the opportunity to do this can make it more difficult to cope with existing mental health problems and the stress of Christmas.

The disruption to regular appointments with a mental health service can make it difficult for people to know where to turn if things get tough over Christmas. Thankfully there are helplines available, such as the Samaritans, which do a fantastic job supporting people over the holidays. Generally people are told to go to A&E if they are struggling with a mental health problem in lieu of other mental health services being closed, but as you can imagine going into that environment when you’re in emotional distress can be inappropriate and frightening.

A great service in Leeds which offers face to face and telephone support for people experiencing a mental health crisis is the Leeds Survivor Led Crisis Service. Set up by people with direct experience of mental ill health they will be open Christmas Day and throughout the holiday season, providing an alternative to A&E and helping prevent hospital admissions with their helpline and crisis house.

It would be great if more of these services were available to people across the country, particularly at Christmas when many have nowhere else to turn.

* Project supports care-leavers at Christmas, writes Saba Salman
“Christmas conjures up thoughts of a big massive dinner, presents, fun… and then I think about so many young people who don’t have that. For me it’s really important that young people, especially the most vulnerable, have a good Christmas.” These are the words of youth worker Shalyce Lawrence, 24, who was in care for 10 years and who, along with several peers, has launched a project to support young care-leavers who are alone at Christmas.

Shalyce and a group of volunteers in their 20s have created the Topé Project, in memory of a 23-year-old care-leaver, Topé, who took his life several years ago. The scheme’s launch event, Christmas in the Crypt, is a Christmas Day celebration in London for 70 care-leavers from across the capital. Organisations supporting the scheme include the charity Crisis and five London councils, and the group has also been gathering donations to fund the drive.

The aim of the scheme is to create an “atmosphere of belonging”, positive memories and to help young people form constructive relationships. Young people in care are not supported by social services after the age of 18, unless they are in education and based on 2011 figures, as the project points out, 44% of 19-year-old care leavers in London were living in independent accommodation.

Shalyce adds: “It doesn’t mean you are going to be affected by suicidal thoughts just because you have been in care, you can be anyone and go through that. Think about how you can support the people around you, so it doesn’t have to happen to you.”

Read more about the project on The Independent website, find out more via email thetopeproject@gmail.com Twitter: @thetopeproject or on Facebook.

Playgrounds, pupils and promoting mental health

Positive mental health promotion should start in schools and we should teach all our children to be more mentally resilient. This approach means that, as adults, they will face the world with more confidence and have empathy and compassion for others. Currently 1 in 10 – or around 850,000 – children and young people are diganosed with a mental health problem, according to the charity Young Minds.

Research from Warwick University last week suggests that children involved in bullying – as both a victim and a bully – are three times more likely to have suicidal thoughts by the time they reach 11-years-old.

Four years ago when I worked for the Tees, Esk and Wear Valleys NHS Foundation Trust, myself and a non-clinical colleague, Marjorie Wilson, who worked in the Information Department, created a storytelling-based approach to mental health for use in primary schools.

We based our idea on Virginia Ironside’s book The Huge Bag of Worries. It seemed the perfect choice to deliver a powerful message in a creative and interactive way. Our Huge Bag of Worries Emotional Health and Wellbeing Project aimed to highlight the detrimental impact of bullying on a child’s emotional health and wellbeing and promote more understanding of mental health, thus challenging the stigma aspect.

Each session lasted approximately 45 minutes and we visited over 30 schools, fitting in at least four classes into the day

We started by introducing ourselves and asking the children what a nurse did. I then explained the role of a mental health nurse and we asked what the term “mental” meant? After a chat about this, Marjorie then read the book which we also had on a Power Point display so the children could see the beautiful graphics.

We then got a volunteer from the class to put balloons – each of them representing a worry – into a large, colourful sack one by one as we recalled the story’s key messages. The child then walked up and down with the bag to show how difficult it was to carrying around your worries.

We tried to emphasise that you don’t need to carry around your worries and often we have to take each worry out and hand it to our parents or teachers. Children don’t often realise they don’t have to be burdened by adults’ worries.

We specifically highlighted bullying as a worry and what we could all do to prevent and deal with this. At the end of the day 25 children, five from each class, would line up in the playground and one by one they would release the helium balloons. The rest of the school and the parents would stand around in a large circle and watch. Everyone would clap and cheer – that was one of the highlights of our day.

The project was funded for a year but we went on to deliver it voluntarily for a further two years. We still deliver it now voluntarily.

The project was successful as the book carries a simple yet powerful message. It has beautiful graphics and words and we used colourful materials in an informal, creative approach.

It seemed to resonate well with pupils in their final year of primary school who were apprehensive about starting a new school. We also found many of the children were also less judgemental and had far fewer preconceived ideas around mental health than adults.

The children would often say who their best friends were and that they would talk to them if they were being bullied or felt stressed. This was quite touching. One school had a “friendship bench” in the playground that a child could go and sit on if they felt alone so that others would know this and play with them.

We met a number of children who were caring for parents with ongoing mental health issues. Often, they enjoyed their caring roles and in a way they felt proud of what they were doing. I feel our project helped them to ‘normalise’ their circumstances and showed the other children in the class that because mental health affects one in four of us, they were not so different to their classmates.

The path to positive mental health and the shattering of stereotypes and stigma can start in the classroom and children. While the government’s new mental health strategy, No health without mental health, promotes more teaching of mental strength, or “resilience”, in schools so children grow up better prepared to face the stressors of the world, the caveat is that there will be no extra money to fund this.

12 days of Christmas, Social Issue-style

Season’s greetings from The Social Issue – to mark the jollities, here’s a snapshot of some of the upbeat posts and pictures about people, projects and places featured over the last 12 months. This festive pick is by no means the best of the bunch – the inspiring stories below are included as they’re accompanied by some interestin and images and almost fit with a festive carol, if you allow for a little the poetic and numerical licence…

Very huge thanks to the Social Issue’s small band of regular and guest bloggers, all contributors, supporters, readers and everyone who’s got in touch with story ideas and feedback. See you in January.

On the first day of Christmas, the blogosphere brought to me:

A tiger in an art show

Batik Tiger created by a student at specialist autism college, Beechwood

Two JCBs

The Miller Road project, Banbury, where agencies are tackling youth housing and training. Pic: John Alexander

Three fab grans

Hermi, 85: “I don’t really feel like an older woman.”

Four working teens

From antisocial behaviour to force for social good; Buzz Bikes, Wales.

Five(ish) eco tips

Eco hero Phil uses a “smart plug” to monitor domestic energy use

Six(ty) volunteers

Young volunteer with City Corps, Rodney WIlliams

Seven(teen) pairs of wellies

Abandoned festival rubbish, Wales, gets recycled for the homeless, pic credit: Graham Williams

Eight(een-years-old and over) people campaigning

Participants in the Homeless Games, Liverpool

1950s hall revamping

"The kid who talked of burning down the place is now volunteering to paint it."

10 lads a leaping

11-year-olds integrating

Children's al fresco activiites at the Big Life group summer scheme

12(+) painters painting

View from the Southbank of Tower Bridge, Aaron Pilgrim, CoolTan Arts

Merry Christmas and Happy New Year!